Hello to one and all. James here from the west mids UK. I was diagnosed with RP when I was 21 but always knew I had problems from being a small child, in my...
Hello to one and all. James here from the west mids UK. I was diagnosed with RP when I was 21 but always knew I had problems from being a small child, in my...
Hello there! I am one of the sighted spouses around on the lists. Jim is 58 and has about 5 degrees of usable vision left. He is still working but no...
JIMMY, I AM THE MOTHER OF A RP SON. BUT I AM ALSO A SISTER, A COUSIN, AND A NIECE TO OTHER RP RELATIVES. MY FAMILY HAS THE X-LINKED RP. WHAT THAT MEANS IS...
HI JAMES (JIMMY) THANK GOD - ANOTHER BRIT ! I'M 40 YEARS OLD AND HAVE KNOWN ABOUT MY RP FOR ABOUT 4 YEARS OR SO. I AM FROM AIRDRIE, JUST EAST OF GLASGOW...
hello james i read your email the other day and didn't have time to reply my cousin is here and watching my kids for awhile so i have a minute to type. first...
Hi James, My name is Jennifer and I was daignosed in March of 2005 with Ushers Syndrome Type 2. I have RP and hearing loss. I am only 20 years old and it was a...
Thanks for listening guys I really appreciate it, I've added you to my msn jen, it would be great to talk to you or anyone who suffers, or is effected by RP. I...
Jen, My name is Greg, and I just wanted to say that what you had to say to James was remarkable! I was diagnosed with RP back in 1981 and I remember how...
Not a problem. That is what we are here for. :) I got your message, but I was at lunch and you were gone by the time I got back, so I'm sorry I didn't reply! ...
If you have a vision impairment this is a awesome hobby to take up Handihands is for people that are blind but its important to belong to a local club if...
More info why you should join and they will send you local clubs you should join Why should you join? Handi-Ham Services - Member dues are $10 U.S./year for...
I am new and want to say hi. My name is Jenn, I have Retinitis Pigmentosa. I am 27, have 2 young children, and line in Millville, NJ. I am currently getting...
I see you been through alot and your staying strong. I will pray that everything goes well for you! I am interested in planning an outreach program also and ...
Welcome Jenn This si a great group for support. My kids were older when I was diagnosed with RP five years ago. Now the youngest is a senior in high school....
Hello Jenn. :) I'm Jenn too and I'm 20 years old. I was diagnosed with Ushers Type 2 in March of '05 (hearing loss + RP). I don't have any suggestions or words...
Hi Jenn My Name is Launa and I too have RP. I am a Mother of three daughters, and was diagnose when they were young. I have had it now for 10 years and so my ...
Jenn S, Hi. My name is Gary. I am deaf. When one of my neices was young her mother tried to tell her I am deaf. My sister was able to make her understand. I...
That story made me smile. Little kids are just adorable and the way they understand things is just amazing. Does anyone in your family sign? No one in my...
If you do a google search for "lending library" it pulls up A LOT of information. if you are looking for a particular state, maybe I can try looking around for...
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