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retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases
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Messages 9370 - 9401 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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9370
Dear Kenny,  I never had blurry vision personally but obviously a doctor would be a much better expert then myself.  I actually see well straight out but it...
lizj56@...
lizj1956
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Oct 1, 2007
11:22 am
9371
hi dear so please more information about ur mail thanks and regards wait for ur answer by the way please answer compleatly C_Sterett...
saeed gh
mercury398
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Oct 1, 2007
11:25 am
9372
hi dear please more information thanks bye BOB COOK <memphisrn4@...> wrote: I agree with Curtis. I joined this group to learn more about the disease I...
saeed gh
mercury398
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Oct 1, 2007
11:37 am
9373
Hi folks. I've gotten a lot out of this board for some time now, but recently see more spam, invitations from outside adult websites, and most recently a...
Ian Foley
ianfoley206
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Oct 1, 2007
3:45 pm
9374
Right on, Ian! That's what I'm here for. I already have a date *grin* Just kidding -- this really is NOT the appropriate place for that sort of socializing. ...
Peg WC
cherokeebike...
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Oct 1, 2007
4:37 pm
9375
Hi, My name is Beckie Decker. I do not have RP and I don't know anyone who has RP. I am a registered nurse who hasn't worked for about 8-9 yrs though I do keep...
Beckie Decker
weenie_mom
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Oct 1, 2007
5:06 pm
9376
enjoyed reading your comment, i was told at the age of 27 that i had rp i am 60 now. istill see a little but i'm still active. i teach sunday school, play the...
barbara blythe
dirtydogblyt...
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Oct 1, 2007
10:28 pm
9377
My son Elliot is 17 months old. He was diagnosed with LMBBS last year, and part of it is RP. at that time he was seeing well. but 2 weeks ago he had an ERG...
amycrowell233
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Oct 1, 2007
11:00 pm
9378
treat him like a normal baby. look up every thing you can on ways to teach him how to do everything he possibly can. contact rehab and enroll in hadley's...
barbara blythe
dirtydogblyt...
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Oct 1, 2007
11:55 pm
9379
Have they checked to see if you have cataracts? Blurry vision is not a symptom of RP and there hasn't been any link of RP to MD. Marisa ... me what some of the...
mpostlewate
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Oct 2, 2007
1:27 am
9380
Probably the only thing you can do about the vision part of LMBBS now is to watch for signs of what problems he is or isn't having. Be aware that medical...
Bill Barns
wwbarns
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Oct 2, 2007
2:01 am
9381
For those who seem to think this is a dating forum there are specific lists located on Yahoo groups that are for that purpose....I do wish you would desist and...
Ken & Eve
eve_lowery
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Oct 2, 2007
11:46 am
9382
Hi Amy. I was diagnosed at age 6 or 7 with my RP, and share much of the experiences that Bill shared. I don't recall ever having night vision or being able...
Ian Foley
ianfoley206
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Oct 2, 2007
2:11 pm
9385
Hello, my name is Michelle. I just joined this group. I was diagnosed with RP in 2005 and gave up driving at that point since I'd had some close calls. I'm in...
Michelle Harper
harpermo2002
Online Now Send Email
Oct 8, 2007
9:53 pm
9386
hi, i have rp and i'm 60.i was told at the age of 27. i don't have hearing loss, but i'm the oldest of 6 girls and my baby sister is totalally blind from rp.we...
barbara blythe
dirtydogblyt...
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Oct 8, 2007
10:04 pm
9387
Hi You are not alone. I have RP and like you no one in family has it. I guess we are just lucky!!!!! I still drive but only in day light. I Have Rp since my...
Wally Baker
bayliner1102
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Oct 9, 2007
12:56 am
9388
I felt I had to give up driving after I was diagnosed. I'd been uncomfortable driving for yeras and had completely stopped driving at night. I even bumped into...
Michelle Harper
harpermo2002
Online Now Send Email
Oct 9, 2007
5:44 am
9389
Hello all, Have not posted for a long time but read you all. Working for customer service org and noticed that my "migraine auras" show up about 6 hours into...
belindabullis
Offline
Oct 9, 2007
1:38 pm
9390
I get those as well. It's probably eye strain. Do you use adaptive equipment to help on the job? It will help with the eye strain part for sure. Also, I live...
Peg WC
cherokeebike...
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Oct 9, 2007
2:37 pm
9391
Hi Michelle, I am 40, have RP and born with both hearing loss in both ears but don't have Ushers. I also have a sister who also have RP but have other ...
Tracylynn124@...
tracylynn12412
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Oct 9, 2007
3:42 pm
9392
Hi Tracy, How did you rule out Ushers? I have only one brother and he has normal hearing and vision with only age-related stuff showing up. Thanks, Michelle ...
Michelle Harper
harpermo2002
Online Now Send Email
Oct 9, 2007
4:34 pm
9393
Hi Belinda, So saorryto hear aout the headaches. I hope you find a solution soon. I'm also looking for a good retina specialist in the Orange County,...
Michelle Harper
harpermo2002
Online Now Send Email
Oct 9, 2007
4:35 pm
9394
I just never diagnosed Ushers, when my mom carried me, she exposed to German measles and that is how I lost my hearing. ...
Tracylynn124@...
tracylynn12412
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Oct 9, 2007
4:42 pm
9395
Hi Michelle, You sound a lot like where I was a few years ago. I also hit a pedestrian just before giving up driving. I've not mentioned this to many people,...
Mark T
blindsquid
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Oct 9, 2007
8:39 pm
9396
Sorry, didn't mean to send that last email to the whole list. Forgot to replace the TO: section. Mark ... Shape Yahoo! in your own image. Join our Network...
Mark T
blindsquid
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Oct 9, 2007
8:43 pm
9397
I am curious. What exactly is RP? I mean what are the symptoms? I am 42 and suffer from very low vision. I have went to many doctors. They tell me that I...
Kenny Treece
ktreece2003
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Oct 10, 2007
4:22 am
9398
Kenny: Google RP International -- or just RP. You'll get tons of info about RP. Peg ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~* "Somebody has to do something,...
Peg WC
cherokeebike...
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Oct 10, 2007
11:57 am
9399
Kenny, Go to: http://www.blindness.org/content.asp?id=45 (copied in part below) What is Retinitis Pigmentosa? Retinitis pigmentosa (RP) refers to a group of...
Michelle Harper
harpermo2002
Online Now Send Email
Oct 10, 2007
3:36 pm
9400
Thanks for the information, Michelle. Kenny ... From: Michelle Harper To: retinitispigmentosa@yahoogroups.com Sent: Wednesday, October 10, 2007 10:36 AM ...
Kenny Treece
ktreece2003
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Oct 10, 2007
9:14 pm
9401
Hey Mark. Don't apologize for sharing such useful and personal experience with fellow members of the group. Many of us are retired on disability, in between...
Ian Foley
ianfoley206
Offline Send Email
Oct 10, 2007
11:54 pm
Messages 9370 - 9401 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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