Yes we should all take lessons from Mattie. At 14 he loved life and people how many 14 yr olds can we say that about? He never let his disease hold him back....
Kim, I don't have RP but my boyfriend does. I am aware that someday he will be blind. I also know that our children could have the disease but the love we...
Please forgive us for any disturbance, but we have an important subject to address to you regarding FAITH, and we Don't intend to overload your email with...
hi Kim, it's been a while since I have posted, but late night sifting through all my postings, I read your post about your father and kids. I would like to ...
Allison, your post was very encouraging. I am glad you wrote it. It gave me good insight on what my kids will go through. You're right... the sight loss could...
Kim, one thing you might want to remember when teaching your boys, is that they learn by example...if you stay in denial about YOUR RP, what is that going to...
Again... you're right... I just get tired of being "broken".... I also have Keratitis, severe corneal scars from extreemly extended contact lens use, I'm...
Hello, This is the spirit Kim. Just do not worry about the things which are not in your control. Have faith in yourself and the Almighty. Suman ... Do you...
Hey Kim and Barb, I am in well acquicense with Barb. Yes, Kim you are not the only one there are so many with you, you just have to open your heart and look...
It was long stipulated that marijuana is useful for night vision. Whether it slows down the decline in peripheral vision commonly associated with RP is another...
This was like going into your basement to find a full brinks truck with a bow on it! The woman who recommended the site at http://www.wrldofproducts.com was...
I am registered with several on-line survey companies. I recently received an announcement regarding a phone survey on macular degeneration which is taking...
Hello, We are taking my 13 year old daughter in to possibly be diagnosed with retinitis pigmentosa tomorrow. What is my best reaction as a mother? How do I...
Susan-Glad you found the RP list. I was diagnosed at 16 and my parents never told me. It was not until after I was married with a child at 19 did I get the...
Susan Having 2 teens myself this is hard to face. Even from knowing I may have passed this on to them. The first time Jessica was tested I was beside my self ...
Susan Marc G here. I live in Los Angeles Calif. I was diaged with RP when I was 35 and my only daughter was 2 and a half. There was no signof this anywhere in...
... parents never ... did I get ... until their ... recommend you be ... the better ... years. Be ... Remember they ... with bad news ... to share ... Marland,...
... may have ... beside my self ... I think you ... will not ... world. It ... help a lot too. ... than night ... Paula, Thank you for your letter. How old are...
... when I was ... anywhere ... it, to ... well. I ... stressful. We ... figured, ... there is ... way I see ... she ... why she ... she will ... much better...
Susan fk answer your questions: How did your RP progress? Isn't it usually diagnosed earlier than 35? Do you work? How old is your daughter now? Has she shown...
Hello Susan; I am Pam, one of the sighted spouses on this list. Jim has Usher's II which is RP with hearing loss. He is now 56 and we have 2 daughters 21...
Please forgive us for any disturbance, but we have an important subject to address to you regarding FAITH, and we Don't intend to overload your email with...
I have warned this Sam guy to stop his/her preaching on this list, and as a result of their last post, I have banned them from the list. I don't know if it...
Has anyone read these articles? Thoughts? Experiences? Thoughts on Med. Marijuana for RP? Personal Story: I'm a college student near graduation working in the...
... diagnosed ... doctor ... year ... My personal advice here: Be up front with her about it, inform her about what this means - the possibility that she may...
Hi there, i have responded in the past about the use of M with RP. I did recieve a referal from my doc to recieve medical M in B.C. Canana. I am not sure...
Hi, Thanks for your letter. She was tested and does have RP. However, we asked the doctor not to say the name at this point, simply to discuss the symptoms ...
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