Hi Bill, Thanks for all the good suggestions and for sharing your experience with cataracts. The big day is Wednesday. I still go back and forth with how I...
Hi, Bill,, I am new here, don't mean to butt in, I had cataract surgery.. and I have RP I know that there is a point in which all of us may have to have...
Hi,, I went to a doctor , not for stem cell, but to try and straigten out my CME. He does stem cell tests. For a while he was putting it on hold because of...
I am sorry for you that you had a bad doctor(s). I was warned of the implications and risks. I wanted to do my "too late" eye a year later the good one and we...
I have been reading what different ones have been saying about cataract surgey and thought I would add me 2 cents worth. I know that I have had RP for about...
Friends, have you heard about Eyeway - Yeh Hai Roshni Ka Karawan radio show? It's a 15-minute radio programme giving lots of useful and interesting information...
When you say each person is different it applies to the patient and .. the doctor. In summary, do not take anything for granted, do your homework because...
Greetings! I have been unable to find any RP related chat rooms. The chat room folder in the group's link section was empty. Any help woule be appreciated. ...
Hi,, I had heard about the cuban treatment for RP years ago, very few doctors here even got the chance to observe because of our " relations " with cuba, out...
http://blindedbydoc.blogspot.com Added some information and links to the cuban treatment, ozone therapy, and stuff if you are interested look at the site and...
I have RP and cataracts and only have centreal vision left.I also have really bad tunnel vision and feel of balence alot.I have a loving wife and children who...
Jim.... I am going through the same thing. Kinda feels like noboby understands. Ya it sucks. Hang in there. S pend time with your kids, thats what I do, keeps...
It get lonely at times and that why group like these are great. I really like Facebook.com to get the support through there. There are a lot of people out...
I understand what you're going through. I'm hard of hearing myself and believe me it is harder for people who have RP and hearing lost than who has RP alone....
Jim, altho I don't understand what you're going thru I too, have similar vision and hearing. I try to keep busy doing things that brings me pleasure and...
Sometimes it is hard to always keep a positive attitude. There are many days when people who have no physical problems have "down days" so it is understandable...
Hi ! Jim James my name is Heidi I just turned fifty, I have rp and coate's disease,rp in both eyes coate's in left, my left eye is totally blind,my right eye...
Heidi I am 58 , only income to the family.While it is difficult for Family, co-workers to understand the effect of RP, the hearing loss (and tinnitus + out of...
Good Grief, Jean - I hope you at least have a sighted guide walking around in a manufacturing plant. It sounds extremely dangerous without, at least,...
HI,, One day at a time,enjoy everything that you can, and have patience with the people who care and mean well but really can't understand. Before my vision...
I see where they are doing trials on new prism glasses that would help periphial vision, " Peli " the study is ongoing not for RP patients but for a different...
I tried a pair about 10 years ago, was able to see both sides of the door way but still managed to miss the mark on getting thru the door way. I just...
Hi, Countess, Do you remember that book/movie call "The Fly" Did you feel like a fly seeing all over side and front? I would probably get confused.too. But...
Thoufght I would do a quick intro before I take my guide dog out for her nightly thing in the yard. Some of you might know me, as I have been on support lists...
Never thought of that! lol The glasses did remove the center portion of vision. Maybe they have changed in the last 10 years, I haven't heard anything new...
Welcome back to the list, Robert Clark. Has Medicare given you a reason why they won't cover a 2nd CI? Just curious here. Countess In a message dated...
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