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Robinow Syndrome   Message List  
Reply | Forward Message #15 of 3244 |
Robinow Syndrome

As a mother of a child with Recessive Robinow Syndrome, I urge all of you
who are familiar with this syndrome to also view the website: Robinow.org

Through that site you will find a lot of photos along with general information
about this syndrome. Please adress your doctors, educators, therapists, etc. to
also view the site.

As you know, there is little information about this syndrome, and our biggest
triumph is locating others who we can talk to and learn from.

Feel free to contact me at anytime via e-mail.

kmkruger@...





Fri Mar 21, 2003 3:50 pm

robinow91
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Message #15 of 3244 |
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Robinow syndrome which is also labeled Fetal Facial syndrome happens sometime in the womb. Some reports say 8 weeks, and some say 8 months. So if anyone...
Alexandra Davison <da...
marie97_1997
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Feb 24, 2003
5:04 pm

As a mother of a child with Recessive Robinow Syndrome, I urge all of you who are familiar with this syndrome to also view the website: Robinow.org Through...
robinow91
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Mar 21, 2003
3:52 pm
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