Hello again everyone. A little while back, I posted about going to graduate school. Would anyone know of any financial aid for people with RP? I'm going to...
Kevin: I'm a grad student at Clarion University of PA. For funding I have a graduate assistanceship that pays half my tuition. I work 9 hrs a week as the staff...
Hello, I just started mobility training today. Among other things, I was introduced to several types of white canes. There were solid canes made of different...
Steve Crews
crewsy@...
Jan 4, 2008 1:57 am
9575
Hey Steve, I had the ame issues when I started mobility training. I decided what works for me is a combination. For my "city" travel and when I am away from...
Thank you very much for that information. Starting this endevor is daunting, but I'm doing what I can. I'm trying to avoid loans the best I can. I'm assuming...
Steve: My boyfriend has the telescoping cane. He got it for the very same reasons you stated. The problem he has with it is the telescoping gets stuck...
Kevin: Every school has their own policies, but I do believe you need to be at ;east registered. Another thing to keep in mind is to get with the schools...
Hi Steve, I've started using a cane the last few years. I still don't use it often and mostly just at night. I hear these roller tips are popular, but I don't...
May I ask, how long is the training? I have my sighted spouse to escort me everywhere but not at home though. Should I get a cane even though I will always...
My BF has one and it just pulls open and pushes shut. Not even has easy as an umbrella. It's carbon fiber, so very light weight. That's what Jim likes. It's...
Tracy: You ALWAYS have your huisband with you? No offense intended -- but that would drive me nuts! LOL I guess I'm too independent, but I need to know I can ...
Hi Peg, My husband is also disabled so yeah we are together 24/7. As matter of fact, it does not drives neither one of us crazy. I stopped driving 7 years ...
My husband usually helps me out as does my daughter, but I have found that they sometimes forget, get impatient and etc and I get left behind or stumble...
Don't let the hearing impairment hold you back. I have moderate to severe hearing loss and aside from bouts of frustrated impatience I get along fine for most...
VERY good points Peg. While we all like to think that our spouses, parents, children, etc will always 'be there', life has taught me some bitter lessons. I am...
Tracy: I do realize that everyone's situation is different. I also know how hard it is to go out in public when you have problems like hearing or vision loss....
Mary Beth: Good for you! As I just wrote to Tracy -- we're like the RP Family over here. My Grandpa, Dad, me, 2 of my siblings and daughter all have RP. (Well,...
Believe me -- I do know how tough this all is. It took me a long time to accept and deal with it, too. Now that I'm in a better place with it all I feel like I...
Hi Steve. I prefer a folding aluminum cane with the standard tip when travelling in the city or buildings where I may fold and unfold it. I have tried the...
I have been thinking about this disease and realized that not a lot of people are aware of this disease. The age range it affects and the different cultures...
Hi, where are you from? I'm from Buffalo, New York. I always wonder if they would bring this disease up on a show like Oprah or any other show, i think it a...
Tracy, Yes, you should get mobility training. I can't remember any other time I have flatly told someone on one of these lists what I think they should do,...
I completely agree. I don't think a lot of people take this disease very seriously. They don't realize what we can and cannot see because on the outside we...
Great idea.. I have said for a very long time that I wish there was some way I could subtley let people know I have this disease and to cut me some slack (in...
I'm not sure how to get the word out, but it is a great idea. I know until my son was diagnosed I had never heard of it, which meant I was also clueless to...
Hi Mark, I want to thank you and the others on the list that offered advice on the selection of a cane. Like you I won’t be using the cane on an everyday...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
