Kelsi,

I too feel your pain. And i thoguht it was ironic that u said these past couple
of weeks have been worse! they have!! i too have felt like giving up! it is so
frustrating!! my who leg hurts so bad that i don't want to get outta bed. its
bad enough that i have depression for the rest of the crap in my life... but
this just adds to it. i go out and drink b/c it numbs the pain... i have tried
it all.

i am not so sure about all these 'new found' things they are 'trying' on us. the
problem is that they know so little about RSD, especially long term. they don't
know the long term effects of all the 'things' they have out there to 'help' us.
i stopped nerve blocks a while ago. i'll never forget the 1st one i had... i
cried and cried... i had no pain.... i thought it was a miracle and that i would
never take it for granted.... but it didn't even last 24 hours. i was so upset!
i will never forget what it finally felt like to be 'normal'...... if only for a
moment. i think i 'relied' on them for a while.... until they left a hole in my
spinal column leaking cerebral spinal fluid into my head.... i'll never forget
the nightmare.....

i'm not sure if there will ever be anyone to really help us... sometimes, they
don't even believe us... like its 'not as bad as we say it is' or like there
'really isn't any pain'.... its such an awful feeling.... my friends don't
understand... it helped to end my long term relationship... it ruins my life!

i'm sorry.. i guess i vented and really didn't help w/ an answer. the point is,
no one is really sure. and u r not the only one who wonders.... 'is this really
all there is left for me' i wonder that every day! all we can do is pray... and
stick together! it is so great to know that there really are people that believe
us, that really know what we are going through and can empithize w/ us, not just
sympathize!

i wish you all the best! and we'll find an answer.. as long as we keep telling
people how we are.

Lisa

Dianne Alexy <lexxgracie@...> wrote:
Hi Kelsi,
First I must say I love your name, My daught's name is Chelsea.
But any way, I feel your pain. Try and relax(I know that is not easy)
The more stress you are under the pain increases.
Has your doc. said anything about a spinal cord stimulator.
They inplant a stimulator in your spin . First they would do a trial run, to
see
how you are with it and if it works for you. If it does , they go in a put a
permant one in. It controls the pain and in some cases relieves it all
together.
There are pros and cons to it. And it's a risky as in all procedures.
That is where I am now. Still going through the pros and cons.
I have tried everything else.
I hope you have a better day. I will keep you in my prayers.

Kelsi Hudson <w2w28@...> wrote:
hey guys,
i just needed to share with you what my doctor said to me. i went to see yet
another doctor today. he told me that there isn't anymore that they can do for
me. he said that the only thing left is to give me drugs. i have had 3
injections, physical therapy for 3 months, and multitude of meds and nothing
seems to be working. i am soooo depressed and angry. does anyone have any
other treatments that have done that seems to be working for them that i can
suggest to my doctor? i just have a hard time believing that at the age of 30 i
will always hurt and not be able to use my right arm normally. i mean the past
couple of weeks it has been completely horrible. the pain is just to much to
bear. HELP!!!!
kelsi

pixieglitters <pixieglitters@...> wrote:
Hi Lisa, and Dianne,
This is Jolene.
I have RSD in my right arm and it swells up so bad
sometimes. The only thing I can do is make fun or
light of it, so I call it my "popeye" arm.
I know it sounds stupid, but the pain of RSD is
intense and there's very little to laugh about or even
smile about, so i "ease" it with humor at times.
If you stress out or tense up, the pain becomes
worse, so try and relax and stay calm, but also keep
the limb as mobile as you can so it doesn't stiffen up.
I move my arm and squeeze these rubber balls. I flex it
as much as that hurts, but it feels better if I keep
it moving.
So I'm here for you all. Anytime. I may not get on the
computer often enough, but my thoughts and prayers and
friendship and compassion is here for you all full time
100%.
Take care.
Jolene

--- Dianne Alexy <lexxgracie@...> wrote:

> Hi Lisa,
> Just being there is help enough. I am a little
> scared right now.
> I have rsd in my right leg. Right now both of my
> legs are swollen up like balloons.
> The hurt to the touch. this has never happened. I
> can not contact my dr. until
> tomorrow and I am waiting for the hospital back to
> see what I should. I am trying to
> stay calm. that's why I am talking to you, to
> distract me
> i will keep you in touch
> also i will pray for you and the other members
>
>
>
> Dianne alexy
>
>
> Lisa Stoker <prescious.lee@...> wrote:
> I'm not sure what i could say to help..... i feel
> your pain (literally) today has been one of my wort
> in years.... i swear I'm not sure how much i can
> take of this 2/day!
>
> lexxgracie <lexxgracie@...> wrote:Where is
> everyone.
> I need to talk. Meds are not working, can't sleep.
> HELP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
>
>
>
>
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