Hello, My roomate has RP and his vision was greatly enhanced by the use of night vision goggles, however they were large, bulky, and awkward feeling for him....
dont take the piss out of us,we feel bad enough,we dont need prats like you,if you were half the friend your pretending to be leave him with his night vision...
I sense "scam" here. But if you truly have something to sell, sign up on ebay and take care of it there. Please don't jump onto a web group that is essentially...
Hi everyone, Today I have an eye appt with my DR. I am going to ask her to write a letter to Social Security to let them know that I am now legally blind. I...
Just want to wihyou well in your fight for disability. I applied in 1994 after a stroke caused by moya-moya disease - a genetic deformity of the veins in the...
You may want to get a copy of the test results showing you are legally blind to. May want to contact the services of the blind to be claimed legally blind in ...
I applied and was approved 4 months later. I had a letter from my doctor and gave them a copy. Lots of forms to fill out. They sent me to an eye doctor for a...
Hi all, My name is Tara, i'm 25 and from NJ. I was diagnosed with a bilateral hearing impairment when i was 4 and have worn hearing aids since. Around 18 or...
Tara, I'm 41 and also live in Jersey. When I was younger I had similar nights out when I relied on friends for help in nightclubs etc. My vision is still ok...
hi tara-- my name is rob. im 21, and i live in virginia. i was diagnosed with RP back in 2001 while serving as an infantryman in the army. i was subsequently...
I'm 34 years old and i have very little central vision left. i was diagnosed in 1995 and within 9 years i've gone from 20 degrees to less than 3 degress in...
Yvonne, I've gone from 20 degrees to 5 degrees in 8 years, so I guess I'm experiencing a similar rapid progression. I am 29 years old. I am also taking the...
Leaves WELL I HAVE BEEN READING ALL THE EMAILS AND REALLY HAVEN'T HAD ANYTHING TO ADD, BUT IT'S GOOD TO CHECK IN NOW AND THEN. IN THE RP YAHOO GROUP, I THINK,...
-I AM 32 WITH LESS THAN TEN DEGREES PERIPHERAL VISION; I ALSO HAVE LOST CENTRAL VISION IM BOTH EYES. SO I SEE WITH THE RING OF PERIPHERAL THAT IS LEFT AROUND...
Deb, I did not know that RP affected the Macula. I have Macular
Degeneration which leaves the peripheral vision unimpaired. Sounds to me
like you have a...
-I AM FAMILIAR WITH MD, MY GRANDMOTHER HAS IT. IN FACT, I HAD KIND OF FIGURED THAT MY RP WAS SOMEHOW RELATED OR DEVELOPED/MUTATED FROM MAYBE A GENE SHE HAD...
I just wanted to add my two bits here too. I am 29 years and was diagnosed with RP at 4. I lost SIGNIFICANT vision over the last 5 years with the birth of my...
- KARYN, I KNOW HOW YOU FEEL...IT IS SO HARD; YOU ARE THE FIRST WOMAN I HAVE HEARD FROM THAT REPORTED DETERIORATIONS WITH PREGNANCY/CHILDBIRTH. MY DOC WOULD...
My vision deteriorated after having two children as well. I wasn't sure if it atributed to childbirth or just the progression of my vision loss. After...
Karyn. I wish I could answer that question! I just had my 6 mo check up at
one of the best clinics for retinal eye disease..sort of state of the art
clinic....
I know for a fact that childbirth played a role in the progression of my RP. I did not even notice a decline in my vision till after my kids were, I have heard...
karyn, please, can u tell me before your pregnancy, could u see well?? because i was diagnosed with RP in 4 too,but tell now, (22 years) i can for exemple ...
Hi, I've known I"ve had rp a little over a yr now. Went thru cataract surgeory on both eyes and had lazer done on both, one to get film off other to get rest...
I think these questions were directed toward me! However my name is Kate not Karyn, no biggie! Looking back now I can tell that I was having trouble seeing...
Hi there, I think Kate and I are both answering these q's and that is good. I have never been able to see well at night ever since I can remember. I probably...
Deb, I know that I asked my eye specialist if pregnancy could affect RP and he said he hadn't heard of that. I think we need to educate the doctors about this...
We may be way off base but I think that your hormones play a part in the progression of RP. I noticed changes in progression after using hormone replacement...
Marie Nelson
thebkkpr@...
Mar 19, 2004 10:38 pm
3518
-I AGREE REGARDING ENLIGHTENING OTHERS ABOUT WHAT WE HAVE EXPERIENCED AS WOMEN...I RECALL MY VISION WAS PRETTY STABLE DURING PREGNANCY. AFTER MY FIRST DGT WAS...
My experience with Drs and specialists whatever, is that they tend to
dismiss your input. 'I haven't read that in any of my journals', is one
statement I got....
Maybe stoping taking vitamin A during the pregency play a part in the progression of RP. 9 months without taking vitamin A is not a short periode.. (I don't...
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