The biggest advice that I can suggest,is to go to as many doctors as
you can, and to go onto the robinow.org website that is posted in
the links site. They maybe able to help you. There are just so many
things that they still don't know. So maybe that can help you a
little.
--- In robinow_syndrome@yahoogroups.com, "maggie" <honey10047@y...>
wrote:
> how can u tell if a baby has the syndrome cause so far my son was
> born 2months early weighing 2lbs 2ozs,he had premature lungs cleft
> lip and palate.one of this testes aren't down mainly the right side
> and like above his eyes right in the middle of his forehead when he
> cries a buldge pops up.
>
> if u know any type of information please let me know.
>
> sincerely,
> maggie,chicago il.
>
>
> --- In robinow_syndrome@yahoogroups.com, "Alexandra Davison"
> <davison@m...> wrote:
> > You know you are not the only one, because I am also am in the
same
> > boat, and I know that it can be frustrating
> > to those who don't know anyone with this syndrome
> > --- In robinow_syndrome@yahoogroups.com, "arnettobrien
> <arnett@n...>"
> > <arnett@n...> wrote:
> > > My son has robinow. We don't know of anyone else with this
> > condition.