Retroperitoneal Fibrosis World Support group offers both a warm and comforting welcome and an unrivaled learning experience to build self awareness of this rare condition. Our family of members encourages all sufferers, caregivers, family, friends, and interested medical professionals to join.
Recently diagnosed with RF? There is no better place to understand the future options and do so in an atmosphere of empathy with serious focus.
This Group was set-up by sufferers and carers independent of any external commercial interests or other agenda. This group is driven by members/sufferers with only members' interests at heart. You too can share equally as we go forward.
The principal focus of this online support forum is for each member to offer each other moral support, friendship, and give opinions and advice based on our personal experiences with the disease. None of us purports to represent any professional medical opinion.
This world support group is open to people serious about gaining an understanding of RF awareness, treatments, surgery options, management, and research.
Membership in this group includes access to unsurpassed resources of professional papers, case histories, files, relevant links, a member recommended doctor database, information tables, and much more; to allow meaningful, valued exchanges and social interaction.
To help new members in the best possible way we ask that you enter your location, age, and gender as well as a screen name in the ID area.
NOTE: Owner/Moderators of this Group are committed to ethical, fair, open, communications essentially and seriously on the topic of RF and related health conditions. We commit to upholding Yahoo's Terms of Service. Please be aware there is zero tolerance of any incidence of personal abuse, personal product or other promotions, spaming, cyber bullying, e-mail harvesting, any known unlawful actions or otherwise. Offenders will have membership terminated.