--- In robinow_syndrome@yahoogroups.com, "maggie" <honey10047@y...>
wrote:
> how can u tell if a baby has the syndrome cause so far my son was
> born 2months early weighing 2lbs 2ozs,he had premature lungs cleft
> lip and palate.one of this testes aren't down mainly the right side
> and like above his eyes right in the middle of his forehead when he
> cries a buldge pops up.
>
> if u know any type of information please let me know.
>
> sincerely,
> maggie,chicago il.
>
>
> --- In robinow_syndrome@yahoogroups.com, "Alexandra Davison"
> <davison@m...> wrote:
> > You know you are not the only one, because I am also am in the
same
> > boat, and I know that it can be frustrating
> > to those who don't know anyone with this syndrome




Maggie
Trying to determine if your son has Robinow Syndrome can be
frustrating. I have a son with Robinow Syndrome, he has the Recessive
form. He is now 7 years old. I have had the privilege to meet many
with Robinow Syndrome ages newborn to 37 years. I can try to help you
find a geneticists that has already seen children with Robinow
Syndrome and this may help to determine if this is what your son may
have. Since he was born premature his lungs and other medical
concerns could also be part of his premature birth. But also these
things can come with Robinow Syndrome. There are many things that a
doctor can look for in trying to determine if it may be Robinow
Syndrome.
I hope I can answer some of your questions.
Kim Ortiz
Also, Assistant to the Robinow Syndrome Foundation
Karla Kruger is the Founder
www.robinow.org
please feel free to email




> > --- In robinow_syndrome@yahoogroups.com, "arnettobrien
> <arnett@n...>"
> > <arnett@n...> wrote:
> > > My son has robinow. We don't know of anyone else with this
> > condition.