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Just been diagnosed with rosacea   Message List  
Reply | Forward Message #101769 of 105076 |
Re: [rosacea] Questions for Lilly S.

Hi Sherrell-Lynn: I'll throw my opinion in here and I'm totally fine
if you take it or leave it. It's just my opinion :) Anyway, the
current research findings and overall thinking is that antibiotics
help rosacea because of their anti-inflammatory effects (not their
anti-bacterial effects). Oral antibiotics can be extremely helpful for
many (not all) with rosacea. In addition, there are a multitude of
topical medications that can be very effective long-term. A
dermatologist looks at your rosacea and decides the order in which to
try them and figure out the one your skin needs. It does take time and
patience, however. Remember, treatments for rosacea generally take
about two months to start working. When they do, however, you will really know
it.

There is no cure for rosacea. It's a skin condition that persists if
not treated properly. Some have posted in the past that parasite
and/or bowel cleanses have been somewhat helpful, and others report no
effect. I tried "paragone" years ago, and I do think it helped
temporarily, for maybe a few days, but it was by no means a cure. I
still have rosacea but it's under good control with my skin care
routine, Tetracycline, Finacea, occasional IPL treatments, and Red
Light Therapy.

In my opinion, doing a cleanse, eating a healthy diet, adding
probiotics, being positive, and decreasing stress are all very good for rosacea,
but you may likely need to treat it in the long term. It does sound like you
have had an unusual amount of stress lately. Hopefully your rosacea calms down a
lot once the stressful situation calms down (and I hope it does for you soon,
you poor dear!)

A good way to start is by identifying major triggers and finding a
gentle skin care routine (and seeing your dermatologist, of course!).

What do you use on your skin to cleanse and moisturize? What are your
major rosacea triggers?

I just don't want you to be disappointed if the current plan doesn't
work the way you might have hoped :( I do hope it does, and be sure
to check in often for support and to share what helps you (or doesn't)
along the way.

All the best!

Artist
Not medical advice. Ask your doctor first.

--- In rosacea-support@yahoogroups.com, Sherrell-Lynn Johnson
<deputyfred1@...> wrote:
>
> Lilly,
>
> I am on board with you 100%. I don't know of any other bacterial
infection that doctors prescribe antibiotics just to "suppress" it.
Maybe there are some out there but they are unkown to me. I know for
the last 3 yrs I have been under an astronomical amount of stress.
There were some very terrible personal experiences that sent me
sprialing into a deep depression and the tragedy that fell upon us led
to financial ruin. I won't bore anyone with my mess, for I know we
all have our own trials and tribulations. However, all the stress,
and the medications I have been given over the last 3 yrs combined
with the poor diet and poor nutrition, no sleep, etc, etc, I think my
body is reacting to the lack of care it has been given. I can't speak
for everyone else, but I think cleansing my body, ridding it of the
artificial crap, and impurities that I have poured into it, I think it
will definitely help if not rid myself of this roseca altogether.
> Doctors would disagree but if certain vitamins can help fend off
cancer why can't cleansing my body all all the impurities help clear
up a skin condition? I have already started a parasite cleansing
program, stopped drinking soda and replacing that with pure water and
green tea. I am starting chloryphyll tablets today and I am taking
probiotics. With a change in diet and caring for myself for a change,
it can only lead to good health. I will keep my progress posted in
hopes it will give someone else another alternative and maybe even be
an answer. I think I am beginning to really see that if we dont take
care of our bodies, our bodies simply can't take care of us. We abuse
our bodies everyday and don't even realize it. I am choosing to stop
that cycle of abuse and treat myself with respect and care. hey, who
knows, it just might be the answer.
>
> Thanks for your support and advice. I will post my progress. And
good luck to all who suffer this and any other noncurable disease!!
>
>
> Sherrell-Lynn
>
> --- On Tue, 11/18/08, Lilly Samur <lilllsam@...> wrote:
>
> From: Lilly Samur <lilllsam@...>
> Subject: Re: [rosacea] Questions for Lilly S.
> To: rosacea-support@yahoogroups.com
> Date: Tuesday, November 18, 2008, 3:18 PM
>
> Tetracycline doesn't treat Rosacea - it's just suppress it and that way
> makes it chronicle. I was on Tet for more then 3 years and in the
end Rosacea
> adjust to it and it stopped work at all. Same with metronidazol -
multiple
> studies found that Rosacea resist it. For me it never worked.
> I actually heard from one derm in Europe that Tetracycline (and
like) may be
> the cause of "superinfection" (unfriendly bacteria overgrow) that
> cause Rosacea. Anybody knows something about it? I know that it's effect
> intestinal immunity (they say 80% of our immunity in intestens?). So
maybe to
> fix immunity related desese (including Rosacea) we should start from
fixing our
> intestens? Do some cleansing, antiparasite and take some probiotics?
> And funnies thing - that antibiotics I mention thats all derm in USA
would
> prescribe. Why they prescribe something that is not working - I have
no idea.
> Most of them (that I spok) know about Rosacea less then I do. Last
time when I
> had bad outbreak (before my treatment) and I saw derm - she told me
- it's
> not going to get any better, will get only worst with time... She
prescribe me
> same antibiotics and Differin (which my insurance didn't cover and I pay
> crazy money for it and which make me break out like crazy after first
> application and took a month to fix that). So now I agree - if I
follow her
> treatment it could probably get only worst. I'm glad I found my way
out and
> I wish it to everyone. I know everybody have different skin type and
Rosacea
> case and have to find their way out and I hope you all do. Just take
your health
> to your own hands, do your research, demand from docs treatment
change, stay
> up-to-date etc. My grandma (who was herbalist, same like my mom) use
to say -
> Doctors will help you if you know how to help your self.
> I agree.
> Good luck,
> Lilly
>





Wed Nov 19, 2008 4:17 pm

nurse_artist
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Forward
Message #101769 of 105076 |
Expand Messages Author Sort by Date

Lilly, I am on board with you 100%. I don't know of any other bacterial infection that doctors prescribe antibiotics just to "suppress" it. Maybe there are...
Sherrell-Lynn Johnson
deputyfred1
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Nov 19, 2008
3:51 pm

Hi Sherrell-Lynn: I'll throw my opinion in here and I'm totally fine if you take it or leave it. It's just my opinion :) Anyway, the current research...
nurse_artist
Offline Send Email
Nov 19, 2008
4:26 pm

And I have too slightly disagree with Artist - because it sound like typical look to Rosacea from "official" perspective - there is not treatment, suppress it...
Lilly Samur
lilllsam
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Nov 20, 2008
3:00 am

I agree completely, I honestly can say i have had around 35 treatments with different lasers and I am actually worse off than i have ever been with this...
jmegnagb
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Nov 21, 2008
12:38 am

Artist, what are your ideas as to why Paragone helped temporarily? Thanks! Gabriella ... fine ... for ... to ... and ... really know it. ... no ... for...
gabri_gallo
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Nov 21, 2008
12:24 am

I think it increased "gut transit time" and cleared out the fermenting bacteria a bit. I tend to improve anytime I change my diet radically, which also happens...
nurse_artist
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Nov 21, 2008
12:38 am

Hi Sherrell-Lynn, First off let me say I love your name. It's very pretty and feminine. Sounds as though you are quite miserable and not sure what would be...
DAVID LEE DURHAM
squrlee
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Nov 15, 2008
3:49 am

Thank you so very much for taking the time to write to me. And thank you for the compliment on my name. it is a special name to me becuase Sherrell was my...
Sherrell-Lynn Johnson
deputyfred1
Offline Send Email
Nov 16, 2008
2:53 am

One suggestion, for perhaps temporary relief, is to soak a washcloth in richly steeped chamomile tea. It's very soothing, calming and smells good to boot....
Michele Gerstel Coste...
Positive4Life
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Nov 17, 2008
4:40 am

Hi Sherrell-Lynn. Have you checked the Ocular Rosacea section in those useful resources pages that are updated every month? I've added the link below that...
lisamouries
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Nov 17, 2008
2:17 pm

Because you have ocular involvement you should also be seeing an opthimologist - not just a derm If you can make that argument successfully you may just get...
khm4aim
Offline Send Email
Nov 16, 2008
11:21 am

Thank you for your advice. I have never hear for Oracea or Periostat. I am defintely going to ask my derm about going on one of those in place of the...
Sherrell-Lynn Johnson
deputyfred1
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Nov 16, 2008
11:08 pm

Both of these are low level versions of tetracycline - they do the job with much less side effects. Also, I do believe you should request an appointment with...
khm4aim
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Nov 17, 2008
4:40 am

Again, thank you. It helps to know that I'm not just being "crazy" about this thing. I too feel my derm is not taking this condition seriously enough and he is...
Sherrell-Lynn Johnson
deputyfred1
Offline Send Email
Nov 17, 2008
4:21 pm
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