HI thushar, I am very happy after reading ur mail. and i am very thankful to u for mailing the information which is very useful to RP patients, i am already...
hello friends, its good to see so many friends responding to the information i shared with them. well following are the expenses i made during my 23days of ...
For years my dad has had RP, diagnosed when he was 14. I have two older sisters, of which two of them has it as well. I have the angiography this coming...
Hello Jennifer, I have Usher too...my name is Janet Marcous I live in Gloucester MA. I've introduced myself before to this list, but then I've not been...
JKM
jkmocean@...
Dec 2, 2006 2:37 am
8423
Hi Janet; I think that if they had a cure any one of us who have this disease would go where ever they could just so they can see. I went far to get my...
After reading Tushar's report I have applied for a leave, which I can see wont come before Feb/March. I have read Sundar's report too a few months ago, who ...
Hi Thushar, I am very thankful to you for your detail mail for the expenditure and the treatment as well. I think even the doctors in that hospital doest tell...
Hello all, I've been a member of this group for a couple of months and have decided to throw out a situation that I have been experiencing since late summer....
HI Frank, i have similar problems... but mine is not like clock work like yours.... mine i can directly relate to my CME, cystoid macular edema.... i have...
for those who are interested in the details of Dr. Alfred T. Sapse's (stemcellpharma inc.), here is a audio interview with him where he outlines his ...
Daniell, What does trouble with your back or shoulders have to do with this? I don't have W/O but do have back and shoulder problems. Lois ... From: danielle...
jumping in on the subject of problems with back, neck and shoulders.....I'm having lots of that, but lean towards excess computer time - my range of sight is...
Hi Frank, I too get the w/o but not like that. I often get this when I sneeze, laugh or exery energy like running down the road with my kids etc I do have...
Danielle, Thanks for your response. First of all, I had cateracts, but they were removed and I now have lens implants. As a matter of fact, when the...
Hi Lois, i have the blessing of having hypermobile joints (extreme flexibility in the joints)... this affects half the population to some degree... mine are...
Danielle I am not sure if Yoga is catching up in Australia yet or not. But am pretty sure a 20-30 minute breathing exercise (its called Pranayam in Yoga),...
In Australia skilled migration is one of the best opportunities for skilled workers to gain entry. Under the Australian skilled immigration program, skilled...
Hello, I have talked with Dr. Sapse on the phone and with his staff by email. The cost of the procedure is about five thousand dollars. They are having about...
Steve Crews
crewsy@...
Dec 5, 2006 9:13 pm
8437
Want to learn 123 of Homeopathy? Join Us http://homeojunction.blogspot.com/ ... Find out what India is talking about on - Yahoo! Answers India Send FREE SMS...
Hi Steve, Best of luck. Keep us informed. I thought I remembered reading on his website that the procedure has only been performed on 2 RP patients. So I am...
Hello Mark, It's my understanding that there have been about 40 RP related procedures done. I guess my next move will be to find out exactly how many and try...
Steve Crews
crewsy@...
Dec 6, 2006 12:26 am
8441
I also spoke with him for awhile. While I didn't understand much of why his procedure works, he claims it does. I recall him saying he did it to two RP ...
hi, I haven't posted in a long while but when I got the post about this procedure I printed it and gave it to my father who also has RP, but is much worse than...
Hello. I am new here. I have a couple questions. My son is HOH and was diagnosed with RP. Now they are sending us to an Usher's Syndrome specialist at the...
I have emailed the Foundation Fighting Blindness to find out what information they have on Dr. Sapse. It sounds so encouraging and promising but yet I hate to...
I posted a note earlier about this but it seems to have gotten lost somehow so I'll try again. I haven't spoken with Dr. Sapse and don't have any plans to, but...
Hello Teresa. My name is Heather. I have RP myself, and I also have a son with Autism (no RP as of yet). I have had the ERG test done to diagnose my RP. It...
Hello, I have just started JAWS for my screen reader. I have been using ZOOMTEXT I like the reader for JAWS but I like the ZOOMTEXT magnification. I don't...
Steve Crews
crewsy@...
Dec 8, 2006 1:21 am
8448
HI Steve, not sure if you are aware... but zoomtext also has a speach component to it.... not sure if the two programs are interchangable Danielle ... From:...
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