HELLO! MY NAME IS CAROLE AND AM THE SPOUSE OF RJ, WHO
HAS HAD RSD/CRPS FOR THE PAST 5 YEARS. HE HAD ONE
BLOCK AND THEN QUIT BECAUSE I HURT SO MUCH AND HE
DIDN'T HAVE THE RESULTS THE DR DESIRED! WE FINALLY
FOUND A NEUROSURGEON TO SEE AND NOW RJ HAS 2 SPINAL
COLUMN STIMULATORS, ONE IN HIS C-SPINE AND ONE IN HIS
LUMBAR SPINE. THESE ARE DESIGNED TO HELP EASE THE
PAIN, BUT NOT THE PROGRESSION OF RSD/CRPS. HE CLAIMS
HE GETS 50% PAIN REDUCTION AND WOULDN'T LIVE WITHOUT
IT! HE STILL TAKE SOME ORAL MEDS, XANAX TO STOP HIS
TREMORS, SOMA FOR THE SPASMS INHIS LEGS, DARVOCET FOR
PAIN AND WELBUTRIN FOR HIS HEAD. HIS RSD/CRPS BEGAN IN
HIS RIGHT ARM AND SPREAD TO HIS LEFT AND THE NEURO PUT
IN THE C-SPINE SCS FOR THAT AND THEN THE RSD/CRPS
DECIDED TO MIGRATE TO HIS LOWER BODY. HE HAS BEEN
UNABLE TO WALK FOR A YEAR NOW AND USES A POWER CHAIR
TO GET AROUND. OUR LIVES HAVE DRASTICALLY CHANGED, AS
HAVE MOST PPL'S! THERE IS A NEW DRUG THAT WILL SOON BE
ON THE MARKET THAT IS MADE FROM THE SEA SNAILS TOXIN
AND IT IS IN DOUBLE BLIND STUDIES NOW WITH MUCH
SUCCESS! HOPEFULLY IT WILL BE IN PILL FORM, BUT RIGHT
NOW IT IS INTRODUCED IN THE BODY VIA AN INTERTHECAL
PUMP THAT DRIPS THE MEDS RIGHT INTO THE SPINAL FLUID.
THEY ALSO USE OTHER DRUGS IN THESE PUMPS, DOES ANYONE
HAVE ONE OF THESE PUMPS?
ALSO, IF YOU GO TO www.rsdhope.org THEY HAVE MUCH
INFORMATION FOR US,TOO.
WE ARE SO SORRY THAT THINGS ARE SO DIFFICULT FOR YOU
RIGHT NOW AND WE WILL UPLIFT YOU TO OUR LORD AND ASK
FOR SOME EXTRA=DUTY GUARDIAN ANGELS TO WATCH OVER YOU
AND YOURS.
YOU ARE FORTUNATE TO HAVE A PARTNER THAT IS SO
UNDERSTANDING AND SUPPORTIVE FOR YOU, SO MANY SPOUSES
JUST CANNOT TAKE THE DEVASTATION AND LEAVE, BUT YOU
SOUND LIKE A DETERMINED WOMAN AND THAT WILL HELP YOU
COMBAT THIS RSD/CRPS!
PERSONALLY, WE HAVE NEVER MET ANYONE THAT THE BLOCKS
HELP FOR LONG. EACH TIME YOU GET PUNCTURED IS A NEW
SITE FOR THIS MONSTER DISEASE TO MIGRATE! PLEASE KEEP
POSTING AND WE ARE ALL HERE TO GIVE YOU SUPPORT AND
INFO. TAKE CARE, GENTLE HUGS, CAROLE AND RJ IN MONTANA



--- "mommom9toes20022002 <mommom9toes@...>"
<mommom9toes@...> wrote:
> I have had 4 blocks and the last one hurt me. I
> am in bad pain.
> The DR. gave me more pain med., and said to go get
> the 5th block. He
> said to ask the pain mang. if they could ck., on
> this problem. I am
> already having severe pain in wrist and hand, now it
> is up arm and
> into the back blade. It has been worse than usuall.
> If there is such
> a thing. Please let me know what to expect when I go
> Fri. ,
> Feb,7th,03. I am on all kinds of meds., and they do
> not seem to help
> much at all. I have begged the doctor to cut off my
> arm. He said it
> would not help. Someone please help me to keep
> sanity. I have been
> trying to not complain to my family. They have
> sympathy....but they
> all have problems of their own. My son now lives
> with me to help, so
> when he is not at work. My boyfriend has just quit
> his job. He is an
> over the road truck driver. He was not here when I
> had my last Block.
> He was so worried that he had problems concentrating
> on the road and
> work. He is a very good person and tries to
> understand, but he loses
> his temper and I am worse. He is going to get a job
> so he can be home
> too. I have been off work for 8 months now. He and I
> have been
> together to the last 7 years. I hope I have not
> typed to much. I am
> trying to talk to much. I get lost thoughts. Thanks,
> for giving me
> your ears. mommom9toes
>
>


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