Hi, i am new to this, my daughter was diagnosed with this disease 11
years ago, she is 26, i thought maybe joing a group would give me
some insight into helping her, yes we have been thru the gament of
Dr's,hospitals,medications,the whole route, she has cronic
infections due to this disease i am told,had a portacath implanted
in sept.(which in a day or two they will be removing to move to a
different site due to infection) some days are better than others,
she has seen a few miracles with disease,but how do i keep telling
her that tommorow will be better when the drs. don't give us that
hope,thanks for listening. :)