I would be very wary of this company.  It looks like a classic
pyramid scheme.  They want you to buy their products, sell them to
others, and then convince other people to become sales reps.  The
person who posted this is clearly a sales rep - her name is on the
website.

--- In rosacea-support@yahoogroups.com, "maddyc23" <maddyc23@y...>
wrote:
> Please listen to this...I would like to help.
> I was one of those sufferers that was sensitive to most products.
> I've tried everything and nothing would work, it was very
> discouraging and depressing.  Finally I went to the following
> website and my life changed for the best and am very happy. I was
> hesitant at first of course and was even afraid to apply the
> products on my face (worried about my reaction) but it was
> amazing....NO BAD REACTION!  All I saw were great results and the
> products are all natural.  Trust me it was phenomenal.  Take a look
> at the website and read the testimonials as well:
>
> Type this in the address section (leave out the http, just type in
> the following):
> 122237.themastersmiracle.com
>
> GOOD LUCK!

Hi again,

I wanted to comment on the exercise thread.  I have been doing
weight training for about 2 1/2 years.  I highly recommend Joyce
Vendral's Weight-training Made Easy (in book form) for anyone
looking to start.  The advantage to weight-training is that it is
basically non-aerobic, which for us equals no "red face" exercise,
it can be done at home, and it costs next to nothing to start.  I
have not found that it aggravates my rosacea at all.  You burn an
extra 50 calories for each pound of muscle you put on, too!  At this
point I do "super-sets" which is very mildly aerobic, but if I start
feeling flushed, I slow down the workout.

By contrast, I can't even power walk with my friends without someone
commenting on how flushed I look.  I will not go to a gym in part
because of the embarassement of working out around other people.  Of
course, I have found that after a "good aerobic workout" I have
great big red swells on my face for the next two weeks.

Just a quick update too.   I have now been on Avar for about a month
and am finally seeing some improvement!  Yeah!  I actually cut back
on the amount prescribed by my doctor because twice a day created
MORE problems than I had before (a possible reaction to the
medication's strength).  I am now using it once a day and a Eucerin
moisturizer.  I am also following the rec on the board and have
found the Oil of Olay Foaming Facial wash to be very helpful, but a
bit drying.  Thank you all for the suggestions and support.  With
any luck I can keep this as a mild condition.

J

Use of Lasers for treatment of Lupus and Rosacea

Hello Group,

Sorry for the recent sabbatical from the group – trying to do too
many things.

There was some recent discussion about the use of lasers in the
treatment of autoimmune diseases.  There has also been some debate
about the effectiveness of lasers/IPL  for the treatment of facial
redness (erythema).  Due to time constraints, I will just post a few
pertinent abstracts regarding both of these subjects.  Some of the
studies are clinical case reports, while others were performed on
small groups of subjects.  Many subjects reported significant
clearance of vascular symptoms and burning sensations that was
maintained over a considerable length of time.  I am organizing
detailed reports of 14 studies that evaluate the effectiveness of
lasers/IPL for facial telangiectasia, erythema, flushing and
swelling.  There will also be discussion on why some subjects don't
respond adequately to various forms of lasers.

Good luck,

Geoffrey

----------------------------------------
Dr. Geoffrey Nase
Ph.D. Microvascular Physiologist
www.drnase.com
-----------------------------------------



J Cutan Laser Ther. 2000 Dec;2(4):195-8.

Intense pulsed light treatment for chronic facial erythema of
systemic lupus erythematosus: a case report.

Levy JL.

Centre Laser Dermatologique, 3, bd Lord Duveen, 13008 Marseille,
France. laserder@...

BACKGROUND: A 33-year-old woman, who had been diagnosed previously
with systemic lupus erythematosus, presented with chronic erythema
and rosacea of the face. The patient suffered from flushing and
burning of the facial skin and sought prior treatment with anti-
malarial drugs. METHOD: After various treatment options were
discussed with the patient, she agreed to undergo intense pulsed
light therapy. RESULTS: Improvement was noted after the first
session and 75% clearance was observed at 1 month after a second
session. There were no adverse effects associated with the
treatment. One year later it was observed that the results of the
two treatments had been maintained. CONCLUSION: This case report
suggests that there is another safe and efficacious alternative for
treatment of chronic erythema and rosacea.



Lasers Med Sci. 2002;17(1):26-33.


Laser treatment of erythema and telangiectasia associated with
rosacea.

Clark SM, Lanigan SW, Marks R.

Department of Dermatology, The University Hospital of Wales, Heath
Park, Cardiff, UK.

The response of rosacea-associated erythema and telangiectasia to
treatment with the pulsed tunable dye laser (PDL) was evaluated in
12 patients. Improvements in erythema, telangiectasia, flushing, the
physician's and the patient's perception of overall severity,
treatment tolerability, and the adverse side effects were examined.
With the sole exception of the patient's assessment of overall
severity we have found highly significant improvements in all other
parameters evaluated, with excellent tolerance of treatment. We
therefore conclude that the PDL is a safe and effective treatment
for the erythemato-telangiectatic component of rosacea.



J Dermatol Surg Oncol. 1991 Jun;17(6):522-5.


Flash lamp pumped dye laser for rosacea-associated telangiectasia
and erythema.

Lowe NJ, Behr KL, Fitzpatrick R, Goldman M, Ruiz-Esparza J.

The persistence of facial telangiectasis and erythema in patients
with rosacea frequently presents a major cosmetic problem. It may
also contribute to relapses of papular and pustular lesions. This
study of 27 patients treated for their telangiectasia and erythema
with a flash lamp pumped dye laser tuned at 585 nm is described. The
laser gave good or excellent reduction of telangiectasia and
erythema and overall appearance in 24 of the patients with between
one and three treatments. In addition, papule and pustule activity
was decreased in 59.2% of the patients, with those with the most
severe pre-treatment activity having the most significant
improvement. It is suggested that this is a useful additional form
of treatment that may improve the telangiectasia and erythematous
component of rosacea.

Agnes,

From Paula's Choice dictionary:  hyaluronic acid. Component of skin
tissue that is used in skin-care products as a good water-binding
agent.

Pantothenic acid is a B-complex vitamin.  If you take a
multivitamin, you are taking pantothenic acid.

Remember, not all acids are bad.

Lonne

--- In rosacea-support@yahoogroups.com, "walkinthepines"
<pinewalk@h...> wrote:
> Beth,
>
> I'd never profess to being an expert, but when I see acid listed
as
> an ingredient, I avoid it.
>
> Agnes
>
>
> --- In rosacea-support@yahoogroups.com, "Beth Adams"
<badams01@r...>
> wrote:
> > In my never-ending quest for a moisturizer that will not
irritate
> my skin, I found this "B-Complex" serum at dermstore.com.    Do
any
> of the ingredient experts out there have any comments/cautions
about
> the following:
> >
> >
> >
> > Active Ingredients
> > Hyaluronic acid, pantothenic acid.
> >
> > Inactive Ingredients
> > Water, Sodium Hyaluronate, Pantothenic Acid, Phenoxyethanol
> >
> > [Non-text portions of this message have been removed]

Hello Kajsa,

I am sorry to hear about your response.  Let me try to give you some
educated speculation -- which in turn, you should discuss with your
laser physician.

The two pass protocol may be the primary cause of scarring in your
case. If the energy (joules) is too high for certain skin types,
trauma may occur to the epidermal and dermal tissue.  This in turn
may incite a tissue reaction which results in scar formation.  In
addition to the energy levels, if the first pass does a good job of
vessel clearance or causes blanching (constriction of vessels), then
the laser will not be able to specifically target blood vessels on
the second pass.  This may result in more energy delivered to the
tissue and not the blood vessels.  Just as important, it probably is
not wise to place ice packs on your face after the first treatment
because this also causes constriction of blood vessels.

Meanwhile, you may want to coat your scars with a silicone based
topical such as kelocote scar reducing gel

If you do decide to procede with lasers or IPL, please keep it
simple and try single passes with low to moderate energy levels.

Please keep us all posted on your progress.

Geoffrey

----------------------------------------
Dr. Geoffrey Nase
Ph.D. Microvascular Physiologist
www.drnase.com
-----------------------------------------





> Hi Geoffrey,
>
> I have done 1 versapulse and 1 yag(over the nose) and
> I got at least 2-3 scars from the versapulse, don't
> see any scars on my nose. The versapulse was 18-20J
> and twice over my face with cooling(icepacks) between.
> Im going to try photoderm in Sep, but Im really afraid
> of new scars.
>
> Is there any way to prevent scarring? like taking
> certain forms of supplements or something else I can
> do? And is there some lasers that is safer in not
> getting scars? The versapulse and the Yag has helped
> some so I really would like to cominate and do more of
> those treatments and photoderm, do you think I should
> look for other lasers? And one more thing I took for 4
> weeks after lasertreatment 500mg clarithmycin, can
> that be the reason to scarring?
>
> tnx for your time! //Kajsa
>
> _____________________________________________________
> Gå före i kön och få din sajt värderad på nolltid med Yahoo!
Express
> Se mer på: http://se.docs.yahoo.com/info/express/help/index.html

and you are someone who wants to contibute and discuss and
participate in the group, please join this SD group:

http://groups.yahoo.com/group/seborrheic-derma/

Two of our members(chris and angel) believe they got Rosacea in
additon to Seborrheic dermatitis when their doctors told them to use
steroid creams.

Both are using acvwm and a sd friendly diet to see if they can
control their seborrheic dermatitis and perhaps their rosacea.

So, if you like to contribute to our group and are not a lurker ,
please join our group.

Babycleoharley wrote about "maddyc23" and themastersmiracle.com:

" I would be very wary of this company.  It looks like a classic pyramid
scheme.  They want you to buy their products, sell them to others, and then
convince other people to become sales reps.  The person who posted this is
clearly a sales rep - her name is on the website."
----------

Thanks a million for the quick warning, Debbie! People with rosacea spend so
much on trying to fix this condition, the last thing we need is to get
sucked into this kind of pyramid scam. Good catch!
Kind regards,

Aurelia

Hyaluronic acid is the active ingredient in Spenco 2nd Skin, which
was discussed here not too long ago, and which some rosaceans have
found to be a soothing moisturizer.

Debbie

--- In rosacea-support@yahoogroups.com, "Lonne" <martinec_lon@y...>
wrote:
> Agnes,
>
> From Paula's Choice dictionary:  hyaluronic acid. Component of skin
> tissue that is used in skin-care products as a good water-binding
> agent.
>
> Pantothenic acid is a B-complex vitamin.  If you take a
> multivitamin, you are taking pantothenic acid.
>
> Remember, not all acids are bad.
>
> Lonne
>
> --- In rosacea-support@yahoogroups.com, "walkinthepines"
> <pinewalk@h...> wrote:
> > Beth,
> >
> > I'd never profess to being an expert, but when I see acid listed
> as
> > an ingredient, I avoid it.
> >
> > Agnes
> >
> >
> > --- In rosacea-support@yahoogroups.com, "Beth Adams"
> <badams01@r...>
> > wrote:
> > > In my never-ending quest for a moisturizer that will not
> irritate
> > my skin, I found this "B-Complex" serum at dermstore.com.    Do
> any
> > of the ingredient experts out there have any comments/cautions
> about
> > the following:
> > >
> > >
> > >
> > > Active Ingredients
> > > Hyaluronic acid, pantothenic acid.
> > >
> > > Inactive Ingredients
> > > Water, Sodium Hyaluronate, Pantothenic Acid, Phenoxyethanol
> > >
> > > [Non-text portions of this message have been removed]

You are so right, ddinorita.  Crying would make her think I am unstable and
that is not accurate.

I made a list of the meds I've been on and the ever changing things happening
to my face.  Seems like there is a new treat everyday.

I ordered emu oil and cp serum, I'm hoping like hell that it helps.


[Non-text portions of this message have been removed]

Meant for the group:

> I am the person who posted this and I am not a sales rep, but I do
> understand the reluctance because I would probably think like that
> as well. The products were recommended to me by a doctor.  I did
> become a member, but only to purchase the products at a discount. I
> have been using this product for the past month and saw results
> quickly and I just want to help others who are suffering because I
> had become depressed because of rosacea.  YOU DO NOT HAVE TO DO THE
> PYRAMID THING.  It only costs $29.95 to become a member and the
> products are then sold to you at a discount ($16) for the entire
> year.  Therefore, that is the ONLY REASON why I became a member.
> I WANTED TO SHARE MY EXPERIENCE FROM THE USE OF THE PRODUCTS AND
> HOPE THAT I CAN HELP AT LEAST ONE PERSON.
>
> Once again, good luck
>
> Maddy

Kelly,
Where did you find that doctor?  I am getting shot down for accutane
everywhere I go NJ/NY.  I have really hard "whiteheads?" scattered about my face
and
they itch too.  What are your complaints-I may need to borrow them :(


[Non-text portions of this message have been removed]

Lanisa,

You can look up the Kinerase ingredients at drugstore.com.

--- In rosacea-support@yahoogroups.com, lanisa40@a... wrote:
> Would you list the ingrediensts on Kinerase for me??  I'm very
interested in
> trying this product since I suffer from super dry skin.  thanks so much.
>
> Lanisa
>
>
> [Non-text portions of this message have been removed]

I agree that not all acids are bad.  If it wasn't for salicylic acid which is a
non drying ingredient in some of the newer over the counter cleansers and night
time gels I would still be suffering from pustules and papules and yes, dry
patches too. As a matter of fact I understand Cutanix is now testing some new
products with salicylic acid.  There are good acids and bad ones.  Salicylic
acid works well for me but as all Rosaceans know what may be good for one may
not be for others.
Susan

Well...I went to a new derm- Dr. Amy B. Lewis...recommended from Alan
Shalita, who is supposed to be a world authority on rosacea etc...she "seems"
very
familiar with the specifics...she basically mentions v-beam....beta
blockers...accutane.....she's big on accutane...thinks the side effects are not
a
drawback....she did say she thought anti-biotics make little sense...that you
can't
stay on them long term, and as soon as you go off, the symptoms come back..That
is a First...for me, to have heard a derm say that...anyway, even though she
has impressive credentials..Yale..Cornell..blah blah...I can find almost
nothing on her on line...except a few quotes in glamour type magazines....a
little
confusing as usual...anyway...it seems people were interested in a doc in N.Y.
that wasn't afaid of accutane..so this could work...if anyone has heard of
her, or goes to see her, I'd love soom feed back....J.D.

Hi, i was wondering if anybody could help me. I suffer from quite bad
flushing, i have managed to control it in my face a bit by soaking it in a
saline solution but my ears are still very bad. I have been considering some
form of laser surgery for a while and was wondering if this could be done on
the ears as well?

Your help is much appreciated.

Regards
Chris



---------------------------------
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!

[Non-text portions of this message have been removed]

Hi i was wondering if anybody could help me. My rosacea has been getting
worse over the last 6 months and this summer i have noticed that i am very
sensitive to the sun. Is that part of the condition? I have always burnt
easily if not using sunscrean but this year it has been terrible, even 15
minuites in the sun has effected me badly.

I have 3 questions:

Can anybody in the UK recomend a decent Sunscreen to use and also a daily
moistuiser with an sp factor, maybe one for men.

Is there anyway that i can boost my skin protection by taking an oral
medication or by taking supplements?

I am considering some form of laser surgery, would this make me even more
sensitive to the sun?

Regards
Chris



---------------------------------
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!

[Non-text portions of this message have been removed]

Hi Chris,

I also have severe facial and ear flushing, with pain.  I've had my
ears treated with Photoderm by Dr. Patrick Bitter, Sr.  I think it
has helped a little, but not a whole lot.

If you find something that helps, please let us know!

Meg

--- In rosacea-support@yahoogroups.com, Chris Barber
<chrisb_arsenal@y...> wrote:
>
> Hi, i was wondering if anybody could help me. I suffer from quite
bad
> flushing, i have managed to control it in my face a bit by soaking
it in a
> saline solution but my ears are still very bad. I have been
considering some
> form of laser surgery for a while and was wondering if this could
be done on
> the ears as well?
>
> Your help is much appreciated.
>
> Regards
> Chris
>
>
>
> ---------------------------------
> Do you Yahoo!?
> SBC Yahoo! DSL - Now only $29.95 per month!
>
> [Non-text portions of this message have been removed]

J.D. I live in a part of NYC and have been looking for a dermatologist who
has experience with rosacea.Where in NY is she located  and would you mind
sharing her contact info?
                         Thanks in Advance,
                                    Liz


[Non-text portions of this message have been removed]

Bioastin is meant to be very good for added skin protection in teh
sun.




--- In rosacea-support@yahoogroups.com, Chris Barber
<chrisb_arsenal@y...> wrote:
> Hi i was wondering if anybody could help me. My rosacea has been
getting
> worse over the last 6 months and this summer i have noticed that i
am very
> sensitive to the sun. Is that part of the condition? I have always
burnt
> easily if not using sunscrean but this year it has been terrible,
even 15
> minuites in the sun has effected me badly.
>
> I have 3 questions:
>
> Can anybody in the UK recomend a decent Sunscreen to use and also a
daily
> moistuiser with an sp factor, maybe one for men.
>
> Is there anyway that i can boost my skin protection by taking an
oral
> medication or by taking supplements?
>
> I am considering some form of laser surgery, would this make me
even more
> sensitive to the sun?
>
> Regards
> Chris
>
>
>
> ---------------------------------
> Do you Yahoo!?
> SBC Yahoo! DSL - Now only $29.95 per month!
>
> [Non-text portions of this message have been removed]

Dear group members,
I have not been very present during the last weeks (looking for a new
job and on hollies), but I wanted to give you some information on my
post-laser results and some interesting trigger-outcome.
First, I had a laser job (Ruby laser) done on June 12th as a
correction, 2 years after full 12-course treatment. The result is
great. Most of the redness is gone :-) , the swelling had dissapeared
after 5 days. I got a shock before my hollies, as I had a massive
flare up with numerous papules and pustules on my forehead and
cheeks, redness included. I took my magic cream mixture
(Metrodinazole 2%, Erythromicine 2%, Neribase crème 30gr) to likely
control it, it already helped a lot but the biggest surprise was that
on my first morning of hollies… everything was gone, no single spot
in sight. It stayed like this during the whole 10-day vacation – did
not wear any makeup, no need – and on the first office day bang, a
few spots showed up. Same thing the days after. So much to my
personal triggers. The heat in the tent did not make problems but the
thought of going to work… Guess that my skin is the mirror of my
soul. It is really time to change companies. Something I found out
that may interest some other sufferers: from the poll (I got more
answers I will include and will issue it later) I learnt that many of
you also have little spots on their back. I have ordered the green
ointment from www.demodexsolutions.com in order to see if it could do
something against the itching on my face and I had the idea to try it
out on my back. When I sweat even only slightly, I have real
outbreaks of little red and white spots on my shoulders and in the
space between. I also had little hard spots made out of sebum. After
a few days of use (product applied in minimal quantities on a wet
skin after the evening shower) I noticed a total remission: the
product burns a little after application, but no redness can be seen
and it does not hurt. Now the skin is totally smooth and even after a
full-week stop of treatment nothing showed back up. Cannot believe
it. Will try it on my boyfriends back, he has problem will hair
follicles that inflammate. Thought that this might interest some of
you.
Thalie

Intriguing article from Dr. Mercola linking skin cancer not to
overexposure to sun but to incorrect nutrition.
Very controversial (IMHO) his advise to not use sunblock or sunscreen:

http://www.mercola.com/2003/jul/2/sunblock_cancer.htm

  --------

A whole site on food sensitivities: http://www.inside-story.com/What%
20is.html
  -----------

Hope this is useful

P.S. Happy holiday, American rosaceans!!

Hi everyone,

Here is something I read from a Magazine called 'Now' in the UK, I
know its a little long but have a read and see what you think.

It would be nice if Dr Nase could post his comments.

American researchers have found a compound in green tea that
literally revives dying skin cells.

This could lead to some new hi tech treatments for wrinkles and
serious skin wounds, as well as chronic conditions such as psoriasis
and rosacea.

Its already well known that green tea contains potent antioxidants
called polyphenols.  These mop up and deactivate the damaging free
radicals that our bodies produce as part of normal metabolism as well
as in response to pollution, UV light and other toxins.

But scientists at the Medical College of Georgia went one step
further when they discovered that, if a particular polyphenol
compound in green tea called EGCG was extracted and mixed with skin
cells in a laboratory setting, it gave the cells a whole new lease of
life.

According to chief scientist Dr Stephen Hsu: 'Cells that migrate
toward the surface of the skin normally live for about 28 days and by
day 20 they basically sit on the upper layer of the skin and get
ready to die.  But EGCG reactivates them.

What happens when EGCG is applied directly to the skins surface, as
opposed to cells in a laboratory, still needs to be studied.  And its
not clear if drinking green tea has any effect, but no doubt it won't
be long before the extract is added to skin creams and other topical
skincare preparations.

Take care everyone
An

Rosacea skin is sensitive to the sun.  If you are taking antibiotics,
certain antibiotics can make you more sensitive to the sun.  If you are
having laser treatments, it is important to stay out of the sun (or protect
yourself) 6 weeks prior and 6 weeks after treatment (my laser doctor's
rules).

Also, see my next post on dark vs. light colored fabrics and heat
absorption.

The summer 2002 issue of "Lupus News" had several VERY good articles on skin
and sun.
( Lupus Websites -  http://www.lfaga.org/ or www.lupus.org))

Below is some of the information from the articles.
------------------
In general, UVA ages the skin and UVB burns the skin (i.e. "A ages, B
burns").

The sun protection factor (SPF) is a number that is calculated by dividing
the light sensitivity without sunscreen by light sensitivity with sunscreen.
The higher the SPF; the more protective the blocking agent is.  However
there is no similar method of labeling sunscreens for their protection
against UVA.  The use of broad spectrum sunscreens (covering both UVA and
UVB) should therefore be used.

Because car windows and clouds only protect against UVB, not UVA, sun
protection should not be limited just to sunny days.

Sources of UV light other than sunlight can also cause skin problems in
lupus. Photosensitivity in lupus has been reported with florescent tube
lights, which may emit UVB, and photocopiers, which emit mainly UVA.
Fluorescent tubes may be fitted with acrylic shields, which eliminate UVB
emission.

The long-wavelength ultraviolet A, or UVA is 1,000 times less effective in
causing sunburn than UVB, but it is more plentiful and penetrates more
deeply into the skin.  UVA also speeds skin aging by damaging collagen, the
fibrous protein found in skin and other tissues.

If skin reddens in 10 minutes without sunscreen, it will redden in 150
minutes when protected by an SPF-15 sunscreen and in 300 minutes with an
SPF-30 sunscreen.

A very high SPF number gives people a false sense of security: they don't
burn, so there is nothing warning them to get out of the sun.

As the SPF number gets higher, the differences in protection get smaller and
smaller.  So, for example;e, the difference in the amount of sunlight kept
off the skin between and SPF-30 and an SPF-50 sunscreen is just 1.3 percent.

Keep in mind that SPF is based on the use of a set amount of sunscreen - 2
milligrams per square centimeter of skin.  That works out to a bit more
that an ounce for a 5 ft 8 In person per application.  Most people use half
to a quarter of that amount, however, and at those levels an SPF-15
sunscreen has an SPF of just 3 to 7.  Consider this: to get the full SPF
value out of sunscreen, a family of four should be using an entire 4-ounce
bottle during a day at the beach - even more if they are spending a lot of
time in the water.

The upshot of this research is that when you shop for a broad-spectrum
sunscreen, it is probably best to look for one that contains zinc oxide,
titanium dioxide, or avobenzone.  But even these 3 ingredients have
drawbacks.Some researches suggest that avobenzone might degrade with exposed
to UVA, the very thing it is supposed to protect against.  Zinc oxide and
titanium dioxide are white and can make sunscreen milky.  Zinc oxide was
found, in one recent study, to be less visible and more protective than
titanium dioxide.

To qualify as "water resistant", a sunscreen must retain its SPF rating
after 40 minutes in the water.  The standard for a "waterproof" label is 80
minutes.

Enough people react to an ingredient called PABA to create a significant
market for PABA-free formulas.  People with rosacea might want to steer
clear
of padimate-o because it is irritating.  Zinc oxide and titanium dioxide are
not absorbed by the skin and are rarely irritating.
----------

Mary



----- Original Message -----
From: "Chris Barber" <chrisb_arsenal@...>
To: <rosacea-support@yahoogroups.com>
Sent: Thursday, July 03, 2003 1:54 PM
Subject: [rosacea] [rosacea) Sun exposure and lasers


> Hi i was wondering if anybody could help me. My rosacea has been getting
> worse over the last 6 months and this summer i have noticed that i am very
> sensitive to the sun. Is that part of the condition? I have always burnt
> easily if not using sunscrean but this year it has been terrible, even 15
> minuites in the sun has effected me badly.
>
> I have 3 questions:
>
> Can anybody in the UK recomend a decent Sunscreen to use and also a daily
> moistuiser with an sp factor, maybe one for men.
>
> Is there anyway that i can boost my skin protection by taking an oral
> medication or by taking supplements?
>
> I am considering some form of laser surgery, would this make me even more
> sensitive to the sun?
>
> Regards
> Chris
>
>
>
> ---------------------------------
> Do you Yahoo!?
> SBC Yahoo! DSL - Now only $29.95 per month!
>
> [Non-text portions of this message have been removed]
>
>
>
> --
> Please read the list highlights before posting to the whole group
(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't
give a meaningful subject or trim your reply text. You must change the
subject when replying to a digest !
>
> See http://www.drnase.com for info on his recently published book.
>
> To leave the list send an email to
rosacea-support-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>

This month's Lupus News, Summer 03, Vol 23 - No.2 has an excellent article
on "  Sun-smart Strategies for Lupus" by Marta Phillips, which is also good
for those of us with rosacea.
(2 Lupus Websites are -  http://www.lfaga.org/ or www.lupus.org ).

*    A section on "Dark Vs. Light Fabric" was informative to me.  Basically
it states that people tend to "think that dark-colored fabrics absorb the
sun's heat the same as, say, dark-colored cars, think again!  It's true that
dark colors can absorb more heat; with some fabric you can feel the
difference in temperature, while with other fabrics there is not a
noticeable difference.  Light-colored fabrics, however usually let more UV
radiation through, which is what really matters for sun-sensitive people.
On a hard surface, the light would reflect more light than black.  But that
is not the case for fabric."   "Light colored fabric let more UV rays
through then a darker-colored fabric."  The thicker, the darker, the tighter
the weave the better"

*    "The type of fabric also makes a difference.  "COTTON is the LEAST
sun-protective".  "The average T-shirt blocks only 50 percent of the
ultraviolet light" when dry and even lower when wet.  LYCRA and POLYESTERr
fabrics have the MOST BLOCKING ability followed by nylon.

*    Also, throw out the old sunscreen.  The chemical composition may have
changed it with age and it will no longer perform as stated on the bottle.
The articlE suggests you mark the date on the bottle when you buy it.
Sorry, there is nothing in the article telling how long the bottle may be
good. Some bottles may have expiration dates marked on them.

*    "Store sun screen properly - the heat may change the chemical
composition.  Don't store it in the car or other places where the
temperature may get high."

*    Hats - "A 4-inch brim  more is recommended for hats.  A downward
slanting brim will protect the face and neck as the sun approaches either
horizon."

*    "Cloudy, overcast days let as much as 80% of the sun's harful rays
through."

*    "Sand, cement, water, and snow can reflect as much as 80% of the sun'ts
original light."

*     "Medications can add to your sun sensitivity or make you sun-sensitive
when you were not in the past."

*    "Look for sun-screen that is hypoallergenic, has a broad spectrum
protection (both UVA and UVB) [a UPF rating measures both the UVA and the
UVB] , and has an SPF of 30 or greater."

*    "Reapply sunscreen evry 2-3 hours"

*    "Window glass blocks UVB but not UVBA radiation, so take extra care
when viewing summer scenery for indoors or riding in a car."

(For info on sunscreen see an e-mail I just posted,which was a reply to "Sun
Exposure and Lasers)

Mary

Here are two website that may be of interest to some of you.

The first one is quite good - it states information on the different lab blood
tests given for autoimmune diseases and what they mean.  The tests are listed
alphabetically.

http://www.arthritiscentral.com/html/testslab.htm

This one gives some info on the different autoimmune diseases:

http://www.drwilson.netfirms.com/Resouces.htm

Mary

[Non-text portions of this message have been removed]

i live in new york and went to see pratima raichur at tej (also called
pratima's). she is an ayurvedic doctor and skin specialist. she wrote a book
called absolute beauty. she gave me a very specific diet for my type, or dosha.
anyway, i notice it's helped a lot and as a result of cutting back foods i've
also discovered a wheat allergy (i eat wheat and my face itches and then breaks
out!). i have also discovered that i am allergic to my cat. as i am mindful of
the foods and cleanse with just milk, it has been so much better. yesterday i
cheated and ate a bunch of foods not on the diet and boom! but it's temporary at
least.

anyway, if you go see pratima please mention my name: Vered Hankin.

good luck! vered
rosacea-support@yahoogroups.com wrote:
--
Please read the list highlights before posting to the whole group
(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a
meaningful subject or trim your reply text. You must change the subject when
replying to a digest !

See http://www.drnase.com for info on his recently published book.

To leave the list send an email to rosacea-support-unsubscribe@yahoogroups.com
------------------------------------------------------------------------

There are 7 messages in this issue.

Topics in this digest:

1. Re: Is this a good moisturizer? ie acids
From:
2. Derm in N.Y. laser-accutane
From: jonny3d3@...
3. Laser Surgery for Ears?
From: Chris Barber
4. [rosacea) Sun exposure and lasers
From: Chris Barber
5. Re: Laser Surgery for Ears?
From: "meg_ed"
6. re: Derm in N.Y. laser-accutane
From: liz731@...
7. Re: [rosacea) Sun exposure and lasers
From: "madamzara"



________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Thu, 3 Jul 2003 9:45:31 -0400
From:
Subject: Re: Is this a good moisturizer? ie acids

I agree that not all acids are bad. If it wasn't for salicylic acid which is a
non drying ingredient in some of the newer over the counter cleansers and night
time gels I would still be suffering from pustules and papules and yes, dry
patches too. As a matter of fact I understand Cutanix is now testing some new
products with salicylic acid. There are good acids and bad ones. Salicylic acid
works well for me but as all Rosaceans know what may be good for one may not be
for others.
Susan





________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Thu, 3 Jul 2003 11:25:59 EDT
From: jonny3d3@...
Subject: Derm in N.Y. laser-accutane

Well...I went to a new derm- Dr. Amy B. Lewis...recommended from Alan
Shalita, who is supposed to be a world authority on rosacea etc...she "seems"
very
familiar with the specifics...she basically mentions v-beam....beta
blockers...accutane.....she's big on accutane...thinks the side effects are not
a
drawback....she did say she thought anti-biotics make little sense...that you
can't
stay on them long term, and as soon as you go off, the symptoms come back..That
is a First...for me, to have heard a derm say that...anyway, even though she
has impressive credentials..Yale..Cornell..blah blah...I can find almost
nothing on her on line...except a few quotes in glamour type magazines....a
little
confusing as usual...anyway...it seems people were interested in a doc in N.Y.
that wasn't afaid of accutane..so this could work...if anyone has heard of
her, or goes to see her, I'd love soom feed back....J.D.



________________________________________________________________________
________________________________________________________________________

Message: 3
Date: Thu, 3 Jul 2003 10:42:42 -0700 (PDT)
From: Chris Barber
Subject: Laser Surgery for Ears?


Hi, i was wondering if anybody could help me. I suffer from quite bad
flushing, i have managed to control it in my face a bit by soaking it in a
saline solution but my ears are still very bad. I have been considering some
form of laser surgery for a while and was wondering if this could be done on
the ears as well?

Your help is much appreciated.

Regards
Chris



---------------------------------
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!

[Non-text portions of this message have been removed]




________________________________________________________________________
________________________________________________________________________

Message: 4
Date: Thu, 3 Jul 2003 10:54:28 -0700 (PDT)
From: Chris Barber
Subject: [rosacea) Sun exposure and lasers

Hi i was wondering if anybody could help me. My rosacea has been getting
worse over the last 6 months and this summer i have noticed that i am very
sensitive to the sun. Is that part of the condition? I have always burnt
easily if not using sunscrean but this year it has been terrible, even 15
minuites in the sun has effected me badly.

I have 3 questions:

Can anybody in the UK recomend a decent Sunscreen to use and also a daily
moistuiser with an sp factor, maybe one for men.

Is there anyway that i can boost my skin protection by taking an oral
medication or by taking supplements?

I am considering some form of laser surgery, would this make me even more
sensitive to the sun?

Regards
Chris



---------------------------------
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!

[Non-text portions of this message have been removed]




________________________________________________________________________
________________________________________________________________________

Message: 5
Date: Fri, 04 Jul 2003 04:13:48 -0000
From: "meg_ed"
Subject: Re: Laser Surgery for Ears?

Hi Chris,

I also have severe facial and ear flushing, with pain. I've had my
ears treated with Photoderm by Dr. Patrick Bitter, Sr. I think it
has helped a little, but not a whole lot.

If you find something that helps, please let us know!

Meg

--- In rosacea-support@yahoogroups.com, Chris Barber
wrote:
>
> Hi, i was wondering if anybody could help me. I suffer from quite
bad
> flushing, i have managed to control it in my face a bit by soaking
it in a
> saline solution but my ears are still very bad. I have been
considering some
> form of laser surgery for a while and was wondering if this could
be done on
> the ears as well?
>
> Your help is much appreciated.
>
> Regards
> Chris
>
>
>
> ---------------------------------
> Do you Yahoo!?
> SBC Yahoo! DSL - Now only $29.95 per month!
>
> [Non-text portions of this message have been removed]




________________________________________________________________________
________________________________________________________________________

Message: 6
Date: Fri, 4 Jul 2003 00:15:56 EDT
From: liz731@...
Subject: re: Derm in N.Y. laser-accutane

J.D. I live in a part of NYC and have been looking for a dermatologist who
has experience with rosacea.Where in NY is she located and would you mind
sharing her contact info?
Thanks in Advance,
Liz


[Non-text portions of this message have been removed]




________________________________________________________________________
________________________________________________________________________

Message: 7
Date: Fri, 04 Jul 2003 05:39:09 -0000
From: "madamzara"

Subject: Re: [rosacea) Sun exposure and lasers

Bioastin is meant to be very good for added skin protection in teh
sun.




--- In rosacea-support@yahoogroups.com, Chris Barber
wrote:
> Hi i was wondering if anybody could help me. My rosacea has been
getting
> worse over the last 6 months and this summer i have noticed that i
am very
> sensitive to the sun. Is that part of the condition? I have always
burnt
> easily if not using sunscrean but this year it has been terrible,
even 15
> minuites in the sun has effected me badly.
>
> I have 3 questions:
>
> Can anybody in the UK recomend a decent Sunscreen to use and also a
daily
> moistuiser with an sp factor, maybe one for men.
>
> Is there anyway that i can boost my skin protection by taking an
oral
> medication or by taking supplements?
>
> I am considering some form of laser surgery, would this make me
even more
> sensitive to the sun?
>
> Regards
> Chris
>
>
>
> ---------------------------------
> Do you Yahoo!?
> SBC Yahoo! DSL - Now only $29.95 per month!
>
> [Non-text portions of this message have been removed]




________________________________________________________________________
________________________________________________________________________



Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/




---------------------------------
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!

[Non-text portions of this message have been removed]

What is the difference between Photoderm and PhotoFacial?  Thanks.

----- Original Message -----
From: "meg_ed" <meg.edelson@...>
To: <rosacea-support@yahoogroups.com>
Sent: Friday, July 04, 2003 12:13 AM
Subject: Re: [rosacea] Laser Surgery for Ears?


> Hi Chris,
>
> I also have severe facial and ear flushing, with pain.  I've had my
> ears treated with Photoderm by Dr. Patrick Bitter, Sr.  I think it
> has helped a little, but not a whole lot.
>
> If you find something that helps, please let us know!
>
> Meg
>
> --- In rosacea-support@yahoogroups.com, Chris Barber
> <chrisb_arsenal@y...> wrote:
> >
> > Hi, i was wondering if anybody could help me. I suffer from quite
> bad
> > flushing, i have managed to control it in my face a bit by soaking
> it in a
> > saline solution but my ears are still very bad. I have been
> considering some
> > form of laser surgery for a while and was wondering if this could
> be done on
> > the ears as well?
> >
> > Your help is much appreciated.
> >
> > Regards
> > Chris
> >
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> > SBC Yahoo! DSL - Now only $29.95 per month!
> >
> > [Non-text portions of this message have been removed]
>
>
>
> --
> Please read the list highlights before posting to the whole group
(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't
give a meaningful subject or trim your reply text. You must change the
subject when replying to a digest !
>
> See http://www.drnase.com for info on his recently published book.
>
> To leave the list send an email to
rosacea-support-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

Happy 4th,  From reading prior posts it's clear there are those dealing
with health issues other then Rosacea  ..  Also many have been trying to
correlate health issues with Rosacea..   So i figure there is a wealth
of knowledge  that my be of help to me with in the group..   I have
never slept more then 7 to 8 hours straight in my life,  which adds up
to 55 years,  ouch.   For some time i have been sleeping 10 hours & at
times 12..   Other then telling me to see a doc. , which i will Monday;
any thoughts ?  I do not mind direct e-mail..  Thanks  Pete

Does anyone think this new treatment http://www.isolagen.com might
help Rosacea?  One's own collagen is injected back into the skin.
It's really used for wrinkles.  I was just wondering if this could
help Rosacea.

An,

A couple of months ago, Dr. Nase posted a response to another article about
this, and recommended a product called "Replenix" which contains a high
concentration of Green Tea Isolates.  I have been using it for about six
weeks.  I have noticed an improvement in my skin tone, etc.  However the
mitigating circumstances in my case are that my Rosacea itself has not
improved (I am currently underoing IPL touchup treatments) and I suffer from
the fact that I am not able to tolerate a real moisturizer.  This serum is
great but not a sufficient moisturizer for dry skin.

Beth
----- Original Message -----
From: "anthily2003" <an.ly@...>
To: <rosacea-support@yahoogroups.com>
Sent: Friday, July 04, 2003 8:39 AM
Subject: [rosacea] rosacea-support.yahoogroups.com


> Hi everyone,
>
> Here is something I read from a Magazine called 'Now' in the UK, I
> know its a little long but have a read and see what you think.
>
> It would be nice if Dr Nase could post his comments.
>
> American researchers have found a compound in green tea that
> literally revives dying skin cells.
>
> This could lead to some new hi tech treatments for wrinkles and
> serious skin wounds, as well as chronic conditions such as psoriasis
> and rosacea.
>
> Its already well known that green tea contains potent antioxidants
> called polyphenols.  These mop up and deactivate the damaging free
> radicals that our bodies produce as part of normal metabolism as well
> as in response to pollution, UV light and other toxins.
>
> But scientists at the Medical College of Georgia went one step
> further when they discovered that, if a particular polyphenol
> compound in green tea called EGCG was extracted and mixed with skin
> cells in a laboratory setting, it gave the cells a whole new lease of
> life.
>
> According to chief scientist Dr Stephen Hsu: 'Cells that migrate
> toward the surface of the skin normally live for about 28 days and by
> day 20 they basically sit on the upper layer of the skin and get
> ready to die.  But EGCG reactivates them.
>
> What happens when EGCG is applied directly to the skins surface, as
> opposed to cells in a laboratory, still needs to be studied.  And its
> not clear if drinking green tea has any effect, but no doubt it won't
> be long before the extract is added to skin creams and other topical
> skincare preparations.
>
> Take care everyone
> An
>
>
>
> --
> Please read the list highlights before posting to the whole group
(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't
give a meaningful subject or trim your reply text. You must change the
subject when replying to a digest !
>
> See http://www.drnase.com for info on his recently published book.
>
> To leave the list send an email to
rosacea-support-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>