Hi Peter: Welcome! Glad to have you here. I was just diagnosed last year (I'm 28) and I'm still trying to come to terms with it. It's hard...in a way I can...
Hello, Just wanted to share this news. On April 28,2002 Jeff Gordon has invited a four year old boy, Colton Meyers, to visit his tent for the NASCAR race. ...
Come chat with chatty_nan and some of the r.p.chatters. I want to try and keep this chat room going as long as l can. Whether young or old, new or one from the...
Come chat with chatty_nan and some of the r.p.chatters. I want to try and keep this chat room going as long as l can. Whether young or old, new or one from the...
Thanks for all who came to chat tonight, dbmikeo, christine,susie,john,tomy,trish,al,msthing10,quadmomkate4195,lee. You guys are giving me hope to stay in a...
Thanks for all who came to chat tonight, dbmikeo, christine,susie,john,tomy,trish,al,msthing10,quadmomkate4195,lee. You guys are giving me hope to stay in a...
Dear all, what can I say, such a lot off bullshit..... I went to Cuba and had the operation done, as well as the ozone treatment. I met a lot of patients there...
Folks, Just throwing this out to the bulletin board. If anybody knows anything about ozone, ie scientific documentation to testifiy to its efficacy in treating...
Thanks for all who made it a interesting night. Thanks to christine,kate,pam,al,lee,trish,franny,john. Thanks for sharing your interesting story tonight kate...
I tried to get into the chat room last night, but I don't know what happened. It stated that I was in the chat room, but I had no response when I typed a...
I seen you in the chat. I am the host. We think you kept getting booted out. Just post a messange on the board there maybe someone there can find you another ...
Hi, i have 4 brothers diagnosed with rp a year ago..10, 18 and 21(twin) years old - inherited from my mom (x linked).. for more info maybe u can search for...
Hi Peter, I am the mom of a 15 year old with rp diagnosed about a year and a half ago, I believe he replied to your inquiry a week or so ago. I understand how...
Hi Cindy, It looks like your son is going through many of the same issues that I have when I was in high school. I graduated 1965 just a short time ago.... ...
Hello I am Jennifer. I am from Florida and I have RP, and Ushers Syndrome. I have complete tunnel vision, no periphial and night blindness. I hope to chat...
Hello Jennifer, My name is Kate and I have RP as well. I too live in Florida, Cocoa Beach area to be exact. I was diagnosed with RP about 4 years ago and have...
Hello Kate; I live in Sebastian which isn't far from Cocoa Beach. I would love to
chat with you. I have the same thing that you do. Is your eye sight...
I know exactly where Sebastion is, That is not far at all. I think that's great that you are so close. The only other person that I know of close to me that...
Hi Kate; Well I do understand about the dark spots. My RP wasn't suppose to be
progressive. the DR's up in NY told me that I wouldn't go blind till I was...
Hello Sarah, I can totally relate to where you are coming from. I too had a boyfriend with RP. He is now my husband. I can't begin to tell you all the...
Miss a lot of r.p.chatters tonight. Slow night. Maybe it will pick up soon. Thanks for the few who came-dbmikeo,friendly_gal,elephant_granny,pops1291.GOODNIGHT...
Hey all, sorry I missed chat tonight, I was helping my children with their homework, and the window opened and closed too quickly. See you all soon take care....
Hey all, Sorry I missed chat last night. I was so exhausted after I got home from work. I made peanut butter and jelly sandwiches for the kids dinner and went...
Hi I do wish you every good fortune with this treatment you have had in Cuba. However I must ask my self when I hear of treatments that are only available in...
I have also been wondering these same questions myself. I have read somewhere that the US put a ban on ozone therapy research, and I believe some states make...
I have also been wondering these same questions myself. I have read somewhere that the US put a ban on ozone therapy research, and I believe some states make...
