You know you are not the only one, because I am also am in the same
boat, and I know that it can be frustrating
to those who don't know anyone with this syndrome
--- In robinow_syndrome@yahoogroups.com, "arnettobrien <arnett@n...>"
<arnett@n...> wrote:
> My son has robinow. We don't know of anyone else with this
condition.