Hello Brandy~ Forgive my frankness but how can you test a baby that young for RP? I've been told that my nephews whom are 51/2 yrs old can not be tested til...
Hi, you would be able to examine the retina for changes... in this age group i am guessing it would be done under anaestetic.... (new borns can be screened for...
hi, just reading the recent posts about babies being diag. with RP. I was diag at age 3 but only because I was being treated for lazi eye and was under...
My experience and feelings are completely the opposite. My parents were totally open and honest with me from the start (age 6-7), and expected the same from...
folks. I was told injecting with injectable Vitamin A works miraculouly in curing or curbing RP for some cases. Out here in Malaysia, Injectable A is rare....
injectable forms of vit A are not that easy to come by.... and as injecting vit a for rp suffers has not been a recommened treatment ( mega dosing oral forms...
thank you for you story ... my son has very poor vision and worst at night....he is losing his perifule vision.. he is have a very hard time .....he has had...
hello, thanks for you thoughts .. my son has very poor vision he has no night vision and he is losing his puerperal vision... he is having a tough time ..we...
Hello Pam, Sorry that it has taking me a while to reply to your email. I started school this week and I been a little busy. Well about me I am 31 years old...
Patricia MarcG here in Los Angeles. I have RP and run a small group on the west side. where abouts in Ca are you? Thanks for everything Remember To Tolerate...
hello Barb.. nice to here from you ..who in your family has rp.... he has very poor vision and even worst at night he is already losing his side vision ...he...
Let me introduce my self my name is Debbie I live in Burnaby B.C. two years ago my RP became very active I have no night vision at all. I had a hard time...
HI, im not sure what you vision is like... but i find that a magnifyer will help a little with fiddly eye make up... there are magnifying specs that you can...
Tom from Ontario, I have no night vision and limited side vision but life goes on. Great to have support from family and friends. Nice to hear from you and...
Debbie Welcome to the RP Family. I am a sighted spouse. You really need to grab the whole family and head down to Los Angeles this summer. The RP social...
Hi My name is Nannette and I had been reading your posts for sometime now. Becky, ozgirl, had introduce me the group back in Janurary. I couldn't bring myself...
Hi Nannatte~ My name is Michelle(Chel). I'll be 37 on the 9th. I must say you're a very strong person. I think that it takes alot of strangth to overcome so...
Welcome to the group Nanette. I know how you feel. Every time I think things are going good something else comes up. Chel, I hope you don't have to have back...
Hello there! Welcome to our family. We are here to support you and listen to the tribulations of multiple disablities. I am the sighted spouse to Jim and...
It's Debbie stopping by to say hi to anyone new. Plus I have alot of questions that need to be answered. My RP synmptoms are changing and my eyes appear to be...
Lois~ Thank you. I live in Findlay, Ohio the same city Ben Roethlisberger, the Steelers quartback. Yes Carolyn Ben City does sound like a ointment lol. ...
OK ALL!!! Let the count down begin! The RP social 2006 web site is up and running. Get your registration forms printed out and send 'em in as soon as...
More info how much all together I don't have a lot of money and other Rp sites can I get from fellow Rp people I know there is many How do I get to LA is there...
Bill, I think you missed understood me, my parents were totally honest with me. matter of fact I grew up with a grandma nad an aunt who were blind from Rp and ...
I found out when I turned 8 and I ma now 32 ... From: retinitispigmentosa@yahoogroups.com [mailto:retinitispigmentosa@yahoogroups.com] On Behalf Of Allison...
Hey guys here is one no one has mentioned yet!! How about free running little kids when you are walking in public !!!! Thanks for everything Remember To...
I am guessing with all the other information we were trying to get in there the obvious escaped us!!!! This is being corrected. Thanks to all our eagle eyed...
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