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Reply | Forward Message #95243 of 105085 |
From auni.collis@... Wed May 23 07:05:21 2007
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Date: Wed, 23 May 2007 06:59:18 -0700
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From: "Auni Collis" <auni.collis@...>
Subject: Re: [rosacea] Accurate Diagnosis
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X-eGroups-Approved-By: aurelia_aurora <aurelia.dawn@...> via web; 23 May 2007 14:04:35 -0000

Hi Bob,


Your email came with good timing for me.

I too have had 2 specialists diagnose rosacea -- 1 opthamologist, 1
dermatologist.

But -- 2 cycles of antibiotics later --> no improvement.

I actually have all the symptoms of pellagra. A vitamin B3 deficiency
caused by malabsorption (my case, maybe celiac), and other factors (a poor
"student" diet, some vegetarianism, etc.)

I am doing a trial of high dose Vitamin B3 therapy .... and -- so far -- a
LOT of my pellagra symptoms have GONE AWAY:

- insomnia, burning tongue, depression, headaches, sweating, confusion &
agitation all GONE (!) within 3 weeks of taking niacin.


AND ... I had also been getting rashes on the backs of my hands -- which
proves to me it's NOT rosacea.

Even my dermatologist -- the DIRECTOR of medicine at a large university --
wrote in his FIRST CONSULT with me: "erythema (redness) rash on the dorsal
aspect of her hands".

He just THREW that ONE piece of info away, when I tested NEGATIVE FOR LUPUS
and PORPHYRIA -- and it did not "FIT" with anything he could think of.

I will be seeing a new Dermatologist in 2 weeks to hopefully confirm the
pellagra, and oversee my treatment. That means I'd be CURED!

But, that ALSO means -- that all the damage to my eyes (yikes!!), face, and
internal organs -- was preventable.


In short -- some dermatologists are pretty arrogant, and a rash on the face
-- they are quick to diagnose rosacea.


Good you finally sorted yours out. Glad to hear it's getting better and
phew -- NOT systemic.


Take care,
Andrea
Victoria, BC Canada


[Non-text portions of this message have been removed]
Wed May 23, 2007 1:59 pm

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aunicollis
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Forward 		Message #95243 of 105085 |
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Greetins all, Just a quick post and one similar to something that was posted a few years ago. If your Rosacea does not seem to improve or seems a little out... 		Robert
bobsf34
Offline Send Email 		May 23, 2007
1:37 pm

Thanks for replying. What finally made them decide to a biopsy? If you dont mind my asking....
jvonklemen
Offline Send Email 		May 23, 2007
2:04 pm

Hi Bob, Your email came with good timing for me. I too have had 2 specialists diagnose rosacea -- 1 opthamologist, 1 dermatologist. But -- 2 cycles of...
Auni Collis
aunicollis
Offline Send Email 		May 23, 2007
2:05 pm
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