Hello! I am new on this site and not sure where to begin. I have RP and am dealing with the changes in my ability on a daily base. It's nice to know I can...
Welcome to the group Launa, you have found a great place to start. Pam Richmond in Cakif ... __________________________________ Do you Yahoo!? Y! Messenger -...
Hello, First of all welcome to the RP grorup. I remember when I was told I had rp. I was in my 30s and thought no way. but yeah its here. Living with RP or MD...
Dear all, This conference will likely be of interest to many people on this list. Unite For Sight Second Annual International Health Conference "Eyes on...
Hello Launa Marc G here. I am a 52 year old marroed man with RP. no family history. I have less then 10 degrees of vision. and about 20/80 acuity. I still...
Welcome to the list. My name is Marland aka Santa. I live in Iowa. Have had RP for over 40 years. Marland aka Santa [Non-text portions of this message have...
Hi everyone, I thought this article would be of interest to many on this list. Fetal tissue graft restores lost sight New Scientist vol 184 issue 2471 - 30...
Well hello Mandie! Its very nice to meet you. My name is Annie i'm 25 and i was diognosed with RP when i was just a baby. I know tat its hard to accept the...
Hi there Launa and Juljubee As I am sure you have read in the other posts. I am Pam, one of the sighted spouses here. Welcome to the Family! Tell us a bit...
hi annie! I sing all types of music in my spare time but on my demo it is more of a rockish adult contemporary. maybe i will be the next stevie or ray (i wanna...
That's awesome with the music! I love rock music. I also love hip hop r&b, dance and pop. as you can see i love Eminem. lol agressive music helps me release...
Hi Pam, nice to meet you as well. I am married, mother of three, 39 years old, and have known that I had RP for the pass nine years. The latest news is that I...
Hey there Mandy, My name is Karyn and I too LOVE to sing, and music is my world. I love going to live shows and boogie boogie boogying... I just wanted to...
-Hi Pam, Nice to meet you too. I am 39 years old, married , mother of three, and have known I had RP for the pass nine years. Only now I can no longer drive....
Hi Karyn, Reading your message was very inspiring. Sounds like you had so much fun. I am glad to hear you had a great time. Thanks for posting this and nice...
Thanks Lana! Best 30 bday I could have asked for! Karyn ... From: Launa Hardy To: retinitispigmentosa@yahoogroups.com Sent: Tuesday, November 02, 2004 3:20 PM...
That's awesome! I'd love for something like htat to happen ot me! I think thats really neat that he pulled you up on stage like that. I think i'd fall over if...
Well all you great gals Here is the invite, you all absolutely have to come to San Antonio Texas in 2005 for the RP social! It is going to be a blast. Also...
Hi everyone I have never heard this addressed here, but is anyone sufferting from seasonal affective disorder? I seem to get it bad and I think because since...
Hey everyone, I am 19 and live in the U.K. I have just been diagnosed with R.P. but luckily will only develop tunnel vision. I do not know anything about this...
Hi Kilos, There is a site you can go to www.blindness.org. There is a link on there its retinitis pigmentosa. Just click on there and it will tell you exactly...
Hey shadys, Thank you for your reply. I looked at the site you mentioned. Not too sure that I understand it all. I cant beliwve I may loose that much site. It...
Hi David what country are you in?? i hear that SAD is quite common in Europe and the extreme north. firstly i am sorry to hear that you think you are suffering...
Hi Everyone... i know i dont say much.. but i have to say thankyou. each day i log on and read little bits about your lives and struggles and joys. it has made...
yes i totally understand. My children have a 50% chance of inheriting it from me. I inherited RP from my father as well. You'll have to find a specialist out...
Hi i am 26 and was diagnosed with ushers when i was 20... a very vivid day in my memory... i too freaked out because i wanted children at some point... how...
That is great Daniel, your path is open before you! Follow your dreams! Karyn ... From: danielle verhoeven To: retinitispigmentosa@yahoogroups.com Sent:...
Hi there, I love to talk about having families! I have RP and 2 kids and I wouldn't change it for the world. 30 years ago my mother brought me into the world...
kilosangil <kilosangil@...> wrote: Hey everyone, I am 19 and live in the U.K. I have just been diagnosed with R.P. but luckily will only develop tunnel...
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