Merri Just knowing there are many other people going through the same thing helps a lot. Your mother is not alone. RP is not an easy road to travel. There are ...
In addition to this, I feel the hardest part of having RP is transportation. It's so hard to find a reliable and affordable transportation to take me to and...
A couple of you asked to know a little bit more about my mom, and the following link will take you to her story. I'm sure my mom would love to join this...
I know my mom feels the same way about transportation! She doesn't have a job, but sometimes you just like to get out of the house, and she can't do that...
Hi Merrie, Sounds like your mom is feeling sorry for herself. She needs to look the things that she can do and not the things she cannot do or used to do....
The Virginia Department for the Visually Impaired does training like using the braille, how to use the cane, provide computers devised for the visually...
Merri Your mom's story sounds so familar. I a;ways had good eyesight as a child, didn't need glasses until I was 15 and then only for distance. I can still...
Merri You should look into your state and local blind services. There are a lot of things out there that would help and blind services are the people in the ...
Hello, I have always had problems using search engines to find what I wanted, as it always poped up results that I was in no way looking for. I just happen to...
Merri I contacted my state's Vocational Rehabilitation Center. There should be a local office in your town or county. Give them a call and see if they might be...
I am 30 years old and was diagnosed with RP as a child and my mother has it also. I have always suffered from night blindness and my friends are very...
Hi Alesia, I'm 31 years old (never been married and no kids) and I've been thinking about marriage and children for a couple of years. I have decided that...
I am not a parent, but my mother has RP and passed it along to my brother, myself and an older sister. She too wishes we hadn't inherited this but she has no...
Thank you both for your comments. They run the gamut of what I have been feeling. I agree with things both of you said. I know this is something I will have to...
Hi all, Many of you will likely be interested in this conference at Harvard. *Unite For Sight Second Annual International Conference* *"Eyes on International...
Hello Merri I am a sighted spouse. My husband Jim has RP. We also live in Los Angeles and have several friennds that we have gained thru these RP lists. Get...
March 5, 2005 Hi my name is Kathryn I've only been a member for a short while. I've never given much thought to having RP............but then I never heard of...
Alesia, I generally just read the text however, this conversation is something I feel pasionatly about. I am 34 (somehow having RP makes me feel older:), I am...
Thank you so much for that wonderful response. I actually watched Ray last night and am in complete agreement. What you said really touched me. Thank you for...
Pleasure to meet you Loli. loli diaz vazquez <marilolidiazvazquez@...> wrote:i am glad to belong to this group. i am spanish and i have RP. all the best, ...
March 8, 2005 A few days ago I received an email.............I've been doing research on my lineage and after many years I finally found what I was looking for...
Congratulations Kathryn. "kathryn hut....." <khut47@...> wrote: March 8, 2005 A few days ago I received an email.............I've been doing research on...
Hello everyone, Yesterday my 8 year old daughter was diagnosed with RP. She also has Heriditary Sensory Neuropathy Type II (a form of Muscular Dystrophy)....
Hi Steve, Both are hereditary. So if your daughter has both of them, it's because she got the genes from either your side of the family family or your wife's...
March 9, 2005 Could you please tell me what HSN is and explain...........I tried to look it up but could not find any thing to tell me what it is or the...
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