I have RP and cataracts and only have centreal vision left.I also have really bad tunnel vision and feel of balence alot.I have a loving wife and children who...
Jim.... I am going through the same thing. Kinda feels like noboby understands. Ya it sucks. Hang in there. S pend time with your kids, thats what I do, keeps...
It get lonely at times and that why group like these are great. I really like Facebook.com to get the support through there. There are a lot of people out...
I understand what you're going through. I'm hard of hearing myself and believe me it is harder for people who have RP and hearing lost than who has RP alone....
Jim, altho I don't understand what you're going thru I too, have similar vision and hearing. I try to keep busy doing things that brings me pleasure and...
Sometimes it is hard to always keep a positive attitude. There are many days when people who have no physical problems have "down days" so it is understandable...
Hi ! Jim James my name is Heidi I just turned fifty, I have rp and coate's disease,rp in both eyes coate's in left, my left eye is totally blind,my right eye...
Heidi I am 58 , only income to the family.While it is difficult for Family, co-workers to understand the effect of RP, the hearing loss (and tinnitus + out of...
Good Grief, Jean - I hope you at least have a sighted guide walking around in a manufacturing plant. It sounds extremely dangerous without, at least,...
HI,, One day at a time,enjoy everything that you can, and have patience with the people who care and mean well but really can't understand. Before my vision...
I see where they are doing trials on new prism glasses that would help periphial vision, " Peli " the study is ongoing not for RP patients but for a different...
I tried a pair about 10 years ago, was able to see both sides of the door way but still managed to miss the mark on getting thru the door way. I just...
Hi, Countess, Do you remember that book/movie call "The Fly" Did you feel like a fly seeing all over side and front? I would probably get confused.too. But...
Thoufght I would do a quick intro before I take my guide dog out for her nightly thing in the yard. Some of you might know me, as I have been on support lists...
Never thought of that! lol The glasses did remove the center portion of vision. Maybe they have changed in the last 10 years, I haven't heard anything new...
Welcome back to the list, Robert Clark. Has Medicare given you a reason why they won't cover a 2nd CI? Just curious here. Countess In a message dated...
... This is very interesting subject with prism glasses. My question to anyone who can answer me this. I have rp but what what i lack is central vision ahd i...
Robert nice intro, 1- How old are you? Where do you live? 2- You have to be in town, surrounder by neighbors. 3- Can you elaborate on the implant? It seems not...
Hi Countess, Medicare has guidelines, and do not require preapproval. The guidelines indicate that they only cover one implant. So, no reason give, because...
Oh, I didn't know that about Medicare. Countess In a message dated 7/16/2009 1:07:02 A.M. US Mountain Standard Time, retinitispigmentosa@yahoogroups.com...
I understand. I have been through that for years .I am at 500 y from my mailbox at the middle of 19 acres. My neighbors are donkeys, goats, horses, geese,...
I would love to live in the country. But being single, no rides, I would surely go bonkers from the isolation. And no matter what my vision does, I gotta be...
I do understand Robert. About 5 y ago, living in Grenville SC, I came back from a business trip in Europe , scared, and told my wife that if my right eye goes...
Jean-Louis, What I need is a gal who would be the better half and find us a nice quiet 40 acres out in the sticks. I have been looking but dont yuh know it, ...
Hi just wanted to say thanks for all the responses.I was having a really bad day last time I posted which was titlted feeling alone.I am for the most part a...
Jim, I am new to the group but not new to those bad days which seem to come more and more often. Right after I joined, I lost a hard drive and spent all of...
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