Do you know the Crowleys from Arizona? Their son has Rb. I used to live in Fort Collins and know an Rb family in CO Springs but no one in Denver. I'm...
48
senaseyes@...
gonestamping...
Jul 1, 2003 4:07 pm
Kids Eye Cancer Friends on Yahoo and the ACOR R-BLASTOMA list. Those are the ones I'm on. There are a few others on ACOR. I have a link to ACOR on my ...
49
senaseyes@...
gonestamping...
Jul 1, 2003 5:05 pm
About Flaxseed Oil In 1990 the National Cancer Institute (NCI) launched a program to learn more about biologically active plant chemicals, phytochemicals, in...
50
senaseyes@...
gonestamping...
Jul 1, 2003 5:05 pm
Hi everyone, Been researching foods to fight all of our ailments: cancer, eczema, migraines, allergies, depression, etc. And I've discovered that Omega 3...
51
mukluk_jack
Jul 7, 2003 10:10 pm
Dear Lori (and all), Please keep me up to date on a gathering in the Denver area. I would like to attend. We live in Longmont, I bet you know where that is! ...
52
senaseyes@...
gonestamping...
Jul 8, 2003 1:17 am
I used to work at the Trade Secret in Longmont at the mall. My cousin lives there and my aunt moved from there to Greeley about 5 years ago. I've got friends...
53
dkwak75@...
dkwak75
May 12, 2004 7:46 pm
Hello Everyone! I survived rb when I was 2. I'm 29 now. I'm in the L.A. area. I knew there were others out there but it's nice to have a place where I can...
54
mukluk_jack
May 15, 2004 1:40 am
Welcome, David! We are a q-u-i-e-t group, but that's ok....it's just good to know that there are "others" of us rb survivors out there! Sometimes it can feel...
55
dkwak75@...
dkwak75
May 15, 2004 9:00 am
Thanks for writing back, Carol! I'm going to guess you went to school at Biola University...am I right? Yeah, La Mirada is pretty close to where I live in...
56
mukluk_jack
May 19, 2004 7:25 pm
David, You're right....I went to Biola. Seems like LOTS of years ago, though! Now we make our home in Colorado. It's interesting to actually meet someone...
87
mishrwhalen
Sep 1, 2007 6:38 pm
hi david, i just joined this group. i survived retinoblastoma at 2 as well, however I am 38, almost 39 now... nice to meet you Mish ... the...
88
mishrwhalen
Sep 1, 2007 6:41 pm
6 kids all RB free??? :) ... it ... before ... my ... am ... in ... Thanks....
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mishrwhalen
Sep 1, 2007 6:43 pm
Hi there my name is Mish and I survived RB at 2, it was bilateral and I lost my left one,kept my right - but lived to tell about it and have been cancer free...
90
Terri Leonard
terridawn2003
Sep 6, 2007 11:25 pm
I am just curious, how did you discover or your parents rather that you had this cancer? My daughter had the white spots in the photos. It seemed consistant in...
91
gingerbreadlatte2002
gingerbreadl...
Sep 8, 2007 3:19 am
Hi There! We are such a quiet group! Welcome! Yes, I have six kids and none of them got rb. Guess that probably means I don't have the gene. There never...
92
gingerbreadlatte2002
gingerbreadl...
Sep 8, 2007 3:50 am
Hi Terri, I am so glad you joined the group. My mom has said that she woke up one morning and my eye had a brownish haze to it. She said it looked sickly,...
93
nikki.mcgrane
Sep 9, 2007 3:49 am
I personally have not been affected by rb.. but a little girl that is very special to me has... i am in yr 12 and doing a study on RB- so if anyone has any...
94
Terri Leonard
terridawn2003
Sep 10, 2007 11:36 am
I am getting a second opinion just to make sure!! I am going to try and post some pics later showing the "cats eye" just to get some opionions. I do know that...
95
Autumn
mytwintreasures
Oct 20, 2007 6:56 am
Hi my name is Autumn, my took my son to an Optometrist yesterday and he reffered us to a Pediatric Opthamologist. He said he need to make sure there was...
96
gingerbreadlatte2002
gingerbreadl...
Oct 20, 2007 1:44 pm
Dear Autumn, My name is Carol, and I am the moderator on the Retinoblastoma Kids site. I live in Longmont, Colorado, and had retinoblastoma when I was an...
98
Terri Leonard
terridawn2003
Oct 22, 2007 4:41 pm
Hey Autumn, I did the same thing. I worried myself to no end. I ws hysterical. Turns out, my daughter is extremely farsighted!! The camera flash was bouncing...
103
krystalandbenwilliams
krystalandbe...
Apr 23, 2008 3:44 am
Hi Everyone. My son has just been diagnosed with RB, it was actually confirmed today by Dr. Murphree at the LA Childrens hospital. We go on Thursday for the...
104
Autumn Jojola
mytwintreasures
Apr 23, 2008 3:55 am
Hi, We were right where you are this past Oct. The not knowing is the worst! Is he going to lose his eye? Has that even been discussed yet? My son lost his...
105
mukluk_jack
Apr 24, 2008 5:25 am
Hi, and welcome to the group. My heart goes out to you and your husband and son. It is very difficult to think about what you must be going through. I am...
106
earlemommy2
Apr 24, 2008 11:16 am
Hello, My name is Lisa, my 9 month old daughter has retinoblastoma. She was diagnosised at her 6 month well visit. We are here in South Florida. We just...
107
krystalandbenwilliams
krystalandbe...
Apr 24, 2008 11:18 pm
I would like to thank all of you for your support. We just got back from our appt today and found out that our son will have to lose his eye. The tumor is...
108
earlemommy2
Apr 25, 2008 12:50 am
I just keep on saying to myself that I am keeping my baby, she is keeping her life, but losing an eye... What did the Dr say about chemo? Alexandria's tumor...
109
mishrwhalen
Apr 25, 2008 11:17 am
Wishing you strength and health for your family. I am a 39 year old who had bilateral retinoblastoma and lost my left eye at the age of 2. I am a multimedia...
110
Gabi
hayload
May 9, 2008 2:39 pm
My name is Gabi and my now 8 year old son was diagnosed with RB when he was 2 1/2. He lost his left eye. He has an identical twin brother who fortunately has...
114
earlemommy2
Sep 22, 2008 1:25 pm
Hello Everyone, I did something this weekend that changed my life and I am looking for help. My daughter Alexandria finished her chemo at Jackson Memorial on...
