As a mother of a child with Recessive Robinow Syndrome, I urge all of you
who are familiar with this syndrome to also view the website: Robinow.org
Through that site you will find a lot of photos along with general information
about this syndrome. Please adress your doctors, educators, therapists, etc. to
also view the site.
As you know, there is little information about this syndrome, and our biggest
triumph is locating others who we can talk to and learn from.
Feel free to contact me at anytime via e-mail.
kmkruger@...