... My ... an ... took ... at ... vision ... go ... have ... her ... only ... I ... fruits/vegetables/herbal ... with ... Anthony, You need to distinguish...
... special ... talk ... Kim, There is group for parents with children who have RP. Send me a message and I will ask the group owner to let you join. Marisa...
hI NOT A MOM WITH KIDS WITH RP, BUT i HAVE IT BE GLAD TO ANSWER ANY QUESTIONS ... From: mpostlewate <mpostlewate@...> Subject: [RetinitisPigmentosa]...
I am 61 and was told at 27 Ihad rp, but Ican still see a little.My sister is 50 and totally blind from rp, so Idon't think it has a set pattern. ... From:...
I will too.... Thks for this site information. Lots of things just for us."beyond Boomers' John ________________________________ From: "CountessofAZ@..."...
Can you post the link for the flashlight again? Thanks, Marisa ... for us."beyond Boomers' John ... Time, ... and all other ... aol?redir= http://searchblo...
Kim, E-mail me privately and I cn give you info about how to join a group for parents with children with RP. mpostlewate@... Marisa ... special ... talk...
All, I have started Retnitab on July 17 and I should be at my last tab next week. At the stage I am in I did not expect miracles and did not get any. I was...
-been trying for a long time too.can't figure out how it works I just check my mail.And reply to someone who i think can help.Keep me posted if you succeed...
Howdy I'm Mike. I just got confirmation I have RP... finally. My Uncle, and great Uncle had RP. I was in first grade when I had my first eye exam. Docs just...
Hi Mile, Itoo have rp Iam61 and was told at the age of 27. It was a big shock because nobody in my family had it or had ever heard of it. Then my baby sister...
I like hearing what RPers do to help preserve what vision they have remaining. Understand your concern on giving out "false hope." What doesn't work for one...
still looking for someone to explain to me what these are and how it works/what it's supposed to be doing. . . thanks! ... [Non-text portions of this message...
Thks! Ushers can relate to this. I have to recognize that I sometimes do not follow the same news as my wife: she listen to the news and watch them while I...
I totally understand.. I like to remove teh hearing aid(s) and let my ear(s) recover at home and so I resort to reading captions on tv but not always what they...
Hello, Closed Captioned still isn't perfect. CC needs newer technology to allow us to control the way we see it. We should have the power to place the CC...
Idon't know Iwent Thrus. to be tested to see if Icould take the injections but the dr. said they would not help me ... From: Mike <spydiferous@...> ...
Why do you need steroid shots, Barb? If you don't mind my asking. It's been my understanding that RPers need to be careful with these sort of shots. Thx and...
rp causes swelling in the back of the eye in some rp patients which causes fliud leakage that can cause more sight loss. the steriods can stop it. But I didn't...
1- I am still waiting for my flashlight from FirstStreet 2- However, I ordered one of their Sunglasses called Eagle Eyes. Yellow sunglasses may look scary but...
Where did you order the eagle eyes glasses from Barb ... From: Jean-Louis Pretot <jlpretot@...> Subject: Re: [RetinitisPigmentosa] Check out Nightlighter...
The link Countess passes on for the flash light http://www.firststreetonline.com/index.jsp for boomers and beyond. Those guys are smart. Their niche is...
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