Hi Lori,
Funny, prior to opening this email I had just emailed
someone else in the group w/questions on RSD and
remission.
How or what did lead the disease into remission? Was
it something you did (therapy, meds...) or did it just
suddenly happen on its own somehow?...please let me
know.
Jolene
--- Letgoletgo7@... wrote:

> HI everyone, whewwwww, it is like the first time in
> months I could actually
> sit down and write to anyone. I do apologize for not
> posting very often. After
> I went into remission and got PT done and started
> curves and Weight Watchers,
> I was just filled with so much energy and also with
> the knowledge of the
> million things I have not been able to do in 6 years
> that i could now do. We moved
> into this house about 3 years ago and I could do
> nothing. Couldn't paint or
> strip these 50 year old floors, nothing. But since
> remission and getting myself
> back into some kind of shape, I have been able to do
> all of that and more. I
> am painting all the inside of my house, all by
> myself and redoing all of the
> floors in the house. The kitchen and dinette rooms
> were the hardest. Took about
> 40 hours all together to strip them. They have never
> been stripped since the
> house was built in 1947, and had a zillion coats of
> wax on them. Had to scrape
> every spot over and over with a scraper that you
> scrape paint off of windows
> etc. But I am also taking my time doing everything.
> So far I have 5 rooms
> painted, got 3 more to go. But I am very careful, do
> not want to fall off a ladder
> or slip on a wet floor and have my remission be
> gone, so I take it easy and
> take plenty of breaks. The only problem with that,
> is that it is taking me
> months to do all of this!!!! From morning till
> night, every day. I have delveloped
> Type 2 Diabetes and am taking insulin pills and have
> to test my blood sugar 4
> times a day. A pain in the you know what! And I also
> have pernecious anemia
> and have to go and get B12 shots once a month, for
> the rest of my life, but
> other than that, I feel so good. And I pray every
> day that all of you can go into
> remission or that we get a cure and we all can be
> free of this horrid disease.
> But now for some good news>>>>>>>>>>>.
> The 2005 RSD Retreat will be held on July 30th and
> 31st. Here is the new and
> approved Retreat Website, www.rsdretreat.com. Please
> go and look at all of the
> pages and be sure to sign the guestbook and plan on
> coming to the Retreat. It
> is for the weekend and it is so much fun and anyone
> that comes, well they
> just cannot believe how much fun and support there
> is at the Retreat. And there
> is plenty of entertainment and speakers,,,, just a
> time to not be missed.
> Tickets will go on sale in December, they are $12 a
> piece. NO, I do not make any
> money off of the Retreat. Quite the contrary. My
> husband and I have to put in
> over and above the ticket money, an amount always
> over $1000. At the Retreat
> will be an expense record that everyone can have a
> copy of. I have heard it said
> in the past that I have the Retreat to make money.
> Please, I put my heart,
> blood and sweat into making this a time of great fun
> and support for all rsders
> and their families. I work on it all year long. I
> have to pay for all of the
> entertainment, some of the speakers, all of the
> food, all of the rental
> equipment, all of the prizes, the quilt that gets
> raffled off with everyone's name on
> it, and on and on and on. I do not make any money
> off of this Retreat. Every
> penny of the ticket money goes to the Retreat, not a
> penny to me and my
> husband. Just the opposite, like I said,we put
> hundreds of our own money into it.
> But we love doing it for all of the rsders to give
> them a happy, safe, fun,
> caring place to meet all of those wonderful people
> you meet online. Already, there
> are so many people coming next year, it is amazing.
> So please check out the website at
> www.rsdretreat.com. And please do not
> hesitiate to ask me any questions you would like.
> One point that has to be added
> to the website yet, is that there IS camping
> facilities. Elkhart has a great
> Campground with a pool, tennis courts, miniature
> golf, cabins, and so much more!
> You have plenty of time to start making your plans
> and be sure to ask me any
> questions you may have. I hope to see you all there
> and God Bless each and
> every one of you!!!
>
> Love Lori
>
>
> [Non-text portions of this message have been
> removed]
>
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