HI there, my name is Lori and got RSD in 1999. By 2003 I was in a wheelchair
and had RSD in both legs, both feet, stomach, esophagus, back and face. I
could no longer walk and looked like a freak with RSD in my face. Then in
December of 2003 I went into remission and just celebrated on Dec 29th my one
year
in remission. So please never ever give up hope for your daughter of a
healing, a remission or a cure. You and her both have to keep a positive
attitude so you are ready when one of those things happen. I have a RSD Retreat
each
year here in Indiana for a whole weekend. It will be July 30th and 31st this
year in Indiana. My website is being worked on right now by my webmaster but
as soon as it is up I will send it to you. People come from all over the
United States to the Retreat and maybe you might think about bringing your
daughter. It is for all rsders and their families. Anyway, I wanted to welcome
you
to the group and please feel free to email me privately any time. You and
your daughter have been added to my prayers. God Bless.

Love, Lori


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