We are in Canada. My husband has RP so we are very interested in this. How can we find more information. There doesn't seem to be any online that I can find....
Hi, I am kato from Colorado. I have RP. I will be a lurker for awhile. There are so much info in the old posts that I want to read. I am sure I can find...
Hi ALL, this is Allen here.Have been out of touch with the group for quite awhile. I have been on a clinical trial here at ALL INDIA INSTITUTE OF MEDICAL...
On Thu, May 24, 2012 at 2:48 PM, allen duia <singhduia@...> wrote: Valproic acid and stem cell clinical trials are legalised in this country. Just to be...
Valproic acid is a prescription medication, but with a prescription you should be able to get it at any corner drugstore. Steve ... [Non-text portions of this...
Anyone trying that in the us? Should I ask my opthomologist or primary doctor for the prescription? Anyone going to try this?1 ... [Non-text portions of this...
There are formal trials as well as apparently a few doctors prescribing outside of the formal trials. The formal US trial that I'm aware of is a multicenter...
I dont think I will be trying this on my 14 year old daughter unless they come out with eye drop form ________________________________ From: Bill Barns...
I don't think they will ever have an eye drop form. You either have to consume it in the body or through stem sell. ... [Non-text portions of this message...
I have two daughters with Usher Syndrome. They see Dr. Eliot Berson at Massachusetts Eye and Ear. I asked him about Valproic acid. He is skeptical, says it...
I was. went to Vancouver 3 years ago. Treated for 3 weeks. accupuncture sessions twice a day and "secret tea" provided by Dr. Yu. All I can say is that I left...
I have e-mailed Yu's office a couple of times asking for a bibliography of the "more than 30 publications in both Chinese and English medical literature" that...
I am going for a eye exam soon and was wondering what the group does for the glare most of us experience. I was reading about the Crizal lenses and there...
Hi all, I haven't been active on this listserve for some years, but I contineu to follow the many wonderful discussion threads. I appreciate you all for ...
Amber lenses help me a lot, polarized lenses too, but I can't find where to purchase lenses that are both: amber, polarized and for my prescription. My...
Brenda, I'm in Virginia, not sure what you want to know in particular but feel free to write me either privately or on list and I'll share whatever I know. If...
I'm using black polirized lens during this days.I choosed really black one seen that in this period there is really strong sun, so strong that somethimes I see...
Hello again, I did see my Dr. and now have more questions. He was telling me about Ziess lens and also Nike lenses. Not sure if both, but on the Nike I could...
I am new to this community. I know that I haven't been officially diagnosed with RP yet because I don't have health insurance, but my grandfather had a...
What you are experiencing is possibly consistent with an RP type condition, possibly an autosomal dominant form. It might not even be all that early in the...
I would love to have this tool. Lenny As posted on FB: Braille Institute Tech Talk Thursday: A ring made a splash in wearable electronics recently. Just by...
