I agree completely, I honestly can say i have had around 35
treatments with different lasers and I am actually worse off than i
have ever been with this rosacea. I ruined my skin with the laser
genesis. I believe everyone has different causes to their rosacea.
Some people can have hyperthyroid as the cause, and some people can
have lowered immunity as the cause, some people can have a hormonal
imbalance, and etc etc etc. All I can say is without treating your
particular cause you will be wasting lots of money. Think twice
before doing all these laser treatments as I know my face is
completely destroyed from the laser genesis. I know my face very well
and these changes that took place are devastating. Please think twice
about these so called safe treatments. I agree with you lilly. How
did you get your face looking great? I could really use some help as
my collagen and elasticity has been ruined. Any suggestions??????
Those so called safe antibiotics cause more harm than good in the
long run. I know I was on them for years and destoyed my stomach and
caused many other problems.Your immune system is completely
destroyed. Anyways i can ramble on forever but the important thing is
getting a somewhat normal face
back.


--- In rosacea-support@yahoogroups.com, Lilly Samur
<lilllsam@...> wrote:
>
> And I have too slightly disagree with Artist - because it sound
like typical look to Rosacea from "official" perspective - there is
not treatment, suppress it with Tetracycline so you can show your
face out. Burn your skin with topical stuff and IPL, so skin is gone
together with Rosacea... Exactly was I was doing for many years.
But all I try to say - I have different experience and when it works -
you know immediatelly. I'm Rosacea Free (here is my photo in
attachment - last month and another one in 2006 with Rosacea and tons
of makeup which couldn't cover it) and I also helped my sister and
couple friends to find way out. - just by sharing years of my
knowledge ans research and trying on my self (Thats what we all doing
here - right?)
> I had worst Rosacea case EVER - with not only redness but bumps all
around, ocular Rosacea, swelling, hit and burning etc.  which was not
possible to cover with any makeup. 
> My skin was absolute mess - all red and bumpy, peeling from all
topical stuff, my eyelashes was faling fron ocular Rosacea, face was
red and swelling all the time, I couldn't look at mirror - if I meet
friend they was asking whats going on with my face. I remember even
comming to work and my boss ask me what is wrong and if I'm ok - I
felt dipressed, hopeless and sick of spending money on all kind of
new creams etc - that claim to be Rosacea Treatment.
> Official medicine say there is no treatment - because they don't
know how to treat it. So it's logical to try something different that
doctors able to offer.
> IPL is temporary solution as well because it's doesn't treat the
cause which is somewhere inside the body - not on top layer of your
skin thats for sure. I have a friend, she is plastic surgeon and when
I wanted to do IPL etc she basically told me to do not waste my money
because its will be back anyway and will come even stronger ... If
anybody knows somebody who got treated with IPL and now Rosacea free -
I would like to hear that story.
> Yes, most antibiotics anti-inflammatory - but taking for long time
coming with price of destroying your natural immunity and get stuck
in that circle. Bad immunity - bad skin, bad skin - more antibiotics.
> I didn't say BTW - don't take oral antibiotics - all I said - try
something different and short time effective treatment - don't let
your self get depended on antibiotics and go for years with hope it
will work one day if not today. The antibiotics I mentioned in
this discussion before - I took for 2 weeks only. Then all another
supplements I mentioned previously - since then - NO SINGLE
ANTIBIOTIC was taking or applied topically on my skin.
> And it's didn't take me 2 months to see results (2 month of
treatment - then see result? sound like no result, if medicine you
are taking doesn't effect whatever cause Rosacea on  week1 why would
it start to effect it after 2 months?). I started to feel difference
on day 4 with antibiotics I was taking (so I could tell - it
was working) and of course I was using topical stuff I mentioned
before (which was non-antibiotic and all natural) and after 2 weeks
it was significant improvement - I could go out without makeup
(though I still had few bumps deep under the skin - it took some time
for them to go away but I could feel they was not active and was
slowly disappearing).
> And One one thing that I notice - been outside and see some SUN
every day significantly improve skin overall. Maybe has to do with
sun rays kill most harmful bacteria and fungi etc. And what I notice -
people with Rosacea usually homebodies and don't show their face to
sun a lot. I think it can be good and cheaper replacement for IPL and
Red light therapy LOL.
> Anyway I was out last 2 summers everyday and in winter I'm tanning
twice a week for 10 min. each, which I couldn't do for many years
with Rosacea and taking walks for 40 min everyday.
> Good luck everybody - explore and find what is good for you - we
all very individual but we all connected to nature with our
everything, so don't turn your back on natural treatments.
>  
>  
>
> --- On Wed, 11/19/08, nurse_artist <nurse_artist@...> wrote:
>
> From: nurse_artist <nurse_artist@...>
> Subject: Re: [rosacea] Questions for Lilly S.
> To: rosacea-support@yahoogroups.com
> Date: Wednesday, November 19, 2008, 6:17 PM
>
>
>
>
>
>
> Hi Sherrell-Lynn: I'll throw my opinion in here and I'm totally fine
> if you take it or leave it. It's just my opinion :) Anyway, the
> current research findings and overall thinking is that antibiotics
> help rosacea because of their anti-inflammatory effects (not their
> anti-bacterial effects). Oral antibiotics can be extremely helpful
for
> many (not all) with rosacea. In addition, there are a multitude of
> topical medications that can be very effective long-term. A
> dermatologist looks at your rosacea and decides the order in which
to
> try them and figure out the one your skin needs. It does take time
and
> patience, however. Remember, treatments for rosacea generally take
> about two months to start working. When they do, however, you will
really know it.
>
> There is no cure for rosacea. It's a skin condition that persists if
> not treated properly. Some have posted in the past that parasite
> and/or bowel cleanses have been somewhat helpful, and others report
no
> effect. I tried "paragone" years ago, and I do think it helped
> temporarily, for maybe a few days, but it was by no means a cure. I
> still have rosacea but it's under good control with my skin care
> routine, Tetracycline, Finacea, occasional IPL treatments, and Red
> Light Therapy.
>
> In my opinion, doing a cleanse, eating a healthy diet, adding
> probiotics, being positive, and decreasing stress are all very good
for rosacea, but you may likely need to treat it in the long term. It
does sound like you have had an unusual amount of stress lately.
Hopefully your rosacea calms down a lot once the stressful situation
calms down (and I hope it does for you soon, you poor dear!)
>
> A good way to start is by identifying major triggers and finding a
> gentle skin care routine (and seeing your dermatologist, of
course!).
>
> What do you use on your skin to cleanse and moisturize? What are
your
> major rosacea triggers?
>
> I just don't want you to be disappointed if the current plan doesn't
> work the way you might have hoped :( I do hope it does, and be sure
> to check in often for support and to share what helps you (or
doesn't)
> along the way.
>
> All the best!
>
> Artist
> Not medical advice. Ask your doctor first.
>
> --- In rosacea-support@ yahoogroups. com, Sherrell-Lynn Johnson
> <deputyfred1@ ...> wrote:
> >
> > Lilly,
> >
> > I am on board with you 100%. I don't know of any other bacterial
> infection that doctors prescribe antibiotics just to "suppress" it.
> Maybe there are some out there but they are unkown to me. I know for
> the last 3 yrs I have been under an astronomical amount of stress.
> There were some very terrible personal experiences that sent me
> sprialing into a deep depression and the tragedy that fell upon us
led
> to financial ruin. I won't bore anyone with my mess, for I know we
> all have our own trials and tribulations. However, all the stress,
> and the medications I have been given over the last 3 yrs combined
> with the poor diet and poor nutrition, no sleep, etc, etc, I think
my
> body is reacting to the lack of care it has been given. I can't
speak
> for everyone else, but I think cleansing my body, ridding it of the
> artificial crap, and impurities that I have poured into it, I think
it
> will definitely help if not rid myself of this roseca altogether.
> > Doctors would disagree but if certain vitamins can help fend off
> cancer why can't cleansing my body all all the impurities help clear
> up a skin condition? I have already started a parasite cleansing
> program, stopped drinking soda and replacing that with pure water
and
> green tea. I am starting chloryphyll tablets today and I am taking
> probiotics. With a change in diet and caring for myself for a
change,
> it can only lead to good health. I will keep my progress posted in
> hopes it will give someone else another alternative and maybe even
be
> an answer. I think I am beginning to really see that if we dont take
> care of our bodies, our bodies simply can't take care of us. We
abuse
> our bodies everyday and don't even realize it. I am choosing to stop
> that cycle of abuse and treat myself with respect and care. hey, who
> knows, it just might be the answer.
> >
> > Thanks for your support and advice. I will post my progress. And
> good luck to all who suffer this and any other noncurable disease!!
> >
> >
> > Sherrell-Lynn
> >
> > --- On Tue, 11/18/08, Lilly Samur <lilllsam@ .> wrote:
> >
> > From: Lilly Samur <lilllsam@ .>
> > Subject: Re: [rosacea] Questions for Lilly S.
> > To: rosacea-support@ yahoogroups. com
> > Date: Tuesday, November 18, 2008, 3:18 PM
> >
> > Tetracycline doesn't treat Rosacea - it's just suppress it and
that way
> > makes it chronicle. I was on Tet for more then 3 years and in the
> end Rosacea
> > adjust to it and it stopped work at all. Same with metronidazol -
> multiple
> > studies found that Rosacea resist it. For me it never worked.
> > I actually heard from one derm in Europe that Tetracycline (and
> like) may be
> > the cause of "superinfection" (unfriendly bacteria overgrow) that
> > cause Rosacea. Anybody knows something about it? I know that it's
effect
> > intestinal immunity (they say 80% of our immunity in intestens?).
So
> maybe to
> > fix immunity related desese (including Rosacea) we should start
from
> fixing our
> > intestens? Do some cleansing, antiparasite and take some
probiotics?
> > And funnies thing - that antibiotics I mention thats all derm in
USA
> would
> > prescribe. Why they prescribe something that is not working - I
have
> no idea.
> > Most of them (that I spok) know about Rosacea less then I do. Last
> time when I
> > had bad outbreak (before my treatment) and I saw derm - she told
me
> - it's
> > not going to get any better, will get only worst with time... She
> prescribe me
> > same antibiotics and Differin (which my insurance didn't cover
and I pay
> > crazy money for it and which make me break out like crazy after
first
> > application and took a month to fix that). So now I agree - if I
> follow her
> > treatment it could probably get only worst. I'm glad I found my
way
> out and
> > I wish it to everyone. I know everybody have different skin type
and
> Rosacea
> > case and have to find their way out and I hope you all do. Just
take
> your health
> > to your own hands, do your research, demand from docs treatment
> change, stay
> > up-to-date etc. My grandma (who was herbalist, same like my mom)
use
> to say -
> > Doctors will help you if you know how to help your self.
> > I agree.
> > Good luck,
> > Lilly
> >
>
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