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Just been diagnosed with rosacea   Message List  
Reply | Forward Message #101783 of 104842 |
Re: [rosacea] Questions for Lilly S.

Artist, what are your ideas as to why Paragone helped temporarily?

Thanks!

Gabriella



--- In rosacea-support@yahoogroups.com, "nurse_artist"
<nurse_artist@...> wrote:
>
> Hi Sherrell-Lynn: I'll throw my opinion in here and I'm totally
fine
> if you take it or leave it. It's just my opinion :) Anyway, the
> current research findings and overall thinking is that antibiotics
> help rosacea because of their anti-inflammatory effects (not their
> anti-bacterial effects). Oral antibiotics can be extremely helpful
for
> many (not all) with rosacea. In addition, there are a multitude of
> topical medications that can be very effective long-term. A
> dermatologist looks at your rosacea and decides the order in which
to
> try them and figure out the one your skin needs. It does take time
and
> patience, however. Remember, treatments for rosacea generally take
> about two months to start working. When they do, however, you will
really know it.
>
> There is no cure for rosacea. It's a skin condition that persists if
> not treated properly. Some have posted in the past that parasite
> and/or bowel cleanses have been somewhat helpful, and others report
no
> effect. I tried "paragone" years ago, and I do think it helped
> temporarily, for maybe a few days, but it was by no means a cure. I
> still have rosacea but it's under good control with my skin care
> routine, Tetracycline, Finacea, occasional IPL treatments, and Red
> Light Therapy.
>
> In my opinion, doing a cleanse, eating a healthy diet, adding
> probiotics, being positive, and decreasing stress are all very good
for rosacea, but you may likely need to treat it in the long term. It
does sound like you have had an unusual amount of stress lately.
Hopefully your rosacea calms down a lot once the stressful situation
calms down (and I hope it does for you soon, you poor dear!)
>
> A good way to start is by identifying major triggers and finding a
> gentle skin care routine (and seeing your dermatologist, of
course!).
>
> What do you use on your skin to cleanse and moisturize? What are
your
> major rosacea triggers?
>
> I just don't want you to be disappointed if the current plan doesn't
> work the way you might have hoped :( I do hope it does, and be sure
> to check in often for support and to share what helps you (or
doesn't)
> along the way.
>
> All the best!
>
> Artist
> Not medical advice. Ask your doctor first.
>
> --- In rosacea-support@yahoogroups.com, Sherrell-Lynn Johnson
> <deputyfred1@> wrote:
> >
> > Lilly,
> >
> > I am on board with you 100%. I don't know of any other bacterial
> infection that doctors prescribe antibiotics just to "suppress" it.
> Maybe there are some out there but they are unkown to me. I know
for
> the last 3 yrs I have been under an astronomical amount of stress.
> There were some very terrible personal experiences that sent me
> sprialing into a deep depression and the tragedy that fell upon us
led
> to financial ruin. I won't bore anyone with my mess, for I know we
> all have our own trials and tribulations. However, all the stress,
> and the medications I have been given over the last 3 yrs combined
> with the poor diet and poor nutrition, no sleep, etc, etc, I think
my
> body is reacting to the lack of care it has been given. I can't
speak
> for everyone else, but I think cleansing my body, ridding it of the
> artificial crap, and impurities that I have poured into it, I think
it
> will definitely help if not rid myself of this roseca altogether.
> > Doctors would disagree but if certain vitamins can help fend off
> cancer why can't cleansing my body all all the impurities help clear
> up a skin condition? I have already started a parasite cleansing
> program, stopped drinking soda and replacing that with pure water
and
> green tea. I am starting chloryphyll tablets today and I am taking
> probiotics. With a change in diet and caring for myself for a
change,
> it can only lead to good health. I will keep my progress posted in
> hopes it will give someone else another alternative and maybe even
be
> an answer. I think I am beginning to really see that if we dont take
> care of our bodies, our bodies simply can't take care of us. We
abuse
> our bodies everyday and don't even realize it. I am choosing to
stop
> that cycle of abuse and treat myself with respect and care. hey, who
> knows, it just might be the answer.
> >
> > Thanks for your support and advice. I will post my progress. And
> good luck to all who suffer this and any other noncurable disease!!
> >
> >
> > Sherrell-Lynn
> >
> > --- On Tue, 11/18/08, Lilly Samur <lilllsam@> wrote:
> >
> > From: Lilly Samur <lilllsam@>
> > Subject: Re: [rosacea] Questions for Lilly S.
> > To: rosacea-support@yahoogroups.com
> > Date: Tuesday, November 18, 2008, 3:18 PM
> >
> > Tetracycline doesn't treat Rosacea - it's just suppress it and
that way
> > makes it chronicle. I was on Tet for more then 3 years and in the
> end Rosacea
> > adjust to it and it stopped work at all. Same with metronidazol -
> multiple
> > studies found that Rosacea resist it. For me it never worked.
> > I actually heard from one derm in Europe that Tetracycline (and
> like) may be
> > the cause of "superinfection" (unfriendly bacteria overgrow) that
> > cause Rosacea. Anybody knows something about it? I know that it's
effect
> > intestinal immunity (they say 80% of our immunity in intestens?).
So
> maybe to
> > fix immunity related desese (including Rosacea) we should start
from
> fixing our
> > intestens? Do some cleansing, antiparasite and take some
probiotics?
> > And funnies thing - that antibiotics I mention thats all derm in
USA
> would
> > prescribe. Why they prescribe something that is not working - I
have
> no idea.
> > Most of them (that I spok) know about Rosacea less then I do. Last
> time when I
> > had bad outbreak (before my treatment) and I saw derm - she told
me
> - it's
> > not going to get any better, will get only worst with time... She
> prescribe me
> > same antibiotics and Differin (which my insurance didn't cover
and I pay
> > crazy money for it and which make me break out like crazy after
first
> > application and took a month to fix that). So now I agree - if I
> follow her
> > treatment it could probably get only worst. I'm glad I found my
way
> out and
> > I wish it to everyone. I know everybody have different skin type
and
> Rosacea
> > case and have to find their way out and I hope you all do. Just
take
> your health
> > to your own hands, do your research, demand from docs treatment
> change, stay
> > up-to-date etc. My grandma (who was herbalist, same like my mom)
use
> to say -
> > Doctors will help you if you know how to help your self.
> > I agree.
> > Good luck,
> > Lilly
> >
>





Thu Nov 20, 2008 10:52 pm

gabri_gallo
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Message #101783 of 104842 |
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I agree completely, I honestly can say i have had around 35 treatments with different lasers and I am actually worse off than i have ever been with this...
jmegnagb
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Nov 21, 2008
12:38 am

Artist, what are your ideas as to why Paragone helped temporarily? Thanks! Gabriella ... fine ... for ... to ... and ... really know it. ... no ... for...
gabri_gallo
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Nov 21, 2008
12:24 am

I think it increased "gut transit time" and cleared out the fermenting bacteria a bit. I tend to improve anytime I change my diet radically, which also happens...
nurse_artist
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Nov 21, 2008
12:38 am

Hi Sherrell-Lynn, First off let me say I love your name. It's very pretty and feminine. Sounds as though you are quite miserable and not sure what would be...
DAVID LEE DURHAM
squrlee
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Nov 15, 2008
3:49 am

Thank you so very much for taking the time to write to me. And thank you for the compliment on my name. it is a special name to me becuase Sherrell was my...
Sherrell-Lynn Johnson
deputyfred1
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Nov 16, 2008
2:53 am

One suggestion, for perhaps temporary relief, is to soak a washcloth in richly steeped chamomile tea. It's very soothing, calming and smells good to boot....
Michele Gerstel Coste...
Positive4Life
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Nov 17, 2008
4:40 am

Hi Sherrell-Lynn. Have you checked the Ocular Rosacea section in those useful resources pages that are updated every month? I've added the link below that...
lisamouries
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Nov 17, 2008
2:17 pm

Because you have ocular involvement you should also be seeing an opthimologist - not just a derm If you can make that argument successfully you may just get...
khm4aim
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Nov 16, 2008
11:21 am

Thank you for your advice. I have never hear for Oracea or Periostat. I am defintely going to ask my derm about going on one of those in place of the...
Sherrell-Lynn Johnson
deputyfred1
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Nov 16, 2008
11:08 pm

Both of these are low level versions of tetracycline - they do the job with much less side effects. Also, I do believe you should request an appointment with...
khm4aim
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Nov 17, 2008
4:40 am

Again, thank you. It helps to know that I'm not just being "crazy" about this thing. I too feel my derm is not taking this condition seriously enough and he is...
Sherrell-Lynn Johnson
deputyfred1
Offline Send Email
Nov 17, 2008
4:21 pm
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