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retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases
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Messages 6209 - 6238 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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6209
Bill, How bad is your hearing and will that degenerate as well? Do/did you have periods of time where your ears hurt badly? My son has struggled in the past...
Sarah Williams
farmsarah
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Jan 1, 2006
6:34 pm
6210
Hello All! Hope everyone is having a good New Year. Quick question...does anyone take synthroid? And do you think it affects your vision? For example...I...
lori mandalas
lorimandalas
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Jan 1, 2006
7:37 pm
6211
Hi Marc I live in Ontario Canada I am not familiar with with the term of the Question you Asked me What is my st TWS? Marc Gerberick <mgerberick@...>...
Bruce Ward
brucewardbiz1
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Jan 1, 2006
9:19 pm
6212
hello sarah well I do at times get an hearing infection and take amp to get rid of it but I can hear on the regular phone because of my in the ear hearing aid...
Mr. Bill
mrstoneman50
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Jan 1, 2006
9:30 pm
6213
Hi everyone. I have a letter from the eye dr. stating I am legally blind. Can I get disability based on this letter? Thanks for any info. Dianne...
thorntondi61265
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Jan 2, 2006
4:41 am
6214
Yes you can Dianne, and they will go back and pay you from the time you became disabled. Kate ... From: thorntondi61265 To: retinitispigmentosa@yahoogroups.com...
quadmomkate
quadmomkate1971
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Jan 2, 2006
4:45 am
6215
no I don't believe so more importantly it has to be from an retina specialist because more and more claims are applied from people with nno disability ok? so...
Mr. Bill
mrstoneman50
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Jan 2, 2006
4:48 am
6216
To get Social Security disability insurance payments, you must have worked in jobs covered by Social Security for long enough, and you must be unable to...
Bill Barns
wwbarns
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Jan 2, 2006
5:17 am
6217
Hi Diane, It depends on what kind of "disablility payment" you are referring to. I just retired a few months ago on disability from the Navy. The federal...
Mark T
blindsquid
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Jan 2, 2006
7:30 am
6218
My experience differed from everyone else's. I filed for Social Security Disability in Feb. 2002. I finally had to quit work in May 2002 because my job of 13...
Jim & Trish
bigeyes11
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Jan 2, 2006
7:52 am
6219
Trish, Your experience IS very similar to mine except that SSA put you thru more hoops. But it is true w/ anyone that you are not considered disabled until...
Mark T
blindsquid
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Jan 2, 2006
8:08 am
6220
Thanks Mark for the explanation. I'll go and check out the site again. It's been a long time since I've reviewed it. Happy New Year to all! Trish ... From:...
Jim & Trish
bigeyes11
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Jan 2, 2006
1:13 pm
6221
It is a start to have a letter from your doctor. Social Security may send you to a doctor of their choosing, they will pay and pay mileage too. Paula [Non-text...
Pjn0110@...
pjn01102000
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Jan 2, 2006
1:34 pm
6222
Hello Dianne, I am disabled since 2000 due to RP and other stuff. All you need to do is to file Social Security and the best thing to do is have your doctor...
Tracylynn124@...
tracylynn12412
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Jan 2, 2006
4:15 pm
6223
Bill , How long have you been dealing with Usher syndrome? Does your hearing degenerate or is it more that a lot of noise hurts your ears? My son complains at...
Sarah Williams
farmsarah
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Jan 2, 2006
4:30 pm
6224
Jan 2, 2006 First of all is there away to enlarge the typing on this screen? My question is for future referrence..........If it ever comes to were I need to...
kathryn hut.....
khut47
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Jan 2, 2006
4:41 pm
6225
Good luck Trish. BTW, I forgot to mention that it is VERY possible you got bad information from a SSA employee. They are notorious for that. I had to...
Mark T
blindsquid
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Jan 2, 2006
7:49 pm
6226
good morning sarah! well I've been wearing hearing aids since I was about 6 or so and yes background noise's is a big factor but nowadays hearing aids for the...
Mr. Bill
mrstoneman50
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Jan 2, 2006
8:14 pm
6227
Sorry Bruce. That was a BIG typo I guess. I ment to ask what the status of your RP was. LOL Thanks for everything Remember To Tolerate others, care for...
Marc Gerberick
mgerberick
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Jan 2, 2006
9:18 pm
6228
That's soooo true. I've had to correct my SS case worker several times because of inaccurate info. Thanks again, Mark. Trish ... From: "Mark T"...
Jim & Trish
bigeyes11
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Jan 3, 2006
12:00 am
6229
Hi this is all new to me i have just found out that my son who is aged 10 has got RP he has got 15% vision in his right eye and 20% in his left.I have been...
crazycooter1368
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Jan 3, 2006
2:33 am
6230
hello I know that another good way for research is on www.google.com on this place in it retinitis pigmentosa ane wow alot of stuff came up on this rp...
Mr. Bill
mrstoneman50
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Jan 3, 2006
2:57 am
6231
Hello All. I am new here. I live in a small village in Ohio. I have been retired on ssdi for over 2 years. I live alone and of course can no longer drive. I...
Suz Brown
sting6597
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Jan 3, 2006
9:21 am
6232
Susie This is a problem that most of us face. If you don't live in a large city where there is public transportation you really have to work on other options. ...
Pjn0110@...
pjn01102000
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Jan 3, 2006
1:41 pm
6233
Hi Suzie. That is terrible to hear about that. I'm sorry. Listen, if you can't find anyone to help you.....how about trying to contact the Senator office...
Tracylynn124@...
tracylynn12412
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Jan 3, 2006
4:41 pm
6234
Hello Suzie I am aware of the transportation issues we all have with this RP life Style. Check out to see if there is a Para Transit service. Contact the...
Marc Gerberick
mgerberick
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Jan 3, 2006
7:59 pm
6235
Diane That letter is a start! In order to receive SSDI, you must first be unemployed. Then take that letter to the SSA office near you. They will give you...
Marc Gerberick
mgerberick
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Jan 3, 2006
9:35 pm
6236
Suzie, What town in Ohio do you live in? My entire family is from there-and it's a big family! Sarah in Phoenix Suz Brown <sting6597@...> wrote: Hello...
Sarah Williams
farmsarah
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Jan 4, 2006
1:35 am
6237
Bill, Who diagnosed your syndrome? An ENT? I will make an appointment for him soon. Is it pretty easy to diagnose? Thanks so much for your information. sarah ...
Sarah Williams
farmsarah
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Jan 4, 2006
1:46 am
6238
Hi Sarah, I am sorry to hear about your son. I have been watching this conversation between you and Mr Bill over the last few days.... I too have usher...
danielle verhoeven
daniellemver
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Jan 4, 2006
4:57 am
Messages 6209 - 6238 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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