My brother and I were born type 1 ushers sydronme. We are from Australia and use signed English or Auslan. Would love to meet more people like us out there...
Israeli Research Finds Common Antibiotic Can Repair Genetic Diseases Posted By Matzav Editor On April 30, 2009 @ 4:34 PM In Breaking News, Jewish Community,...
Hi Britt, I have heard of vitamin A but unsure if its worth to take them everyday. I take fish oil along with Mascu- vision from blackmore brand regularly....
Welcome all. For the VitA be careful: if you already take anything do not overload it! While your body will purge any excess I am not sure your liver will like...
Well my grandson, Christian age 12, also has RP. His is very much like mine meaning at his age he already has severe night blindness. The only good thing that...
Hello everyone, i have posted on here before. I am a mother of four children and my son (now 7) was diagnosed with RP about two years ago. We live in Florida...
... children and my son (now 7) was diagnosed with RP about two years ago. We live in Florida and go to Bascom Palmer Eye Institute in Miami. I'm back because...
Well, I learned that it is still important to see an ophthalmologist every year or so. My mother has macular degeneration and stopped going to the eye doctors...
Hi Tillersandra, Wow there really is someone else out there with both conditions. You can e- mail me at princeezzaa@... any time you like. How is your...
Earlier, Tracy Madden sent you an invitation to play on Winster.com but hasn't heard from you yet. By playing together, you and Tracy can help each other win...
Not sure who encouraged us to register to RP friends but after 10 days and 80+ messages on anniversaries and birthday I did not see anything better than...
I haven't posted in a long time. I'm 41 and was diagnosed with RP when I was 7 and there's been no one else diagnosed with it in my family. I live in the...
Hi My name is Martina, I am a Carrier of RP, I got it from My Dad, and my Dad
and three of his brother's has RP, it come down from my Grandmother (my Dad
s...
I've heard some doctors at least as well known as Finkelstein dispute each other about the genetics of "RP simplex" cases such as yours or mine. When I got...
Hi Kelly, Of course it is your decision and there probably isn't a way to know what the right way or the wrong way is. And it is easier for me to say when...
Martina, what are you saying? My sister and I both have RP and there is no history of anyone else who had RP. Are you saying, the only way I can get it is...
I don't know if there is any way to really tell. The RP is on my mother's side of the family. I had a grand uncle with it, two uncles with and one without....
I think that's the purpose of rp friends. Social aspect. List is full of info though. Michelle Sent from my Verizon Wireless BlackBerry ... From: Jean-Louis...
I do not doubt --- It does remind me my summer camping trips.. But if you multiply anniversaries/birthdays * members.... not a lot of place for real help and...
Sorry this is how I was told, by my Dad when I was growing up. I think he
was wrong anyway. As my RP is getting worst, I have nightblindness etc sorry
if I...
hello, Marc G. here I would like to say my 2 cents about the RP-Friends list. The names says it all. It is a group of friends. Other then family (and many of...
Hey Friends, Hope all are in good health and spirit. I just wanted to share info about a very useful and informative service launched recently by Eyeway....
Hi Everyone, I recently joined this group, but I haven't been quite sure how to introduce myself. I suspect that my situation is unique. I am interested in RP...
Hey Katie First big kiss to Trevor. Hopefully he won't need a .. blind dog. Joke aside, I thank you for your mail. It is viewing RP from a really different...
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