Hi Bill, Thanks for all the good suggestions and for sharing your experience with cataracts. The big day is Wednesday. I still go back and forth with how I...
I had problems posting. It took a moderator's help to have my messages posted. I believe that the problem has now been resolved. ... Please visit my home page;...
salam to in sait kesi irani ya kord hast mn mohsen 28 sale mobtala be bimari rp hastam va mikham ba kesaie dige ke rp daran dar ertebat basham motasefane man...
Hi Diane, just getting back to this, I have been traveling. I'm not sure what to say about vision like being underwater. I think maybe so, sort of, in the left...
Glad to hear from you Emil. ... From: Samedov :-) ATTQ <emilsamedov@...> Subject: [RetinitisPigmentosa] WHAT WILL BE COST OF RP TREATMENT WITH STEM CELL...
HI EVERYONE, Â IT'S INTERSTING FOR ME ,DOES Â ANY BODY KNOW ABOU IT? Â PLEASE SHARE, BECASUE I HAVE GOT SOME FINANCIAL PROBLEM , BUT I WANT TREAT MY EYES...
You do have your hands full (bed too maybe).I got Boxers which are "containable", even when the chixken got lose. My first one was deaf and half blind the last...
Hi Bill, Wow! What great information. Thank you so much for the insight on cataract surgery. This is just what I needed! I can't say it calmed all my fears but...
... Ha, well actually, people recommend attaching a bell to your other dog, to help the visually impaired dog. I have 2 Labrador Retrievers in addition to...
Dear RP friends and I am 29 yo and l have learned that l have RP when l was 27yo,have Cellophane maculopathy in both eyes and cataract at my left eye wonder...
Diane, experiences vary of course. Most people with RP who are recommended for cataract surgery get some improvement, but not all. If anything, the surgery...
Thanks for the info Bill. I mainly want to know if there is more risk of faster vision loss with cat surgery and rp. I also want to know how bad your vision...
You can join RPlist through a web page at http://listserv.icors.org/archives/rplist.html You will need to fill out the form with your name and email. There...
Hi! I would like to know where & when they have the get togethers for the RP people, once a year? My luck it will be too far away for me to go. Candy Recker...
John No need to be sorry my friend. You are very right. when I joined the group back in 1999, They asked two questions when you joined. 1. which do you like...
You need to give us something better than that. I followed your link and got stuck to a nice front page. Anything I missed? ... From: bhoomika bhagchandani...
Marc, I understand. The last two weeks was like birthdays and anniversaries.... I still wonder how a new comer can come in and look for support. It seems...
Hey Katie First big kiss to Trevor. Hopefully he won't need a .. blind dog. Joke aside, I thank you for your mail. It is viewing RP from a really different...
Hi Everyone, I recently joined this group, but I haven't been quite sure how to introduce myself. I suspect that my situation is unique. I am interested in RP...
Hey Friends, Hope all are in good health and spirit. I just wanted to share info about a very useful and informative service launched recently by Eyeway....
hello, Marc G. here I would like to say my 2 cents about the RP-Friends list. The names says it all. It is a group of friends. Other then family (and many of...
Sorry this is how I was told, by my Dad when I was growing up. I think he
was wrong anyway. As my RP is getting worst, I have nightblindness etc sorry
if I...
I do not doubt --- It does remind me my summer camping trips.. But if you multiply anniversaries/birthdays * members.... not a lot of place for real help and...
I think that's the purpose of rp friends. Social aspect. List is full of info though. Michelle Sent from my Verizon Wireless BlackBerry ... From: Jean-Louis...
I don't know if there is any way to really tell. The RP is on my mother's side of the family. I had a grand uncle with it, two uncles with and one without....
Martina, what are you saying? My sister and I both have RP and there is no history of anyone else who had RP. Are you saying, the only way I can get it is...
Hi Kelly, Of course it is your decision and there probably isn't a way to know what the right way or the wrong way is. And it is easier for me to say when...