Hi Carolyn, I didn't know I had RP when I had my daughter. I just knew I couldn't see at night very well and noticed I was tripping and running into things. I...
Hi Kathy, I don't know if we have met. I've attended the RP Support Group the Jacque Olsen runs off and on (but haven't been to a meeting in over a year)....
hey everyone does anyone on this sight live in ala? barbara CountessofAZ@... wrote: Hi Kathy, I don't know if we have met. I've attended the RP Support...
Short note: As I said before I do drive in the country and very cautiously. Up to Nov 07, I was more and more concerned driving. My glasses for far & near...
For Peg and others who enjoy snow, I decided to come appreciate it. Leaving a beautiful 68degF in SC, I landed in Nova Scotia this afternoon. I am glad you...
John: Oh... I don't love snow! I just like being able to see a little at night because of it. On the other hand -- the glare from it in the daytime is killer. ...
What great news! So happy to hear about a win! ... cautiously. Up to Nov 07, I was more and more concerned driving. My glasses for far & near vision shrunk my...
Hi Carolyn, I'm on the road right now (using a public computer in the Ancorage, Alaska public library because we have been up here for the Fur Rendezvous and ...
I am also participating in the study. I am coming up on my six month checkup. There has been a very noticeable sharpness in my vision but no improvement has...
I must have missed yourquestions or didn't know the answer. Can you repeat them? I didn't get any responce to my last post either. Lois ... From: barbara...
I ask about orgainizing kitchens closets, tips on haw to do it and ideas on how to make extra money from home. Thanks for repling back Barbara ed and lois...
I've tried organizing just my refrigerator but unless you can get cooperation from everyone who also uses your stuff it's nearly impossible. Things get pushed...
I'm 61 and haven't worked for 23 yrs, my husband still works he'll be 60 next month. I've worked since Iwas 15 and I kinda feel useless. I;ve had rp since Iwas...
... My visul acuity has improved in that eye however it maybe as a result of my pupil being constricted. My visual field has decresed. Are you in the early...
In a message dated 3/8/2008 6:52:01 A.M. US Mountain Standard Time, RP-Friends@yahoogroups.com writes: Albuquerque is a go!!! The hotel is sending us out the...
Hi, my name is Bryan, I'm new to the group. I felt the need to join the group after finding out 2 days ago that I'm legally blind with 10 degrees of visual...
Bryan, How old are you and what type of construction are you in? Steve _____ From: retinitispigmentosa@yahoogroups.com ...
Steve Crews
crewsy@...
Mar 9, 2008 12:32 am
9967
Steve, I will be 38 in may and I'm a pipefitter. Bryan ... From: Steve Crews <crewsy@...> To: retinitispigmentosa@yahoogroups.com Sent: Saturday, March...
Bryan, I'm 54, had to quit working at 40. I was an electronics instructor in an area VOTec school. I had always worked part time in residential ...
Steve Crews
crewsy@...
Mar 9, 2008 1:55 am
9969
Bryan, I think there is going to be both good news and bad news for you. Just because there are some jobs you cannot do for safety reasons, doesn't mean there...
I'm new to the group and I'm not sure how this whole group thing goes. But I was born with RP and now 23 they are declining and have been for a year or so. I...
Hi Daisy, people with RP are born with it. When it kicks in varies. Mine started in my teenage years with night blindness. When I was 32 I found out I had RP...
I too was very young when I was diaganosed. My night vision has been horrendous my whole life. When I hit 24-25 yrs. old I lost my perpherial pretty fast (or...
Bryan: The NYS Commission for the Blind and Visually Impaired (they are listed) have regional offices all over NY. They can help you through the vocational...
Hi Bryan, I have been night blind my entire life. Just recently my peripheral vision is distorted from having swelling in my retina. I'm really sensitive to...
hey, yea i was diagnosed when i was a few years old and i have always been night blind completely. yea my peripheral is going it has been the last year faster...
For those who have recently been diagnosed, and those who are still struggling to find ways to cope with RP... this article I wrote might be of help. It...
Bryan - SSI and SSDI tell me it takes 3-5 months for a disability determination. I was told SSI would start right away but that has not been the case with me....
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