Hi Steph, welcome..very friendly group here. You are really young to have started that...sorry to hear it. My specialist is Dr. Ali in Etobicoke Ont....I...
Thank you Eve, and I'm sorry to hear about your eye issues. Yes, I am very young to have this, and since it does not run in my family at all, the doctors are...
Hello, I just joined this group and would like to know how are people with RP selected to take part in trial studies. I am 57 years old and have had RP since...
You might look on the website for the foundation fighting blindness. Each trial has certain vision requirements. Lp dqlady1949 <dqlady1949@...> wrote:...
Well Steph I didn't mean to send it in here at all Ooops! But Anyone who wants to join my Facebook or even my My Space you are more than welcome! And to...
Definitely look at www.clinicaltrials.gov which is the best single database for trials on humans in the US. Federally funded trials are usually required to be...
Yes, I do follow that....seems like you should be drunk most of the time
ROFL...just kidding..does seem odd. Did the Dr give any explanation for
that i.e.:...
Eve, thanks for making me smile so early in the day! :) No, my pressure is fine every time I have it checked with the specailist & my normal eye doctor, AND...
Dear All, I have a friend who has a wife with RP. In Turkey, finding source about this disease is hard so I hopre I can find some answers that my friends have...
Steph and Eve, You likely hit it on the head re: being drunk and walking better. Given intoxication causes impairment to the normal depth and sitance...
Wow! Thanks Ian...I'm going to trade you for my Specialist...thanks again.
.helps me, don't know about Steph. Too bad we can't find a good way of
making it...
Ian, thank you so much for the explanations & suggestions! I'l for sure look into some of them, and pay a little more attention to what's going on around me....
I agree Eve, it did help, and I wish there were a way to stay "dunk" without the lasting effects on our bodies. *sigh* Maybe we should look at making a new...
Hi Mert, I don't know the answers to a lot of your questions, but I do know that your friend should definitely NOT take Vitamin A while she is trying to get...
Hi gals, I am 35 years old and went to a high risk pregnancies clinic to check on the risks of losing more vision due to being pregnant. The group of doctors...
Dana, I am 32 and have four children. The oldest is almost 6 and the baby is 10 months. I did not notice any vision loss during my pregnancies. However,...
I am a 32-year old mother of four. My children were born within five years and I saw no progression of my RP. However, I have heard of one woman losing vision...
Thanks Dana for your reply ... From: Lori Donguines <lori_donguines@...> Dana, I am 32 and have four children. The oldest is almost 6 and the baby is 10...
hi i have r.p. i have known since i was 27, my baby sister is blind from r.p. wanted looked up with people with r.p. to get helpful hints barb ... The fish are...
My name is Peg. I'm originally from the NYC area -- but live in northwest PA nowadays. I've been legally blind from RP since I'm 19 yrs old. In my family my ...
It depends on where you live. Each state has services for the blind, but they go by different names. Is your son in college? If so, he should contact the...
Most blindness services run by the state are geared toward vocational rehab. To that end, they do provide personal adjustment to blindness training -- so the...
*PLEASE SUPPORT UNITE FOR SIGHT BY VOTING ONLINE. PLEASE FORWARD THIS MESSAGE WIDELY AND ENCOURAGE OTHERS TO VOTE, TOO. VOTING TAKES LESS THAN 1 MINUTE AND...
My name is Trudy, aka pitrat. Been on these sites for about 4 years, more or less with work, then school and now working for the Spa where I just finished...
Sounds like he just needs to come to terms with it. Youre perfectly able to take care of yourself and he just needs to relax and let you do that! My husband...
Hi Trudy It's not fair (in mjy opinion) for him to want you to be DEPENDENT -- on him or anyone. Childen are dependents -- not adults. Doesn't he want you as...
my husband is sighted and i have rp. we have been married 22 years when he ask me to marry him i told him that i had to do my own things and i carry him to...
