Hi Samir Could you pls xplain more on the Cuban surgery ? Am back from a Microaccupuncutre treatment yesterday itself. Currently replying all the pending mails...
Rajesh I am glad you are feeling better and lok forward to when you get your results to see how much improvement there has been. will keep you in my thoughts...
Hi Everyone My bf recently went thru some tests and was told that he has the slow progressive kind of RP. I believe that the rate of RP does not change ...
In our case, being with my 6 yr old son diagnosed with RP at age 4, I'm not too sure if there is really a rate in which RP is affecting him. I know that some...
Hi! The link to more informations is: http://www.sld.cu/instituciones/retinosis/indice.html If you can't understand spanish, please ask me for help. You can...
Hi I ever work in low vision center service fo 7 years ( 1999 -- 2004) in Indonesia. Did the doc say as a fix diagnose to your bf has RP ? Thats right RP can...
Hello~ I've still not mastered the immediate step count BUT I always request "well-lit" for our restaurant tables... The "new" challenge is for my husband to...
I'm thrilled for you that your spouse is naturally supportive~and perhaps I am as well but I don't usually feel like I'm doing the right thing. My husband is...
How best to adapt would depend a lot on what vision he has. If he really has very little, then O&M training and a cane might be the thing to do. If a...
Speaking of restaurant, I went to Chinese buffet restaurant for a birthday party and I've been there several times. I had to go to the bathroom, my husband...
Hi Madeleine To me it sounds like you are doing a great job in the way you are helping him... We men are sometime tough to help as you know we are famous for...
Hey Madeleine Bathrooms are tough... There are often ether as dark as the Restaurant you are in so they are tough to navigate or they are blindingly bright...
I have also been diagnosed with slow progressive RP at the age of 48. When I asked my doctor how long I would have before I was legally blind he was vague and...
Today my sister who will be 58 in November was told by her eye doctor he thought she might have RP..........I was diagnoised at the age of 42 I now 59 and I...
Hello Everyone!!! I know its been quite the spell since I last posted. I was in a relationship for eight years and it fell apart so, I had to take some time...
... some ... for the ... alone. ... whole ... what ... each ... suffers ... because I ... better ... through ... Hello Everyone! I sure miss alot of what is...
Hello Sarah, I apologize. This isn't my main email address, and I haven't checked it for a long time. For future reference I will give you the email I check...
Todd when you get some information from your mother could you forward it on to me? My oldest is 15 and showing signs of RP but will not know until her dad who...
not sure on this one... my partner usually walks me to the restroom doors and waits for me... as restrooms are generally better lit than the resturant.......
Hi all, it's hard to tell how fast RP will progress. It's different in each person. I never noticed I had an eyesight problem until in my 20's in the military...
hey all , so if u dont remember me i am 24 years old from isreal . i was diagnosed with rp when i was traveling in the states and i lost my glasses , so i went...
Hi, Good luck and let us know what you think. Best wishes, Mark ... From: unkn0wn1982 Date: 08/08/06 06:30:44 To: retinitispigmentosa@yahoogroups.com Subject:...
Hello, I posted 7 months ago that they thought my son had RP. Today we got the diagnosis that he does have it. While the test was abnormal, he has no outward...
Susan, They suspected this in my son at age 13 and he knew then. But it was quickley dismissed. So now at 15 1/2 he heard all the news as the doctor spoke to...
By the way, the specialist did say that 15,000 iu of vitamen A would slow the progression of this disease. He was very certain on this. Said not to fall for...
Hello, It's true that there are some positive things going on as far as RP studies go. I am 52 years old and was diagnosed with RP when a teen. I was able...
I'm sorry if re-posting this here is wrong. I just didn't want it to get lost in the shuffle of posts. I belong to another support group soI know this board...
Hi everyone, I am 21 years old and I was just diagnosed with RP about a month ago. Ever sense I was a young child, I have had poor vision. It wasn't until...
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