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retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases
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Messages 10416 - 10445 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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10416
... 10%vision and was wondering if someone with that percentage had tried them.Thanks Barbara ... ME ASKING HOW LONG HAVE YOU HAD RP. ... will know the results...
autumnh_2007
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Oct 7, 2008
1:08 am
10417
Istarted showing signs when Iwas 15. Tested when I was27 and I'm 61 now. ... From: autumnh_2007 <autumnh_2007@...> Subject: [RetinitisPigmentosa] Re:...
barbara blythe
dirtydogblyt...
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Oct 7, 2008
4:23 pm
10418
I've never heard of them before. My eyes swell up when I used contacts. Countess In a message dated 10/7/2008 3:32:28 A.M. US Mountain Standard Time,...
CountessofAZ@...
angelica_85277
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Oct 7, 2008
4:40 pm
10419
They have not been out long,Baush and Loma has got them. Iwanted to try them but my Dr.won't agree to it. ... From: CountessofAZ@... <CountessofAZ@...>...
barbara blythe
dirtydogblyt...
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Oct 7, 2008
4:51 pm
10420
Does he give a reason for not agreeing to the use of them? Just curious here. Countess In a message dated 10/8/2008 3:41:32 A.M. US Mountain Standard Time, ...
CountessofAZ@...
angelica_85277
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Oct 8, 2008
2:58 pm
10421
He says they could finish closing the rest of my sight out. ... From: CountessofAZ@... <CountessofAZ@...> Subject: Re: [RetinitisPigmentosa] Digest...
barbara blythe
dirtydogblyt...
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Oct 8, 2008
6:44 pm
10422
That's a good enough reason in my book. We need to be able to use what little vision we have left, don't we? I know for me to walk around I'm unable to see...
CountessofAZ@...
angelica_85277
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Oct 9, 2008
2:23 pm
10423
In 1998 at age 38 I was diagnosed with Usher's Syndrome - born hearing impaired & became legally blind @ 38 with retinitis pigmentosa. My doctor registered me...
cre8tvm9s
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Oct 9, 2008
4:55 pm
10424
The only thing I can think of is to contact the Governor's office, especially is the two departments are pushing off their duties to help you. Countess In a...
CountessofAZ@...
angelica_85277
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Oct 10, 2008
6:22 pm
10425
Can anyone tell me how to get in contact with Lizj56 from the below thread?  I must have deleted the original post from 9/30/08.  I've had RP for a number of...
John Adamo
shinbanger2
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Oct 10, 2008
9:32 pm
10426
Hi John, I really am no expert except my doctor from the Kellogg Eye Center is testing me for a possibility of having an autoimmune reaction.? He implied if I...
lizj56@...
lizj1956
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Oct 11, 2008
2:31 am
10427
Liz, do keep us posted on this possible connection. I'm really curious. Wish I could see Dr. H again! Have a great weekend listmates, Countess In a message...
CountessofAZ@...
angelica_85277
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Oct 11, 2008
4:22 pm
10428
Dear All,   I was going through a website http://www.retiniti s-pigmentosa. in/ and then I had a talk with Dr. Ved Prakash Banga who claims that after his...
Rounak Singhania
rounak_singh...
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Oct 13, 2008
5:11 am
10429
Sorry, i knew this was coming. But hey, look at the brighter side of it. atleast he has not been affected mentally by disease. He might have a second...
ajay duia
bull_zane2000
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Oct 13, 2008
10:50 am
10430
... at ... Sorry to hear about that. All I can say is better be prepared for the worst and start making plans on how to cope with blindness. The first few days...
bull_zane2000
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Oct 13, 2008
11:04 am
10431
My father took several sessions of acupuncture treatments from a Dr. in Arkanasas. He did not see any improvement although there were several other patients...
Motherof2boys 13
rdoshi13
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Oct 13, 2008
11:37 am
10432
While with Rehab they get you the tools/equipments you need to get an education/job training to be able to return to the work force. Sounds like you already...
larough@...
laura_saltla...
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Oct 13, 2008
3:21 pm
10433
Hello all, I have RP and I moved from Colombia to New York City, I want to know if any of you know a good ophthalmologist in this city. I have a good Dr in...
claugarzonm
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Oct 13, 2008
4:24 pm
10434
You might check with FFB web site for a listing. Countess In a message dated 10/14/2008 3:39:47 A.M. US Mountain Standard Time, ...
CountessofAZ@...
angelica_85277
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Oct 14, 2008
3:24 pm
10435
Hello i just looked at your post on rp. You stated you knew this was coming , and stated my son may have a second impairment would you explain. You talk like...
autumn holmes
autumnh_2007
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Oct 16, 2008
1:11 am
10436
... ushers. is there anyone who would like to tell me their story? thank- you, tracey Hi Tracey, My son was diagnosed at the age of 13 and I have a positive...
cindy
cawmtali
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Oct 16, 2008
2:51 pm
10437
... was coming , and stated my son may have a second impairment would you explain. You talk like you know my son. ... affected you.  Thank you for your time. ...
bull_zane2000
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Oct 16, 2008
3:47 pm
10438
  Hi, my name is Kathy and I am 52.  I was born with a hearing impairment, fitted with hearing aids as a toddler.  We lived north of LA, so we went to the...
claysdau
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Oct 16, 2008
4:41 pm
10439
THANK YOU FOR YOUR MESSAGE, I REALLY HAVE LEARN MORE FROM PEOPLE I HAVE MEET WHO HAVE THIS CONDITION. MY SON HAS A POSITIVE ATTITUDE SO FAR, NOT SURE HE REALLY...
autumn holmes
autumnh_2007
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Oct 16, 2008
7:34 pm
10440
Hi Kathy, How did you get diagnosed with Usher's? My hearing loss was diagnosed in elementary school, but apparently I was already speech reading at 2 years...
Michelle Harper
harpermo2002
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Oct 21, 2008
5:31 pm
10441
Sexy Filipina Girls are Hot Why choose a Filipina? Women from the Philippines are noted for their beauty, grace, charm and loyalty. With their sweet nature and...
Nadia Nadine
calwar37
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Oct 22, 2008
12:33 pm
10442
Glad to hear from you Michelle. Our medical system is such as you have to do the job yourself.  As for prescriotions, you pretty much ask them what you want....
Jean-Louis Pretot
jlpretot
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Oct 23, 2008
1:06 am
10443
My partner has only recently been diagnosed with RP (in August 08). He is 42 and still coming to terms with his diagnosis. This is most likely my first of many...
lerrossa2002
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Oct 23, 2008
5:59 am
10444
HI I WAS DIAGNOSED WITH RP IN 1994, JUST NOW REACHED LEGAL BLINDNESS, WITH MY PERIFRIAL AT 10%. YES ITS HARD, AND IAM STILL BEING HARD HEADED ABOUT ACCEPTING...
sheri johansen
crazygirl377
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Oct 23, 2008
11:52 am
10445
Hi Megan, I was told I had RP about 3 years ago. At that time, I did not have any problmes seeing and was still driving. Today, I am now legally blind. I had...
Don Britt
squire65z
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Oct 23, 2008
1:02 pm
Messages 10416 - 10445 of 11058   Oldest  |  < Older  |  Newer >  |  Newest
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