. "A GP perscribed Elocon 0.1% and used that for the past 18 months. Last
Friday, I quit using the Elocon "
Hi
Been plagued with rosacea since 1989. I am no expert but if I am not
mistaken, Elocon is a steroid which is not the best for rosacea. To me, it
seems as if you are experiencing withdrawal from the Elocon.
You may need to wean yourself off. It seems that I remember something about
either reducing its use and using something milder ( like a hydrocortisone )
until your skin can handle one of the topicals for rosacea.
I am sure that you'll get help with this one.
All the best
We're here for you. I don't know what I would have done without the support
of all the wonderful caring folks at this group.
Linda
"A GP perscribed Elocon 0.1% and used that for the past 18
months. Last Friday, I quit using the Elocon "
Hello,
I am so sorry that you were treated with this moderate level
steroid. Please do not stop all of a sudden, especially after 18
straight months of use. This is a horrible mistake by the GP and
you should call in and speak to him in person and warn him to never
treat facial redness with topical steroids -- tell him that he/she
personally induced steroid rosacea in your case.
Steroid-induced rosacea is still quite common because well-meaning
physicians routinely use topical steroids to treat facial redness
and inflammation. Topical steroids of any concentration should never
be used to treat rosacea sufferers or patients who show pre-rosacea
symptoms (i.e., facial flushers and blushers). With continued use,
topical steroids thin the epidermis, weaken the blood vessels, and
worsen facial flushing. One of the most important first steps that
rosacea sufferers can take is to wean themselves off topical
steroids.
The major problem with discontinuing topical steroids is that
rosacea sufferers usually get worse before they get better. They
almost always experience rebound flares that cause their faces to
become more red, inflamed, and sensitive. (33) Under normal
conditions, this can take weeks to reverse, and months for the skin
to fully heal itself. (33) To decrease this rebound flare and speed
up the healing process, medical experts now recommend a very
effective four-step approach to weaning off topical steroids:
1. First Step – begin treatment with oral anti-inflammatory
medications: Physicians recommend that rosacea sufferers begin
treatment with oral anti-inflammatory medications one to four weeks
prior to weaning off topical steroids. This pre-treatment therapy
can help decrease inflammation, and reduce the intensity of steroid-
withdrawal flares. Popular oral anti-inflammatory medications being
used to decrease the rebound inflammation include:
• Clarithromycin – 250 milligrams twice a day. (56, 57)
• Minocycline – 100 milligrams twice a day. (58)
• Very-low-dose isotretinoin – Drs. Plewig and Klingman recommend
isotretinoin at 5 milligrams per day. (59)
2. Second Step – reduce the amount of topical steroid applied
to the facial skin: After the initial oral anti-inflammatory
therapy, rosacea sufferers are instructed to start weaning off
topical steroids. During the first week, rosacea sufferers should
simply reduce the amount of cream that they apply to their faces
(i.e., use less cream and less applications per day).
3. Third Step – decrease the strength of the topical steroid:
Over the next two to four weeks rosacea sufferers should decrease
the strength of the topical steroid in a stepwise fashion. Rosacea
sufferers should wean themselves down to 0.5% over-the-counter
hydrocortisone. Begin to use Elidel as this is FDA approved for
steroid rosacea.
4. Fourth Step – slowly replace the steroid with topical anti-
inflammatory creams: Eventually, rosacea sufferers will be able to
permanently replace the steroid with metronidazole-based creams such
as noritate or metrogel. Some physicians also recommend topical
zinc oxide for healing steroid-induced rosacea. (60)
Note: Most rosacea sufferers would be wise to stay on oral anti-
inflammatory medications throughout the entire withdrawal process
until the skin and blood vessels normalize.
I will not sugar coat this for you at all because that would not be
in your best interest. You will need to treat this very seriously
and follow the above list step by step or your face will literally
feel like it has a third degree sunburn and your epidermal skin will
slough off and bleed. Please be very careful. I would rather
someone warn me about what was about to happen if I was not careful
than sugar coat it pat you on the back and tell you everything is
going to be OK. As long as you have been using this steroid, that
is how long it will take your skin to recover.
BTW, do not have any vascular laser treatments performed for a while
because your dermis and epidermis are not physically prepared for
laser treatment.
If you want, give that GP my name and email address drnase1000@.... I would like to help guide him and yell at
him at the same time.
You will get through this, but it will take a while.
Kind Regards,
Geoffrey
______________________________
Dr. Geoffrey Nase
Ph.D. Neurovascular Physiologist http://www.drnase.com
______________________________
I can personally vouch for how terrible it is to completely stop topical
steriods immediately. Please don't do it, I wouldn't want anyone to experience
what I did. My PCP (I should say former PCP) had prescribed Lotrisone cream for
my rosacea. I did not know I had rosacea at the time, the doctor thought I had
some fungal infection on my face. I became unexpectedly pregnant and was
advised to stop taking it immediately. I was not put on anything at all since I
was/still am pregnant. It was a complete nightmare when I woke up one night,
about 2 nights after I discontinued the cream, with my face stinging and burning
so bad I found myself dunking my head in a cool sink of water. I then rubbed
ice on my face, stuck my head in the freezer, you name it I probably tried it
for relief. Nothing I found made it feel any better. I literally screamed at
one point I was so frustrated. It felt like ant stings all over my face. My
entire face turned bright red over the coarse of a few
days and completely covered in p&p, except at my temples and around my eyes. I
went to the doctor (the same one) again and he told me to lay out in the sun and
put egg white on my face. I followed his advise which made it even worse. I
had a family reunion that next weekend and I went anyway, but spent the entire
time trying to explain my facial condition. I then went to a dermatologist and
found out I had rosacea. That was about 2 months ago and things are slowly
looking..well, at least somewhat better. That doc should have known better, I'm
sure I could have diagnosed myself had I even known what rosacea was.
"A GP perscribed Elocon 0.1% and used that for the past 18
months. Last Friday, I quit using the Elocon "
Hello,
I am so sorry that you were treated with this moderate level
steroid. Please do not stop all of a sudden, especially after 18
straight months of use. This is a horrible mistake by the GP and
you should call in and speak to him in person and warn him to never
treat facial redness with topical steroids -- tell him that he/she
personally induced steroid rosacea in your case.
Steroid-induced rosacea is still quite common because well-meaning
physicians routinely use topical steroids to treat facial redness
and inflammation. Topical steroids of any concentration should never
be used to treat rosacea sufferers or patients who show pre-rosacea
symptoms (i.e., facial flushers and blushers). With continued use,
topical steroids thin the epidermis, weaken the blood vessels, and
worsen facial flushing. One of the most important first steps that
rosacea sufferers can take is to wean themselves off topical
steroids.
The major problem with discontinuing topical steroids is that
rosacea sufferers usually get worse before they get better. They
almost always experience rebound flares that cause their faces to
become more red, inflamed, and sensitive. (33) Under normal
conditions, this can take weeks to reverse, and months for the skin
to fully heal itself. (33) To decrease this rebound flare and speed
up the healing process, medical experts now recommend a very
effective four-step approach to weaning off topical steroids:
1. First Step – begin treatment with oral anti-inflammatory
medications: Physicians recommend that rosacea sufferers begin
treatment with oral anti-inflammatory medications one to four weeks
prior to weaning off topical steroids. This pre-treatment therapy
can help decrease inflammation, and reduce the intensity of steroid-
withdrawal flares. Popular oral anti-inflammatory medications being
used to decrease the rebound inflammation include:
• Clarithromycin – 250 milligrams twice a day. (56, 57)
• Minocycline – 100 milligrams twice a day. (58)
• Very-low-dose isotretinoin – Drs. Plewig and Klingman recommend
isotretinoin at 5 milligrams per day. (59)
2. Second Step – reduce the amount of topical steroid applied
to the facial skin: After the initial oral anti-inflammatory
therapy, rosacea sufferers are instructed to start weaning off
topical steroids. During the first week, rosacea sufferers should
simply reduce the amount of cream that they apply to their faces
(i.e., use less cream and less applications per day).
3. Third Step – decrease the strength of the topical steroid:
Over the next two to four weeks rosacea sufferers should decrease
the strength of the topical steroid in a stepwise fashion. Rosacea
sufferers should wean themselves down to 0.5% over-the-counter
hydrocortisone. Begin to use Elidel as this is FDA approved for
steroid rosacea.
4. Fourth Step – slowly replace the steroid with topical anti-
inflammatory creams: Eventually, rosacea sufferers will be able to
permanently replace the steroid with metronidazole-based creams such
as noritate#61652; or metrogel#61652;. Some physicians also recommend topical
zinc oxide for healing steroid-induced rosacea. (60)
Note: Most rosacea sufferers would be wise to stay on oral anti-
inflammatory medications throughout the entire withdrawal process
until the skin and blood vessels normalize.
I will not sugar coat this for you at all because that would not be
in your best interest. You will need to treat this very seriously
and follow the above list step by step or your face will literally
feel like it has a third degree sunburn and your epidermal skin will
slough off and bleed. Please be very careful. I would rather
someone warn me about what was about to happen if I was not careful
than sugar coat it pat you on the back and tell you everything is
going to be OK. As long as you have been using this steroid, that
is how long it will take your skin to recover.
BTW, do not have any vascular laser treatments performed for a while
because your dermis and epidermis are not physically prepared for
laser treatment.
If you want, give that GP my name and email address drnase1000@.... I would like to help guide him and yell at
him at the same time.
You will get through this, but it will take a while.
Kind Regards,
Geoffrey
______________________________
Dr. Geoffrey Nase
Ph.D. Neurovascular Physiologist http://www.drnase.com
______________________________
--
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(http://rosacea.ii.net).
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---------------------------------
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[Non-text portions of this message have been removed]
You know me well enough to know that I am not easily impressed, but
I continue to be amazed with your ability to communicate key issues
so effectively and responsably (and often ...).
If there is one aspect of the performance of derms that continues to
astonish me, it is their insistence on throwing topical steroids at
people with obvious rosacea symptoms. All they need to do is type
in "steroid induced rosacea" into medline (like a lot of us amateurs
do ...) and up come a number of hits, like the abstract below.
Don't these guys bother to read anything?
Hell, give me the this guy's email address and I can assure you I
will be much less diplomatic ...
I think it is great that you are about to be approved to consult on
rosacea cases. The mean level of rosacea care in Indiana is above
to improve signficantly.
Rick
---------------------------
1: Am Fam Physician. 1993 Jul;48(1):67-71. Related Articles, Links
Steroid-induced rosacea.
Litt JZ.
Case Western Reserve University School of Medicine, Cleveland, Ohio.
The excessive, regular use of topical fluorinated corticosteroids on
the face often produces an array of skin complications, including an
eruption clinically indistinguishable from rosacea ("iatrosacea").
Treatment involves discontinuation of the steroid and administration
of oral tetracycline and nonsteroidal topical preparations. Once
therapy is begun, clearing of the lesions may take several months.
Publication Types:
Case Reports
Review
Review, Tutorial
PMID: 8322645 [PubMed - indexed for MEDLINE]
-------------------------
--- In rosacea-support@yahoogroups.com, "drnase2000"
<drnase1000@h...> wrote:
>
>
> "A GP perscribed Elocon 0.1% and used that for the past 18
> months. Last Friday, I quit using the Elocon "
>
>
>
> Hello,
>
>
> I am so sorry that you were treated with this moderate level
> steroid. Please do not stop all of a sudden, especially after 18
> straight months of use. This is a horrible mistake by the GP and
> you should call in and speak to him in person and warn him to
never
> treat facial redness with topical steroids -- tell him that he/she
> personally induced steroid rosacea in your case.
>
> Steroid-induced rosacea is still quite common because well-meaning
> physicians routinely use topical steroids to treat facial redness
> and inflammation. Topical steroids of any concentration should
never
> be used to treat rosacea sufferers or patients who show pre-
rosacea
> symptoms (i.e., facial flushers and blushers). With continued
use,
> topical steroids thin the epidermis, weaken the blood vessels, and
> worsen facial flushing. One of the most important first steps
that
> rosacea sufferers can take is to wean themselves off topical
> steroids.
>
> The major problem with discontinuing topical steroids is that
> rosacea sufferers usually get worse before they get better. They
> almost always experience rebound flares that cause their faces to
> become more red, inflamed, and sensitive. (33) Under normal
> conditions, this can take weeks to reverse, and months for the
skin
> to fully heal itself. (33) To decrease this rebound flare and
speed
> up the healing process, medical experts now recommend a very
> effective four-step approach to weaning off topical steroids:
>
> 1. First Step – begin treatment with oral anti-inflammatory
> medications: Physicians recommend that rosacea sufferers begin
> treatment with oral anti-inflammatory medications one to four
weeks
> prior to weaning off topical steroids. This pre-treatment therapy
> can help decrease inflammation, and reduce the intensity of
steroid-
> withdrawal flares. Popular oral anti-inflammatory medications
being
> used to decrease the rebound inflammation include:
>
> • Clarithromycin – 250 milligrams twice a day. (56, 57)
>
> • Minocycline – 100 milligrams twice a day. (58)
>
> • Very-low-dose isotretinoin – Drs. Plewig and Klingman recommend
> isotretinoin at 5 milligrams per day. (59)
>
> 2. Second Step – reduce the amount of topical steroid applied
> to the facial skin: After the initial oral anti-inflammatory
> therapy, rosacea sufferers are instructed to start weaning off
> topical steroids. During the first week, rosacea sufferers should
> simply reduce the amount of cream that they apply to their faces
> (i.e., use less cream and less applications per day).
>
> 3. Third Step – decrease the strength of the topical steroid:
> Over the next two to four weeks rosacea sufferers should decrease
> the strength of the topical steroid in a stepwise fashion.
Rosacea
> sufferers should wean themselves down to 0.5% over-the-counter
> hydrocortisone. Begin to use Elidel as this is FDA approved for
> steroid rosacea.
>
> 4. Fourth Step – slowly replace the steroid with topical anti-
> inflammatory creams: Eventually, rosacea sufferers will be able to
> permanently replace the steroid with metronidazole-based creams
such
> as noritate or metrogel. Some physicians also
recommend topical
> zinc oxide for healing steroid-induced rosacea. (60)
>
> Note: Most rosacea sufferers would be wise to stay on oral anti-
> inflammatory medications throughout the entire withdrawal process
> until the skin and blood vessels normalize.
>
> I will not sugar coat this for you at all because that would not
be
> in your best interest. You will need to treat this very seriously
> and follow the above list step by step or your face will literally
> feel like it has a third degree sunburn and your epidermal skin
will
> slough off and bleed. Please be very careful. I would rather
> someone warn me about what was about to happen if I was not
careful
> than sugar coat it pat you on the back and tell you everything is
> going to be OK. As long as you have been using this steroid, that
> is how long it will take your skin to recover.
>
> BTW, do not have any vascular laser treatments performed for a
while
> because your dermis and epidermis are not physically prepared for
> laser treatment.
>
> If you want, give that GP my name and email address
> drnase1000@h... I would like to help guide him and yell at
> him at the same time.
>
> You will get through this, but it will take a while.
>
> Kind Regards,
>
> Geoffrey
> ______________________________
>
> Dr. Geoffrey Nase
> Ph.D. Neurovascular Physiologist
> http://www.drnase.com
> ______________________________