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retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases
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Messages 5893 - 5922 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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5893
Hi Everyone, I am not online here that often but I wanted to thank everyone for the sending the birthday wishes It was very nice of all of you John John...
beachbumjohninnj
beachbumjohn...
Offline
Nov 1, 2005
5:38 pm
5894
Hi, My name is Steve,I am a new member to this group. I am 51 years old and live in southeast Missouri. I was diagnose with RP when I was a teenager. I had to...
Steve Crews
sacdeving
Offline Send Email
Nov 3, 2005
8:39 pm
5895
Hi Steve my name's bill and I'm 55 years old and was told when I was 12 that I had rp as well I do have a 55% hearing loss. I know of no one having rp as far...
Mr. Bill
mrstoneman50
Offline Send Email
Nov 3, 2005
8:56 pm
5896
Welcome Steve! I'm glad you found your way to us. My name is Jennifer. I'm 20 years old and was diagnosed in March of '05 with Ushers Syndrome (RP + hearing...
Jennifer Sauceman
saucijen
Offline Send Email
Nov 3, 2005
8:59 pm
5897
Hi Steve Welcome to the RP list, I am Pam, the sighted and hearing wife of Jim, who is 58 and also has Ushers II. He wasn't diagnosed with the RP part til he...
WoodNRoses@...
woodnroses
Offline Send Email
Nov 3, 2005
10:14 pm
5898
Steve, Hi my name is Gary. I am 40 and found out that I had RP when I was 18, I am also deaf. Welcome to the group. This is a nice great bunch of people here....
gary shockley
naturewalk37
Offline Send Email
Nov 3, 2005
11:04 pm
5899
Great you have found us. Doesn't a computer and the Internet just open up a whole new world? I know it did for me a few years ago. Before then I didn't even...
Pjn0110@...
pjn01102000
Offline Send Email
Nov 4, 2005
2:18 am
5900
Hi Steve, welcome to the group, yep I sure love my ZoomText and don't know where I'd be without it. I've just recently started back to work, on the computer...
Barb Adair
barbrad2001
Offline Send Email
Nov 4, 2005
3:30 am
5901
Welcome I was disnozed at age 8 with Rp and I am now 32 if anyone whats to talk send me a private message\ ... From: "Barb Adair" <barbwire59@...> ...
Anthony Slate
anthony30maleny
Offline Send Email
Nov 4, 2005
3:34 am
5902
Welcome steve. I am 29 nurse and mother of three just recently diagnosed this year. you may also want to check out The Foundation for Fighting Blindness...
Becky Osborne
ozgirl1618
Offline Send Email
Nov 4, 2005
4:33 am
5903
hello to paula down in Mississippi! hope you're all getting your lives back as you once had it ok? we're counting on all of you to pull through this hurricane...
Mr. Bill
mrstoneman50
Offline Send Email
Nov 4, 2005
4:54 am
5904
Hi Bill, Thanks for the email message. Do you have a history of RP in your family? My mother had five sisters and seven brothers. Three of her brothers had...
Steve Crews
sacdeving
Offline Send Email
Nov 4, 2005
5:34 pm
5905
... From: Steve Crews To: retinitispigmentosa@yahoogroups.com Sent: Friday, November 04, 2005 11:33 AM Subject: Re: [RetinitisPigmentosa] new member Hi Bill, ...
Steve Crews
sacdeving
Offline Send Email
Nov 4, 2005
6:47 pm
5906
Hi steve no I do not know of anyone in my family tree that has rp of any...
Mr. Bill
mrstoneman50
Offline Send Email
Nov 4, 2005
6:53 pm
5907
Hi Steve!! Welcome to the group..Hope u have a gr8 time here.. Regards, Bhoomika.. ... Yahoo! FareChase - Search multiple travel sites in one click. [Non-text...
bhoomika bhagchandani
bhuumika
Offline Send Email
Nov 5, 2005
7:49 am
5908
Hello Everyone, I'm new to this group. My husband has RP-like symptoms, though never formally diagnosed. He has always had night night blindness and is...
educatorsinc
Offline Send Email
Nov 6, 2005
1:55 pm
5909
Hi Lisa welcome I think that perhaps most of us here would suggest a white...
Mr. Bill
mrstoneman50
Offline Send Email
Nov 6, 2005
1:58 pm
5910
Lisa How about a cane? Does he use one? It will alert other people and help him find curbs or other obstacles that are hazards to us RP'ers. Paula [Non-text...
Pjn0110@...
pjn01102000
Offline Send Email
Nov 6, 2005
5:02 pm
5911
Lisa, I think the cane is going to be the answer here. There are some night vision goggle that I've heard about, but not sure how much help they would be and...
Barb Adair
barbrad2001
Offline Send Email
Nov 6, 2005
5:12 pm
5912
Lisa Marc G here. My first thought.... ok.... My only thought is it is time to gry O & M training. I am in dthe same boat as he is, so I know. The cane will...
Marc Gerberick
mgerberick
Offline Send Email
Nov 6, 2005
8:28 pm
5913
Does anyone know a website where we could purchase canes and other supplies? thanks in advance Pjn0110@... wrote:Lisa How about a cane? Does he use one? It...
Liz Rodriguez
lgonzrod
Offline Send Email
Nov 6, 2005
10:16 pm
5914
Hi Marc, My name is Steve I just joined the group a few days ago. It's good to hear from and share thoughts with others with the same problems that I have. I...
Steve Crews
sacdeving
Offline Send Email
Nov 6, 2005
10:37 pm
5915
Liz Marc G here. Maxi-aids is one place that has a lot of things for VIPs. California Canes is where I buy my canes. Thanks for everything Remember To...
Marc Gerberick
mgerberick
Offline Send Email
Nov 6, 2005
11:39 pm
5916
Hi good to know this but you can get them from the Commission for the Blind and it's in almost eery state as wellit's worth carrying a cane because once I...
Mr. Bill
mrstoneman50
Offline Send Email
Nov 6, 2005
11:43 pm
5917
Steve Welcome to the group. Where abouts do you live? O & M is oriantaion and mobility training in odther words cane training and just learning to get ...
Marc Gerberick
mgerberick
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Nov 6, 2005
11:47 pm
5918
Hi Marc, Thanks for the welcome. I also thank you for letting me know what O and M is, I was unfamiliar with the term. I am from southeast Missouri, about 60...
Steve Crews
sacdeving
Offline Send Email
Nov 7, 2005
1:11 am
5919
My favorite site to purchase low-vision aides is: http://www.lssproducts.com/stores/1/index.cfm I have bought talking watches, audio tape players and other...
Mark T
blindsquid
Offline Send Email
Nov 7, 2005
5:03 am
5920
Hi everyone, I am looking for a cell phone that is visually impaired friendly. My phone as well as any I've seen are very difficult for the visually impaired...
Steve Crews
sacdeving
Offline Send Email
Nov 7, 2005
6:12 pm
5921
Steve Every state has a Depart. of Rehab and they will assist you in finding where to go. Here in Calif they sent a trainer out to me. So check them out ...
Marc Gerberick
mgerberick
Offline Send Email
Nov 7, 2005
8:39 pm
5922
Hey Marc, Kurlzweil 1000 is a reader, magnification software that is used with a scanner. I am currently learning to use it, so I can't realyy tell you all...
Steve Crews
sacdeving
Offline Send Email
Nov 7, 2005
10:33 pm
Messages 5893 - 5922 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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