Hello Naresh. Thanks for the good news.Will definitely call Mrs. Prasanna and collect the details of the camp. Smita. ... Find out what India is talking about...
My oldest son is 13. He was diagnosed with retinitus pigmentosa during a routine eye exam last week. We were simply there to get contact lenses for my sweet...
I'm JP and was diagnosed with RP about 7 years ago. I'm 19 now, in college in Boston. My eyesight has not declined enough for me to change the way I live,...
Hi JP, my name is Danielle, i am 28, and was diagnosed when i was 20... i was in my final year of my first degree, and like you often lay awake thinking about...
Frances, I am so sorry for your news. My son, Grant, age 8 was diagnosed in November with RP. I can relate to all your feelings. We are in Arizona and our...
Hi I am new to this but I have posted once before. Just wanted to say a few things I guess. Well I am now 29 almost 30. i was diagnosed when I was 20. I have...
Hi, My son was also diagnosed at 13, we also have no family history of rp. It was a terrible jolt to our family. We are from pennsylvania, however we are...
Dear Karen, I hear you and I completely understand. I am a working mom. I do not drive and I know how tough it is to have children and to want things for...
Hey Karen.... I do hear you... And you make a ton of sense the problem is it is tough to have that confidence.... In your self as well as in others to A)...
Hello: I was diagnosed with Retinitis Pigmentosa when I was 14. There is no family history of the disease as well. The ERG will help confirm what is going...
Hi folks, I found two interesting articles, their abstracts are below. ________________________________________________________________________________________...
Dear Karen, Hi It is true that there is some deficency in our daily rutine works due to RP but it is not because we don't have ability to do things but it is...
I am clinging onto every word that is written in this group and appreciate the Moms that wrote back to share their similar stories with me. My heart breaks...
Hi, i am so sorry to here about your son. i am now 29 and have RP. I found out when i was 20, and i was always night blind. i guess I just wanted to write and...
Frances, We have taken our daughter, age 6, to be tested and so far there is no sign of the disease. Our other son is 3. They saw a pediatric opthomologist....
Hi all. My name is Angel and my 3 1/2 year old son has been diagnosed with RP, his great uncle on his dad's side had this but we only knew he was blind and not...
Frances, Your son is the age that i was diagnosed with this disease. I am now 20 years old and in college. My question is, how is your son's eyesight doing....
HI Frances, I am always sad when i hear of another diagnosis... I am 28 and was diagnosed when i was 20. i have usher syndrome, hearing loss plus rp and i am...
Well being diagnosed for RP for 4 years I want to know if anyone has any information of the chances of it being genetic... and is there a cure for genetic...
Amey, hi my name is Danielle. RP, in 99.99% of cases is a genetic inherited condition. sporadic sponataneous "mutations" do occur. there are a variety of genes...
Dear All, this might be useful for you and your family I have already use it and prove that my family health is now very much improve,no more headache, no more...
HI, I have not posted to this group in so long, but felt compelled to the point of urgence to respond to you. I have RP and was diag. at age 3, my children so...
Hi my name is jessica and i was dignosed with rp when i was 13 or 14 i dn't remeber. I was very scared and upset when i found out. I am still scared about my...
Hey Jessica my name is Matt i was diagnosed when i was 10 now I'm 20 and facing the same sticuation as you I can't drive, but some how mangage to have a fun...
You are the first person I have made contact with that has glaucoma and cateracts with RP - how old were you when the glaucoma was discovered? Do you have...
Thanks Danielle, We have our lines of communication wide open with him - he knows he is the best gauge of what he needs and doesnt need. I certainly do not...
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