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Date: Fri, 1 Jun 2007 12:53:13 -0400
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From: "Lisa Tucker" <d56alpine@...>
Subject: Ocular Rosacea-Very Long
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X-eGroups-Approved-By: dpatiidotnet <dp@...> via web; 02 Jun 2007 01:01:35 -0000

Unfortunately, there are not a lot of treatments available for ocular
rosacea. I apologize if I'm repeating information, but I will try to
explain simply, but in great detail about ocular rosacea as I'm not sure if
patients understand what it IS and IS NOT. Jenn, feel free to correct me as
I am not working at this stage in my life (stay-at-home mom) and may be
rusty and can't run this by a doctor.

Ocular rosacea is not a disease in the way that most people think of
diseases. It is a group of symptoms that come about because we already have
rosacea (although some people show no symptoms of it). Because we have
rosacea, we have flaking skin and changes in our skin's oil production.
When these skin changes take place near the eyes, we have skin debris that
often makes it's way into our eyes. Like any other debris we might get into
our eyes, it's irritating and causes redness and possibly damage to the
surface of our eyes, the clear corneas. Our tears are made up basically, of
salt water and oils from glands located on the rims of our eyelids. When
oil production is altered, it can also affect the way our eyes feel and
see-we must have tears to see correctly. They make a smooth glassy surface
to our eyes. Just like you want your windows smooth and clean, you need
your corneas smooth and clean. Debris can really wear away our corneas, and
make it look as if we are looking out through bumpy glass. When that
surface is damaged and bumpy, it causes light sensitivity. Never rub your
eyes, you are grinding the debris into your corneas. It's important to wash
your eyes daily with baby shampoo and rinse well I usually just let the
tepid shower water droplets wash away debris for a few minutes daily, with
or without shampoo.

When our oil glands get clogged or infected, it causes styes, pimples or
whatever you want to call them. The reason that we need to use warm water
compresses are to unclog that greasy drain and "melt" the oils. The
compresses don't need to be superhot, but as hot as you can use without
irritation to your skin. You can look up treatments for styes on the
internet, but whatever you do-have clean hands and clean compresses. I
personally, scrub my fingernails and scrape the pimple if I can to make it
drain, and then rinse my eyes. If a stye persists for awhile, the lashes
will fall out in that area, I assume because it's follicle is damaged from
the infections. I know it seems silly, but if a stye persists, please see
an ophthalmologist to get treatment. Health insurance should cover it based
on ocular rosacea diagnosis as a medical condition, not "vision" coverage
insurance that covers eyeglasses.

When tear production is too little or the balance of water/oil in our tears
is out of whack, we must use artificial tears to lubricate and keep that
corneal surface smooth and glassy. Never use any products that "get the red
out" even if your eyes are blazing red bloodshot. They work by squeezing
the blood out of the blood vessels which gets the red out. Unfortunately,
your eyes are red because they are trying to send oxygen and much needed
help to the eyes to heal themselves. So the goal is not to get the red out.
The goal is to help heal the eyes so that the redness goes away naturally.
Get some artificial tears that are not medicated and use them several times
a day.

Hopefully, this will help everyone to understand that ocular rosacea causes
SYMPTOMS which need to be treated. They are treated in much the same way as
those symptoms when they are not as a result of ocular rosacea. So if you
are trouble by dry eye-look for treatments for dry eye. If you are troubled
with styes-look for stye treatment. If you are having light sensitivity,
see an ophthalmologist (not an optometrist-they only deal with correcting
vision, you need a medical doctor to treat eye conditions). If the
ophthalmologist is out of ideas, request to see a corneal specialist. These
symptoms are all medical conditions and will be handled by medical
insurance. It has nothing at all to do with whatever coverage you have for
vision care. You may need to see your primary physician to begin treatment
for these symptoms and then get a referral to see an ophthalmologist and
then,if necessary, to see a corneal specialist.

FYI- there are currently studies going on to treat Rosacea and Ocular
Rosacea and hopefully this link will take you to see if you're interested:
http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D012393
<http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D012393&recruiting
=true> &recruiting=true If not, google clinical trials rosacea and you will
find it.

Lisa


[Non-text portions of this message have been removed]



Fri Jun 1, 2007 4:53 pm

d56alpine
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Message #95427 of 105140 |
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Unfortunately, there are not a lot of treatments available for ocular rosacea. I apologize if I'm repeating information, but I will try to explain simply, but...
Lisa Tucker
d56alpine
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Jun 2, 2007
1:02 am

Thanks Lisa for that overview. I'd like to add just a few more pieces of info if that's OK. A stye is caused by bacteria from the skin that get into the hair...
melissa wohl-battista
melissawohlb...
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Jun 2, 2007
2:50 am

Hi Lisa, Very many thanks for so generously taking the time to set down all of that advice about ocular rosacea. For newbies in particular, it is a wonderful...
Aurelia
aurelia_aurora
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Jun 2, 2007
9:41 am

Yes! Yes! thank you to both of you! Not only newbies learned from it , or at least confirmed what I had thought in a couple of instances. Thanks gals:) Be...
Aimee
wwwdotchat
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Jun 3, 2007
4:52 am

I apologize, I haven't had time to read over the old posts, or Lisa's most recent post, but I felt it was quite important to respond to the comment about...
JennFromMaryland@...
sunkissedbaby00
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Jun 4, 2007
2:48 pm

Hi Jenn, Optometrists are trained (at least here) in the treatment of eye diseases. I am an optometrist and have been in the field for over 15 years. After 4...
melissa wohl-battista
melissawohlb...
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Jun 4, 2007
10:43 pm

Thanks for this post Melissa. I too, appreciate Jenns previous post but my experience with my optometrist is completely different but I did not want to email...
Elena Mutter
emgm42000
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Jun 5, 2007
12:41 am

Thanks Elena! I'm so glad you have a great optometrist!! All the best, Melissa Elena Mutter <emgm42000@...> wrote: Thanks for this post Melissa. I too,...
melissa wohl-battista
melissawohlb...
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Jun 5, 2007
3:18 am

Ladies, Very many thanks for conducting your debate so politely. It isn't easy to differ, and to differ strongly, over subjects we feel passionately about, so ...
Aurelia
aurelia_aurora
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Jun 4, 2007
11:02 pm

I have been reading all of these messages and want to say THANKS as a contact lens wearer and rosacea sufferer. I didn't consider my problems to be that bad...
heidid4660@...
heididunc
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Jun 5, 2007
12:39 am

Lisa, Thanks for taking the time to write that informative posting about ocular rosacea. That was a good read. Thanks, Ken ... ocular ... to ... sure if ... ...
agent568
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Jun 2, 2007
11:57 pm

How do I find someone that treats Ocular rosacea in my community? I asked my eye doctor and he said that no one really treats Ocular rosacia but did refer me...
jvonklemen
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Jul 11, 2007
4:30 am

Im looking into several ingredients that are supposed to be helpful (to some people at least) with rosacea: -jojoba -green tea -aloe -feverfew -licorice maybe...
Susan Backes
adoptchinababy
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Jul 11, 2007
5:59 am

Hi Lisa, Thanks for the information -- very comprehensive. I didn't know there were corneal specialists. I am worried about my corneas (both eyes) -- have been...
Auni Collis
aunicollis
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Jul 11, 2007
5:58 am

In what part of Canada do you live? Most universities have corneal specialists, for sure. Where I live, DC metro area, it's not difficult to find a corneal...
Lisa tucker
d56alpine
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Jul 11, 2007
10:09 pm

I too am plagued by occular rosacea. I also have sinusitus and allergies, which when they get bad are treated with steroid drops. THat starts a terrible...
Brenda Wishin
blwishin
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Jul 12, 2007
1:00 am

Hi, I feel for you. I know how awful it is to have people constantly wondering/looking because of our red face, red eyes. Not fun. Everything you're doing is...
melissa wohl-battista
melissawohlb...
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Jul 12, 2007
1:47 am

just to be clear, Melissa is saying that cold compresses and drops might help make the red blood vessels constrict, or, "get skinny". this makes the redness...
Lisa tucker
d56alpine
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Jul 12, 2007
12:39 pm

Thanks Melissa I never thought of cold - guess I was worrying about the oils clogging. It IS relieving. I also think it is the only vascular constrictor that...
Brenda Wishin
blwishin
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Jul 12, 2007
7:37 pm
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