Hello Everyone, I have made rpgypsy a moderator for the group. She will help me approve pending members and anything else that might arise. I thank her for...
Guys, Why dont u all try n visit cubahealth.com. It seems that they claimed to have a treatment for us RP patient there and we can share the info. ... ...
Please do this today! ... From: Foundation Fighting Blindness <info@...> Date: Mon, Feb 2, 2009 at 12:11 PM Subject: If you do one thing today please...
Hi, Pls be careful. The cuba thing is a scam. I visted the place last year and well almost god scammed. U take care. God bless.I spose God has a purpose with...
hi i have just checked your mail today. i am also interested in making friendship with you. so what do you do? i am a musician and studying CA also. i would...
Hi All, I'm wondering who has comments on what I've been thinking about regarding LTD. I'm 29, I have RP that's right on the LTD border. The company that...
My husband left his job of 18+ years on January 2,2009. He was a shipping clerk and due to RP he could no longer do his job. In 1991 my husband applied for...
I have a situation somewhat like that. But in my work it is really hard to say when you "can't do the job" because it is just a gradual decline in efficiency,...
Bill, I read your post I had to quit work ,I got my short term disability for 12 months,then went into long term,for SSDI you have to be totally unemployed for...
This is my understanding of how it works. LTD is something that you recieve from your employer. I don't think most employers want you to do that, even though...
Bill, I am in the same situation as you. I work for a large tech company, and have been legally blind pretty much since the first day of my employment. Becuase...
Hey Cathy, when I filed for my ss 23 years ago Ihad a short term disabilaity ins.thru the co. Iworked for and it paid for one year ... From: claysdau...
... acupuncture treatment for RP in Vancouver, Canada about a Month ago. If you are in the early stages of RP i would say you have a good shot at getting some...
Hi I am 37 years old and went on disability last year. I have para central retinitis pigmentosa and it has been very difficult dealing with it. I feel stuck...
Hi to all my name is Heidi,most companies offer short term disability when you sign up for benefits,they also offer LTD if you don't take the LTD when you...
Hello everyone, It is possiable that this treatment (ECT) could be available this year, To all of us !! If it just slowed the prgession it would be a great...
harely4heidi: May I graciously suggest that you get some orientation and mobility training and if you aren't using a cane yet, that you start. There is so...
I have a cane and have had training with it,it's just hard remembering I have a new buddy that needs to be with me. ... From: rpgypsy <jennoftheeve@...> ...
ME AND MY YOUNGER BROTHER ARE RP. RECENTLY WE TOOK TREATMENT THOUGH MICROSYSTEM ACUPUNCTURE BUT IT WAS NOT SUCCESSFUL AT ALL.BESIDES THAT IT WAS VERY EXPENSIVE...
Hi All, Contributors have been asking about acupunture treatments and I should like offer my two pence worth. I feel that I am in a position to do this ...
Hi I received a few acupuncture treatments for RP, specifically micro-acupuncture. There was a doctor in Arkansas (Per Otte) who administered this treatment. I...
Clinical trials 2-3 results will be annonced in apring some patients have reported some restored vision!!! We could have are first medical treatment for R.P...
Dear David, This is indeed exciting news.? Originally I heard it was to come out in May but have since heard it will be sooner.? I have RP Simplex and have...
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