hello . just found this sight . i have R.P . .I have had it a while now ,now really sure how long but at least 15 years . just want to say hi to start ....
Hi there!! welcome to this group.I'm Bhoomika from India.I'm 18 n was diagnosed with RP 2yrs back.Althogh i'm also a new member,joined a few dayz back...
Hello guys I'm another new person to this group;my name is Brian England from Grants Pass,Oregon,usa.I was born B.B.S./R.P. and now 49 years of age. If anyone...
GLAD TO BE IN TOUCH WITH ALL OF YOU. I HAD A LATE DIAGNOSIS (AGE 65) ALTHOUGH SIGNS WERE THERE FOR AS LONG AS I CAN REMEMBER. FINALLY THE PIECES ARE FITTING...
Welcome Brian and Hector, and hello everybody, This is a great support group. You can tell us anything and we're here to listen and give advice and share...
hi, I live in sri lanka. Iam 20 years old.I like 2 know new medcine available in our countries.B'cos my country not gain new technologis. Thanx.... Binara ...
Hi Hector I am Pam, sighted spouse to Jim with Ushers II (RP with hearing loss) Welcome, please feel free to ask questions and jump in on conversations. ' Pam...
I am 30 with RP. I was told I have cataracts two years ago. The vision in my left eye is blurry and I cannot read with it. I went to my doctor and he said that...
April 4, 2005 Hi my name is Kathryn. I was diagnoised with RP at the age of 42. For me I've been very fortunate in that my RP has been vvvvvvvvvvery slow. A...
I HAD CATARACT SURGERY A FEW YEARS AGO, ON BOTH EYES. IN FASCT THAT WAS THE FIRST INDICATION THAT SOMETHING ELSE WAS GOING ON. I HAD LASER SURGERY AFTERWARDS,...
Hi- I have RP and I had cataract surgery on both eyes three years ago. I had no problems. It was the first time in 35 years that I didn't have to wear glasses...
I would like to start sending messages in my group. Sarah Ann www.xanga.com/go_bearz (check it out!!!!) Sarah Zmek 205 Tyler Court Mt. Vernon, Mo. 65712 ...
Hi Peggy and Joel Welcome to the RP family. I know it is a bit much to finally hear the diagnosis but it does put some things to rest as in "why can't I see at...
i am senior citizen but was only recently diagnosed although i had all the signs years ago. in a way it is a relief to know that i am not just a klutz. my...
Hi! I saw a reply on here about Peggy and Joel, but I never received the actual post from Peggy. I live in Houston, and we are contemplating a move to...
I am looking for in on Genetic testing for X-Linked RP. X-Linked RP goes way back in my family. I had 2 uncles, 1 1st cousin, brother, son,3 cousin with this...
Greetings! I was diagnosed with RP at age 11. I am 23 years old currently. I was never able to drive, I was legally blind by age 15. I do not know what kind of...
Hi Peggy & Joel, I just wanted to say a few words about the driving issue. My name is Christina and I am 26 years old and I have already given up driving. I...
My son has x-linked and was just diagnosed last month by Dr. Richard Lewis here in Houston, Tx. Dr. Lewis looked into my eye and saw a gold sheen on my...
... Richard ... gold ... all ... came ... with any ... Thanks for responding. My son was diagnosed at 6 mo. old. My family has a long history of mothers...
Hi all... I just joined your site and wow...there seems to be a lot of support here! I was diagnosed with RP at UC Davis Medical Center in CA about 6 months...
I wanted to welcome all new members who have recently joined and that I have not gotten a chance to welcome yet. You all will love our group and feel free to...
Okay, it's been almost a month since I've been diagnosed and since then, things have just been crazy. I've spent the last week in a hotel because the lease at...
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