... 10%vision and was wondering if someone with that percentage had tried them.Thanks Barbara ... ME ASKING HOW LONG HAVE YOU HAD RP. ... will know the results...
I've never heard of them before. My eyes swell up when I used contacts. Countess In a message dated 10/7/2008 3:32:28 A.M. US Mountain Standard Time,...
They have not been out long,Baush and Loma has got them. Iwanted to try them but my Dr.won't agree to it. ... From: CountessofAZ@... <CountessofAZ@...>...
Does he give a reason for not agreeing to the use of them? Just curious here. Countess In a message dated 10/8/2008 3:41:32 A.M. US Mountain Standard Time, ...
That's a good enough reason in my book. We need to be able to use what little vision we have left, don't we? I know for me to walk around I'm unable to see...
In 1998 at age 38 I was diagnosed with Usher's Syndrome - born hearing impaired & became legally blind @ 38 with retinitis pigmentosa. My doctor registered me...
The only thing I can think of is to contact the Governor's office, especially is the two departments are pushing off their duties to help you. Countess In a...
Can anyone tell me how to get in contact with Lizj56 from the below thread? I must have deleted the original post from 9/30/08. I've had RP for a number of...
Hi John, I really am no expert except my doctor from the Kellogg Eye Center is testing me for a possibility of having an autoimmune reaction.? He implied if I...
Liz, do keep us posted on this possible connection. I'm really curious. Wish I could see Dr. H again! Have a great weekend listmates, Countess In a message...
Dear All, Â I was going through a website http://www.retiniti s-pigmentosa. in/Â and then I had a talk with Dr. Ved Prakash Banga who claims that after his...
Sorry, i knew this was coming. But hey, look at the brighter side of it. atleast he has not been affected mentally by disease. He might have a second...
... at ... Sorry to hear about that. All I can say is better be prepared for the worst and start making plans on how to cope with blindness. The first few days...
My father took several sessions of acupuncture treatments from a Dr. in Arkanasas. He did not see any improvement although there were several other patients...
While with Rehab they get you the tools/equipments you need to get an education/job training to be able to return to the work force. Sounds like you already...
Hello all, I have RP and I moved from Colombia to New York City, I want to know if any of you know a good ophthalmologist in this city. I have a good Dr in...
Hello i just looked at your post on rp. You stated you knew this was coming , and stated my son may have a second impairment would you explain. You talk like...
... ushers. is there anyone who would like to tell me their story? thank- you, tracey Hi Tracey, My son was diagnosed at the age of 13 and I have a positive...
... was coming , and stated my son may have a second impairment would you explain. You talk like you know my son. ... affected you. Thank you for your time. ...
Hi, my name is Kathy and I am 52. I was born with a hearing impairment, fitted with hearing aids as a toddler. We lived north of LA, so we went to the...
THANK YOU FOR YOUR MESSAGE, I REALLY HAVE LEARN MORE FROM PEOPLE I HAVE MEET WHO HAVE THIS CONDITION. MY SON HAS A POSITIVE ATTITUDE SO FAR, NOT SURE HE REALLY...
Hi Kathy, How did you get diagnosed with Usher's? My hearing loss was diagnosed in elementary school, but apparently I was already speech reading at 2 years...
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Glad to hear from you Michelle. Our medical system is such as you have to do the job yourself. As for prescriotions, you pretty much ask them what you want....
My partner has only recently been diagnosed with RP (in August 08). He is 42 and still coming to terms with his diagnosis. This is most likely my first of many...
HI I WAS DIAGNOSED WITH RP IN 1994, JUST NOW REACHED LEGAL BLINDNESS, WITH MY PERIFRIAL AT 10%. YES ITS HARD, AND IAM STILL BEING HARD HEADED ABOUT ACCEPTING...
Hi Megan, I was told I had RP about 3 years ago. At that time, I did not have any problmes seeing and was still driving. Today, I am now legally blind. I had...