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#66067 From: "Dennis& Linda Galway" <dgalway@...>
Date: Sun Jan 2, 2005 9:01 pm
Subject: Great article from Dr. Sy's newsletter
lindyluca
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Did anyone else receive it. I hope to discuss some of the points with my derm
tomorrow.
As a sideline, can any recommend dimethicone and/or cyclomethicone skincare and
foundation/sunscreen mentioned in the article for those of you who have the more
of the erythema subtype rosacea.
If you don't receive Dr. Sy's newsletter, it is available at her site
www.lindasy.com


[Non-text portions of this message have been removed]







#66071 From: David Pascoe <pascoedj@...>
Date: Mon Jan 3, 2005 2:11 am
Subject: Re: [rosacea] Great article from Dr. Sy's newsletter
pascoedj@...
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The article on Linda Sy's web site is in 3 parts.

Rosacea: I. Etiology, pathogenesis, and subtype classification
Rosacea: II. Therapy
Commentary on Rosacea II. Therapy by Dr. Linda Sy

You can go to her website at http://www.lindasy.com and take the link
to `Skin411 Digest' on the left hand side or the following URL should
work as well - http://tinyurl.com/4xyft

These articles are really nicely written overview of the standard
classification, some known treatments and some personal comments from
Linda's clinical experience. Exactly the sort of information that
should be compulsory for those newly diagnosed.

davidp.



#66077 From: "Dr. Geoffrey Nase, PhD" <drnase1000@...>
Date: Mon Jan 3, 2005 2:50 am
Subject: Re: [rosacea] Great article from Dr. Sy's newsletter
drnase2000
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> These articles are really nicely written overview of the standard
> classification, some known treatments and some personal comments
from Linda's clinical experience. Exactly the sort of information
that should be compulsory for those newly diagnosed.
>
> davidp.



I agree David. These are excellent articles for those just getting
their feet wet in the rosacea arena. There is a general trend now
to treat rosacea differently according to the subtype. This means
that if you are primarily Subtype I with background facial redness
and flushing, you should be treated with specific medications; but
if you are primarily Subtype II with papules and pustules, you
should consider alternative treatments. This is a wise
scientific/medical approach, but it often gets lost that everyone,
no matter what subytpe, has to be extremely cautious about provoking
the underlying vascular disorder.

There is considerable controversy over the use of retinoids and
tretinoin. In my eight years as a rosacea sufferer and one who has
listened carefully to thousands of rosacea sufferers and clinically
seen many rosacea sufferers at IU Medical School with
Dermatologists, it is my opinion that retinoids and tretinoin have
NO place in rosacea treatment of any subtype. Acclimation of the
skin, blood vessels and nerves rarely occurs and then you are stuck
with a bright red flushed, burning face. This is where the articles
fall short. Their response to these patients who are now in
physical pain is, "Well, we dont know what to do -- you should go
see a neurologist". Then you are classified as having idiopathic
flushing syndromes and idiopahtic neural burning syndromes
(idiopathic means of no known origin), when in fact it is just
rosacea in a ticked off state. These rosacea sufferers then fall
through the cracks for years. There are many documented articles
from the Mayo Clinic, from the Rosacea Experts such as Dr. Wilkin,
etc. about these cases of angry face syndrome, burning face
syndrome, sun burn like responses, etc. to those physicians who
unwisely treat patients with retinoids.

Rosacea sufferers at all stages still need to be very wary of
rosacea medical advice because physicians are still "experimenting"
with us and if you are on the bottom of the learning curve, a
physician's treatment can turn a cosmetic disorder into a totally
different beast. When you hear retinol and tretinoin and benzoyl
peroxide, perk your ears up, take a step back and approach with
caution. We have several hundred if not over a thousand members on
this one board who have fought through the retinol and tretinoin-
induced irritation because of the sundamage theory (an unproven
theory where sun supposedly caused damage to blood vessels and
collagen and this can be reversed by these products). If this was
truly the case, then deep chemical peels or deep CO2 laser peels to
remove all the decades of sun damage would cure rosacea.......to my
knowledge not one single case has ever improved with these deep sun
damage treatments; to the contrary, these are the rosacea sufferers
living a painful existence.

As yo will find out, avoiding rosacea irritants is just as important
as actively treating the disorder. I literally shutter for rosacea
sufferers at the hundreds of OTC retinol products that are causing
cumulative damage to their skin for temporary changes in wrinkles
and skin smoothness. Rosacea is a genetic disorder that is brought
to the top via cumulative insults. This is known. Rosacea is also
much more prevalent then it was several decades ago -- is this from
skin care products designed for wrinkles, smaller pores and acne?

Regards,

Geoffrey
______________________________

Dr. Geoffrey Nase
Ph.D. Neurovascular Physiologist
http://www.drnase.com
______________________________










#66079 From: "Dr. Geoffrey Nase, PhD" <drnase1000@...>
Date: Mon Jan 3, 2005 3:04 am
Subject: Re: [rosacea] Great article from Dr. Sy's newsletter
drnase2000
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Oh, forgot to mention that our large dermatology group at IU School
of Medicine is dumbfounded at the number of rosacea sufferers
discontinuing Finacea for less irritating treatments. One doctor
told me the return rate is close to 70%. Their papules clear
beautifully with a small drop of this cream, but the patients' faces
burn during the morning showers, flushing is more intense and some
patients have lapsed into angry face syndrome. I hope our
dermatology group publishes on this side effect, even though Berlex
representatives are there with pamphlets, free samples and other
promotional material every month. Do not believe the hype on this
product. Feel free to try it, but use very small amounts and don't
fight through burning, stinging, flushing -- the chances of rosacea
skin to acclimate are not good.

It is a shame that we dont find more time to focus on treatments to
cure the disorder. Right now it is just as important for me (and
others) to warn rosacea sufferers about products that are actually
used for rosacea treatment but are more harmful to the disorder.
The honest truth is that dermatologists are humans and they have
been trained for decades to treat acne, so papulopustular rosacea
automatically triggers the "acne treatment mode" in most
dermatologists and then the remaining redness and burning is not
addressed, told there is nothing to do with it, or told that it is
just you skin's physical makeup.

Regards,

Geoffrey
______________________________

Dr. Geoffrey Nase
Ph.D. Neurovascular Physiologist
http://www.drnase.com
______________________________










 
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