Good afternoon. I am new here and haven't yet been diagnosed but was told this week to quit driving during a regular vist to an Optomitrist. I'm 40 years old,...
Welcome and sorry you have to be here! How can he not give you a diagnosis? Please see a Specialist at once, there still might be some hope, depending
on what...
Good morning, Thanks for replying. I do have an appointment scheduled for a specialist this Friday. My case is a rehabilitation case, which means it's being...
Hi, I have usher type 2, that is that I can still hear well with my hearing aids. What do you want to know about usher? SaraSmile :) [Non-text portions of...
Hi, I don't know anything about it except that it's damaged nerves involving ears and eyes. When were you diagnosed? How did they know and how far have you...
I found out about my hearing at four years old and my vision at 15, but had it before that but didn't know it, I thought it was in my head. When I first found...
... but had ... <I look back now and realize my vision was suffering even at the age of 10. Unfortunately I wasn't aware enough to get it checked out. ... have...
Have you been to the eyes doctors? You really should have it check out, so you know where you at as far as rp. On the rp-friends and livingwithrp yahoo pages...
J, I too am from Texas, also new here. I don't have RP but my son does. I found out he has 40 degree vision. I don't know what that means. Can anyone elaborate...
sorry for top heading; that was something no one seems to want to talk about.. the loss of color sight...i thought i was the only one who had it and that...
Hi "J"....... Welcome. The patterns of our hearing and sight are similar and I would guess that you too have Ushers Syndrome. My RP was diagnosed in 1961...
Hello Daidakai In reference to the 40 degrees of central vision your son has. With normal vision, most people would see about 180 degrees. If you look at a ...
Thank you all for responding. I probably should have waited for diagnoses and then I could have more information. I just wanted to see if anything was out of...
im top heading yet again .. it is sad that they don't listen. i tride to tell my eye doctor why i was there to see him and at the end of the tests, he patted...
Thanks Trudy, I just lost an entire page of what I just typed...Arggh..I was wondering if I was turning out to be one of those people who look for things to be...
Where are you? You're a lawyer as well. That's so cool. I was supossed to start college for the first time this year. I received a tuition waiver for 4 years...
Where at in California are you? I was in Califonia over Christmas visiting Dad after 13 years of being absent from each other. They realized that I was having...
Hi Richard, I had to reply to your post, after reading it, It gave me more confident. I'm 27 and was diagnosed with Ushers II when I was about 10 years old, it...
Hello there, I was diagnoised with RP back in 1986 and have suffered a decline of vision since then. However I have also been diagnosed with Head and Neck...
isn't this disability just toooooo much fun? being a blonde dosen't help me any . I have started rolling with the punches -per say. i gave up on what other...
I know I've taken up alot of space here lately but I was wondering about SSI. What all does SSI offer? How does it work and can you still work and get it? I...
True that! he he Us having to "think" ahead of time before making any moves tends to sharpen your other senses and I always try to remember that what God takes...
Hey, can anyone offer my any advice or info? i was diagnosed with RP when i was v young so i never full understood what it was all about n it was never really...
Katz You need to make an appointment with an ophthalmologist as soon as possible. You did not give us your current age or how long ago you were diagnosed with ...
Marie Nelson
thebkkpr@...
Feb 5, 2004 4:40 am
3436
I am forwarding a message about yahoo that not many may know. Sharon * * * Thought I would pass this on in case members here are not aware that Yahoo is...
Hi guys! I'm new here, and have a few questions about RP. First I will explain a few details about my situation. I'm 24 years old, married, and have two...
Hi Katz...let me introduce myself. I'm 29, married & a mother of two. I was diagnosed at age 11/sixth grade w/ RP. I have wore glasses since I was four & my...