[rosacea] Re: First Grant Application Sent out by RRF to Dermatologic Pharmaceutical
Hey Chris,
Having had a failed ETS surgery a year ago, (even though I was told
I was the perfect candidate)it has belatedly made me realise that it
is a comomon occurrance amongst those that have had ETS.
So many rosaceans have been left with more problems post surgery
than before ETS.
If you have no quality of life, and only you can judge that, I
recommend you think long and hard about a procedure which is touted
as a 'cure' but has harmed or had little effect on so many.
Exhaust every single option and bear in mind that if you have the
surgery, be prepared for the disappointment if it doesn't work and
which could potentially make your life even more of a misery than it
is now. ETS is not a cure for rosacea.
Below is a post from Dr Nase regarding this topic and his views.
Mermaid
Hello,
I rarely ever answer ETS questions because it should be rarely
considered and I think it is now over-commercialized (and I am
disturbed at the physicians now stating that ETS is for the
treatment of rosacea). Anyway, let me try to answer your questions:
1. Beta blockers rarely ever block blushing more than 50% to 75%,
so most still blush, but it is less intense and the redness
diminishes more quickly.
2. Blushing is first and foremost a physiological difference
(physical makeup of your body). Your nerves or neurotransmitters
are wired a little bit differently -- increasing the propensity to
blush. However, blushing is then reinforced subconsciously by your
own brain. This is why blushers may become progressively more
sensitive.
3. Some have had success with low dose Corgard combined with low
dose clonidine. Your doctor just needs to make sure your blood
pressure does not drop below normal limits.
4. If you understand that you are more prone to blush based on your
genetics, but that you do have some control over reinforcing this
process then you may be able to break the daily/hourly blush cycle
and level off at an acceptable level of blushing. Please dont
consider ETS until every single avenue has been exhausted......twice.
Regards,
Geoffrey
______________________________
Dr. Geoffrey Nase
Ph.D. Neurovascular Physiologist
http://www.drnase.com
______________________________
--- In
rosacea-support@yahoogroups.com, Christopher "Künstler"
<diger_diga@y...> wrote:
>
> i think this is a very important point as i know my blushing in
any situation is going to kill me sooner or less... im thinking of
ETS
> i know this has been discussed before but what would be helpful
against this
> psychological therapy is not helpful because i can NOT engage in
it because the thought that every flush or blush is going to make my
condition worse will not go away unfortunately...
> Help
>
>