Hi Mark

I feel for you cause up here in Canada we RSD'ers doctors that say
the same thing. One of the worst doctors is even getting subsities
from RSD groups and she dosen't even believe in RSD. She wrote a
twelve page report to workers comp. and said I had cronic pain
syndrome and I was very depressed...so depressed that I would probly
be dead within the year. (killed by my own had) Well I have to say
that was 6 yrs. ago and I'm still here and have called her office
very year since she wrote that ...just to say I'm still here....
Why do doctors act so suprised the we're depressed...is it because
they think we should be happy that this painful disease has invaded
our bodies and we should be proud and happy about htis instead of
being upset that our hole world has changed.

Well Mark just know that I think RSD should be as reconized as MS or
the flu and that we need assistance too.

Got your back up here.
Hugs,
Martie
Ontario, Canada




--- In rsdsupport1@yahoogroups.com, "comenero" <comenero@y...> wrote:
> Hi I'm Mark or rsdno@hotmail. and I live in Springfield Oregon I
have
> to buy MSir because though the State (Medicaid Care) says RSD is
not
> one of the 515 diseases that needs anything for pain .I think they
> also have a Strong ANS /Medtronics Lobby here and if Mechanics
works
> for you I think its fantastic we are all different people so
different
> things work for us all .I have had RSD since 14 now Im 50 so for
over
> 35 years every time an invasive procedure has been done on me my
RSD
> moved there .I saw the rudest Doctor I ever saw in Eugene(he must
just
> talk to his pumps and SCS es )and Im going to have to take the
State
> on ,that I can do but I cant do the tons of Paperwork to take this
all
> the way but Im seeing Legal Aide on Tuesday and hoping I will get
the
> help ,Thats terrible that Illinois Senator I will have to call him
> myself was it Obama in most States you can also send E mails 'If
> anyone is from oregom please let me know I know its kunda a small
> State but it would help to lmow if you had problems ,,This is the
> State of RSD enemy (if you suffer with RSD )Dr Ochoa who says maybe
> RSD exists now that all the other States recognize it to some
degree
> but he says its a Disease bored housewives get from boredom to
wanting
> attention .This guy is the one SS used to look to for the Social
> Security Determinations .Its a pleasure being in your Group
Gentlest
> Huggs Mark