By Ben Hirschler Wed Aug 1, 2:25 AM ET LONDON (Reuters) - The ability of zebrafish to regenerate damaged retinas has given scientists a clue about restoring...
Hi, saw this yahoo group through John Wenberg's Retinitis Pigmentosa Page. This is going to be a long post. Some of you will not like this post but please...
Hi A: I'm sorry about your diagnosis. I'm seprised that, given your symptoms, you weren't diagnosed earlier. Those are all typical signs of RP and RO is not an...
hi, i'm 60 years old and am just now losing the rest of my sight. i was 27 when i was told i had rp, i learned braille, am learning mobility now sell avon and...
Hi, I feel your pain as I was also just diagnosed 4 months ago and had the same symptons you have of tripping, etc. I think it would be a good idea for you to...
hi, I am so sorry to hear about your struggles and your diag. I have known since I was 3 that I had RP and at 9 that I have acute glaucoma, but I just want you...
Hi A, It is rough when we first find out we have RP. This site will be a lot of help and info for you. I just found out 2 years ago That I have RP and I am 51...
http://www.jwen.com/rp/rp.html here you go :) ... From: susie33410 To: retinitispigmentosa@yahoogroups.com Sent: Wednesday, August 01, 2007 3:07 PM Subject:...
I would just like to thank all of you for all the encouragement and prayers especially to Peg, Barbara, Allison, Millie and Liz. You're right Peg, in some...
Hi, I'm in the same boat as some of the newbies to this too. I found out my RP about 8 months ago. I think, at times, it's more devastating then a cancer...
Hi, I go to the Cleveland Clinic about once a year to see DR. Rockwood he is a glaucoma specialist and then I see some of the other guys I had those same tests...
I don't know if you are a parent or not, but the love that you feel for your children is something that is indescribable. Before having children, I had no idea...
WHitney: You wrote so beutifully about your mother's experience. Would you mind if I posted this on my wensite? Listen... I've always known I had RP and knew...
i sure enjoyed both mother's storirs. i'm a mother of 4, 1girl 3 boys, none of my children have rp. but i do and so does my baby sister. she is totally blind...
Barbara, Learning to play the piano? How cool! Right on :-) Peg ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~* "Somebody has to do something, and it's just...
Hi, I loved all the mother stories! They really make you stop and think that in many ways we are lucky it is not something worst! Thanks for sharing!!! Barbara...
Hi, It's really great to have a group like this, knowing you're not alone. I couldn't share things like this with anyone close to me because I know they...
Hey hang in there eh. I've had my RP all my life, just didn't realize it until I was in my 20s. I was in the military and couldn't see in the dark, went to a...
Hi. I have a question for anyone who can answer and relate this problem as I do. I've been diagnosed with RP since '97 and can't see in the dark and even...
Hang in there. I went through the same emotions when I was diagnosed 2 years ago. At the time I had a husband and two beautiful, very young children. Trust me,...
Tracy, yes my sister did, she would even make a grocery list and send her husband. the only place she went was to chruch. i had a bad event happen to me when...
Dear Tracy Sometimes its hard for our loved ones, family members, or even friends and significant others, to accept we need to make progress when we are ready....
Barbara, my husband is very supportive, no doubt about it. We had a long talk this morning after I wrote this email. I guess I'm letting RP and the ...
Thank you for your advice, Launa. I did have a talk with my husband this morning. I told him I do sometimes feel like I'm a burden to other people. I have...
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rp is a hard thing sometimes. i didn,t mean to sound like i have it all together, i still have sad days but i've learn to not stay there. but i've known i had...
find a vo rehab where you live and they will get you a white cane and find you a teacher to teach you to use it. also a good thing is the hadley school for the...
Those on this list know -- I'm a big advocate of blindness adjustment training. I realize it takes a long time and a level of acceptance of the disease we have...
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