Hi Sonja,
Hang in there. And some of the meds the doctors can
prescribe for you will also help your seizures.

There is a drug Ive taken called Keppra. It has been
better than Nuerontin for me. I dont get seizures
like you do, but the higher dosages will help you with
that.

My RSD started in my elbow and spred to my hand,
forarm, upperarm and neck and shoulder blade. But it
hasnt spread anywhere else.
I try and exercise the arm everday, so exercise, as
much as it hurts, is the best medicine for keeping
pain to a tolorable level.

I joined the RSD groups b/c no one around me
understands what Im going through. My own family is
absolutley no support for me.
So I am here anytime you need to talk.
Take care.
Jolene

--- Sonja <cristlevysingrl@...> wrote:

> Hi everyone!
>
> I was diagnosed a little over two months ago. I hid
> myself from
> everyone and am so down. It started in my right arm
> after a clavicle
> fracture and on a bad day it will hurt to the touch.
> It has spread to
> my right leg. Medical care is minimal but that
> might get better. My
> husband is supportive but really scared because my
> seizure disorder
> kicked in from the pain and a had a grand mal. It
> was good in way
> because that is when the docs took a closer look and
> found out what was
> wrong. I have three little ones to get out of bed
> for othewise i dont
> know anymore... i want to make friends online i stay
> home all the time.
> people that are coping with this disease in a more
> positive way than I
> am. Any advice would be appeciated.
>
> Much love to all, sonja
>
>
>
>
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>
>
>
>


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