I am too glad to subscribe the group I have RP so I want to be in touch with other people who have RP and also with the doctors who are involved with that ... ...
Welcome to the group :-) We all understand and are dealing with RP too. Peg ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~* "Somebody has to do something, and it's...
Has anyone ever heard of having corneal fuchs dystrophy with rp and does anyone have these two diseases together. I feel very alone.I am trying very hard to...
I have RP and something I just developed about a year ago -- epitherial basement membrain distrophy. It's a breakdown of the cornea's thin outter layer. We've...
Welcome, It is helpful to have others to ask who share this condition and the doctors that are trying to treat it or cure it. Does anyone know who is foremost...
Hi Peg, You're an assistant manager and radio host yourself? Interesting! I don't know if she can syndicate it because it's Internet radio but I'll give you...
Launa, Yes, keep tuning in. She's going to have all kinds of different guests. I'm going to have trouble keeping up with this group -- I can tell already....
Hi Millie, So nice of you to post. Must be tough having raised four children. On the other hand, they're there to help now that they're grown up. My sister is...
Hey, I just checked out your websites. Should have done that before. They're awesome. Wonderful that you're such an accomplished writer. I've written two...
Sigrid Thanks :-) And, I'll get to emailing you about your sisters show soon. There are ways she can record it and I can have it run on a CD at some timeslot. ...
hey everyone, this is barbara ijust turned 60 june 30 ann. july 4 will be 22 years. sight is down to 1% not much huh have a blast of a 4th everyone Mildred...
Babara 1% is better than none :-) I'm down to 3% myself. You have a great holiday too! Peg ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~* "Somebody has to do...
Barbara, 1% is really tough. Hope you have a lot of good support. It's great to have this group too :-) Best, Sigrid ... will be 22 years. sight is down to 1%...
Hi Peg, I've been talking to Kristin about you and she's really excited about the prospect of syndication. She discussed it with her guy at Big Media and he...
BUSINESS BUSINESS PROCESS MANAGMENT TRICKS AND TECHNIQUES OF BUSINESS ALSO NEW INVITATION FOR BUSINESS. BUSINESS PEOPLE MAY ENJOY THE BENEFITS OF THESE...
Can anyone explain why one would have flat ERGs and still be able to see quite well except for lower peripheral vision. My goldmann visual field test showed...
HI, TO THE BEST OF MY KNOWLEGE ERG MEASURES THE LIGHT THAT THE RODS AND CONES ARE RESPONDING TO IN THE RETINA. MY SON HAS SEVERE NIGHT BLINDNESS AND HIS ERG...
Can your son see well otherwise? ... AND CONES ARE RESPONDING TO IN THE RETINA. MY SON HAS SEVERE NIGHT BLINDNESS AND HIS ERG RESPONSES ARE VERY FLAT. ... of...
Liz: I also have a flat ERG. My visual acuity is very good, but my visual fields are less than ten degrees. My retina does not respond when light is...
liz Marc G here. I do not have an answer to your question, but I do know what you mean. I was diaged some 20 years ago. from the start, I had no idea what...
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Jeni, I have RP, I've had cataracs removed, and I believe I have Fuchs (corneal dystrophy). I say "I believe" because it has not, as yet, be diagnosed. I'm...
PALMITATE CAN BE USED FOR RP ... Get the freedom to save as many mails as you wish. Click here to know how. [Non-text portions of this message have been...
What is Palmitate? What does it do for you? www.hometown.aol.com/Tracylynn124/Welcome.html ************************************** Get a sneak peek of the...
Hey guys, Hope everyone is doing well. I have a question...I found my dad's old slate and stylist. I also found his braille typewritter. Anyways, are these...
Get £70 to participate in a interview about Macular Degeneration! Dear Friends The Patients' Voice would like to take this opportunity to invite you to...
-Good question Jana, and neat items to come across. To answer your questions...... Both are "old school", but yet both are useful around the house and for...
I'm just about realizing at this point that I can no longer function as effective and efficient doing things alone. I was diagnosed with RP when I was 14 but...
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