Aren't the Nutri-lite vitamins from Amway? I remember taking those super pills, it helped me feel better, more energetic. I think this may have affected my...
Hello, My name is Diane, and I'm a new member of this list. I'm very active on the other RP lists, so I'm sure some of you will seem familiar. I am posting my...
Dear Listmates, I have started a new RP list for those who want to discuss nutrition, supplements, and herbs as they apply to RP. Group Description: “Can...
Thanks Diane for starting your new group. I somehow got on another list that has iniatiated all kinds of emails to my box under RET.PIG and I have tried to...
What is the website that has the doctor list on it? I go to a regular opthamoligist that knows about RP, but am always open for different doctors for it....
Dear Tweety, The website with the doctor list is not up yet. First I'm updating the list so that it is current, and also sorted by state. If your eye doctor...
Please forward this email to groups or friends with an interest in eye diseases and nutrition. Group description: Can nutrition, supplements, or herbs lessen...
Dear Listmates, Survey response so far: approximately 10 responses total from 3 RP lists, totaling almost 2,500 members. I am re-posting the survey to fill out...
Doctor Questionnaire EYE PROFESSIONAL * Section One - General Information:Robert K. Snyder Vitreoretinal specialist Name: Opthalmic Consultants State:Florida ...
Hi all, My name is Matt and I have just been diagnosed with retinal dystrophy. I am 36 years old and at present have only limited field loss and poor night...
Hi Matt, Your probaly very worried and scared right now. This is to be expected. I am not sure if this will help or not but here goes. My name is Judy and I ...
Matt, I was "officailly" diagnosed with RP almost a year ago exactly. In a way I wasn't surprised since RP is so widespread in my family. First, you are going...
Hello Everyone. My name is Owen, I have got RP around 5%, near sighted and cataracts. I am undertaking tests to have my cataracts remove and corrective lenses...
Hi Owen- I am 56 years old and was diagnosed with RP at 16. One of the compllcatons of cataract surgery, unrelated to RP, is a detached retina. They can...
HI OWEN, MY NAME IS DES, I WAS DIAGNOSED WITH RP ABOUT 20 YEARS AGO. I TO HAVE HAD CATARACTS REMOVED IN BOTH EYES WITHOUT ANY PROBLEMS. ALL THE BEST DES ... ...
Hi Santa Thank you for the information you sent, it is very informative. I am not sure when the eye hospital in Bristol first found out about my sight...
thanks for the info Des, most appreciated. Owen ... From: DES LUNNON To: retinitispigmentosa@yahoogroups.com Sent: Sunday, March 09, 2003 7:05 PM Subject: RE:...
Dear Listmates, (Please forward this announcement to all who might be interested.) At Rose's suggestion, I have created a new RP list called "Living With RP."...
hey owen, i had both mine removed 2 years ago, only problem i had was scar tissue on the lens sac. both eyes scarred immediately (within a month) and i had...
Hey there Matt Nice to meet you. Im Jay. im up in the West Midlands. I was diagnosed 12 years ago, and ive experienced or dwelled over every emotion, problem,...
Hi Becki Many thanks for your info it is most appreciated, I have had 3 emails so far giving me some ideas on what to expect if I have the operation. I have...
Hello everyone. My name is mark. I was DIA. with RP back in 84. Well at age 25 its all coming down at once for me.. Loosing license, left job, filed...
Hello everyone well in my last post i stated i was dia. with RP in 84. Iam 25 now and i have kept my problem a secret from alot of people for the past 25 yrs....
Mark, My name is also Mark. I am 33 and was diagnosed in 91 but have been tripping and running into things since my early teens. I too just lost my license and...
Hey mark...Well yes i do play guitar. Favorite players would be Joe satriani, slash ( from GNR) love his style and i would also say BB king. i been playing for...
Hi Mark: I am a 52 year old woman who has known about my rp since 35. like you, right now I am having to realize i am getting quite bad in my sight. My...
MY FAMILY IS INTERESTED IN HELPING ME TO PURCHASE A CCTV FOR HOME. I WAS WONDERING IF ANYONE HAD ANY RECOMMENDATIONS...WE FOUND ONE ON THE MAXIAIDS WEBSITE...
Hello everyone, Mark here. Well after telling you all my story i feel a little bit better about the whole matter and iam not looking to give up yet. I stated...
Hi Deb I have the Aladdin Rainbow, I like the fact that I can change the colors. The only disadvantage I find with it is that I can't put anything real bulky ...
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